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Patient & Family Advisory Board

ACHA is committed to creating a culture where patients and families across the country are empowered to communicate with the ACHA Board of Directors and staff leadership in a collaborative effort to promote understanding and outcomes.

Our Patient & Family Advisory Board (PFAB), comprised of individuals with CHD and immediate family members (spouse/partner, father, mother, son, daughter, sister, brother) of individuals with CHD, ensures the existence of an effective organizational mechanism for receiving and responding to diverse consumer perspectives on an ongoing basis. Members provide advice on current and proposed ACHA initiatives and help to ensure the effective delivery of those initiatives in their local communities. The PFAB functions as a standing advisory body to the ACHA Board of Directors.

ACHA PFAB members each represent one of nine distinct regions:

  • New England (Connecticut, Maine, Massachusetts, New Hampshire, Rhode Island, and Vermont)
  • Mid-Atlantic (New Jersey, New York, and Pennsylvania)
  • East North Central (Illinois, Indiana, Michigan, Ohio, and Wisconsin)
  • West North Central (Iowa, Kansas, Minnesota, Missouri, Nebraska, North Dakota, and South Dakota)
  • South Atlantic (Delaware, Florida, Georgia, Maryland, North Carolina, South Carolina, Virginia, Washington D.C., and West Virginia)
  • East South Central (Alabama, Kentucky, Mississippi, and Tennessee)
  • West South Central (Arkansas, Louisiana, Oklahoma, and Texas)
  • Mountain (Arizona, Colorado, Idaho, Montana, Nevada, New Mexico, Utah, and Wyoming)
  • Pacific (Alaska, California, Hawaii, Oregon, and Washington)
Sponsorship support for regional patient outreach and education activities provided by:

Mindy Beyer PFAB Co-Chair New England
Jennifer Cortes PFAB Co-Chair West South Central
Stephanie Brightharp Cartwright South Atlantic
Jean Chatzky Middle Atlantic
Jessica Edwards East South Central
Adam Ehlert West North Central
Pamela Foohey Middle Atlantic
Lily Gill New England
Dubra Karnes-Padilla Mountain
Ashlyn Karre Middle Atlantic
Carrie Kayser-Cochran Mountain
Neema K. Khatri South Atlantic
Mona Klaber Pacific
Dorothy Li Pacific
Brad Markvart East North Central
Marissa Mendoza Middle Atlantic
Ezra Mixdorf West North Central
Amy Morton-Sogi Pacific
Drezden Plotkin East South Central
John Romero South Atlantic
Alan Sabal Middle Atlantic
Michael Sipes West South Central
Dilya St. Louis East North Central