If you think you might benefit by being matched with a Peer Mentor, please click here for a support request application.
I was born with tricuspid and pulmonary atresia and underwent the Fontan procedure. I had a total of five open heart surgeries by the age of four; the first surgeries when I was four hours old. I began studying medical anthropology to understand and examine the treatment of people in a non-clinical setting, especially those with invisible disabilities. My personal experience with CHD shaped my research, and I began to focus on people with CHD and how to share their unique stories and experiences with people and raise awareness of the prevalence of CHD. I became a Heart to Heart Peer Mentor to share my knowledge, experience, and research with people within the CHD community who may benefit from it. I hope to be able to help grow and connect the CHD community and provide support and resources to those who need it.
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For additional information on the Heart to Heart Peer Support Program, please email info@achaheart.org.