Home / About Us / People / Patient & Family Advisory Board

Patient & Family Advisory Board

ACHA is committed to creating a culture where patients and families across the country are empowered to communicate with the ACHA Board of Directors and staff leadership in a collaborative effort to promote understanding and outcomes.

Our Patient & Family Advisory Board (PFAB), comprised of individuals with CHD and immediate family members (spouse/partner, father, mother, son, daughter, sister, brother) of individuals with CHD, ensures the existence of an effective organizational mechanism for receiving and responding to diverse consumer perspectives on an ongoing basis. Members provide advice on current and proposed ACHA initiatives and help to ensure the effective delivery of those initiatives in their local communities. The PFAB functions as a standing advisory body to the ACHA Board of Directors.

ACHA PFAB members each represent one of nine distinct regions:

  • New England (Connecticut, Maine, Massachusetts, New Hampshire, Rhode Island, and Vermont)
  • Mid-Atlantic (New Jersey, New York, and Pennsylvania)
  • East North Central (Illinois, Indiana, Michigan, Ohio, and Wisconsin)
  • West North Central (Iowa, Kansas, Minnesota, Missouri, Nebraska, North Dakota, and South Dakota)
  • South Atlantic (Delaware, Florida, Georgia, Maryland, North Carolina, South Carolina, Virginia, Washington D.C., and West Virginia)
  • East South Central (Alabama, Kentucky, Mississippi, and Tennessee)
  • West South Central (Arkansas, Louisiana, Oklahoma, and Texas)
  • Mountain (Arizona, Colorado, Idaho, Montana, Nevada, New Mexico, Utah, and Wyoming)
  • Pacific (Alaska, California, Hawaii, Oregon, and Washington)
Sponsorship support for regional patient outreach and education activities provided by:

Meredith Rahn-Oakes PFAB Co-Chair West North Central
Ashlyn Arthur Middle Atlantic
Mindy Beyer New England
Haley Bradshaw East South Central
Marissa Bremer Middle Atlantic
Andrea Rose Burdette East North Central
Leslie Cannon South Atlantic
Aubree Carlson Pacific
Stephanie Brightharp Cartwright South Atlantic
Jacob Chico Middle Atlantic
Jennifer Cortes West South Central
Anthony T. Dean South Atlantic
Anthony DeCamillis New England
Brook Dorris East South Central
Jaclyn Drager East North Central
Amber D. Franklin South Atlantic
Alison Gill East North Central
Lily Gill New England
David Gilligan West South Central
Jeanette Jones South Atlantic
Amanda Kamke South Atlantic
John Latsha Middle Atlantic
Melissa Gardner Lomax West South Central
Mclain Miller Middle Atlantic
Andy Ohlson East North Central
Kaitlin Pate West South Central
Stephanie Phan West South Central
Drezden Plotkin East South Central
Brian Reil Middle Atlantic
Edwin Ross Pacific
Conor Russo South Atlantic
Michael Sipes West South Central
Jesse Smith Pacific
Katherine Thompson West South Central
Jennifer Walker West South Central
Ken Woodhouse East South Central
In Memoriam: Karen Jo Duvall 1976-2022
In Memoriam: James McNulty 1968-2022
In Memoriam: Bryan Johnston Rothlein 1977-2021
In Memoriam: Alan Sabal 1952-2024