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Patient Resource Directory

The ACHA Adult Congenital Heart Disease (ACHD) Patient Resource Directory provides information, resources, and tools for ACHD patients who might experience barriers when accessing recommended specialized care. These searchable resources are provided to help patients take an active role in their cardiac care. Patients can search for topics in areas such as ACHD/CHD organizations, other health advocacy organizations, access to care, and diversity, equity and inclusion.


While many of the resources are national, with the help of the CHD community, our goal is to make the Patient Resource Directory as comprehensive and as locally-focused as it can be. The directory is currently searchable by category and keyword, and our plan is that it will be searchable by state and ZIP code in the future. This is where you come in.


We need your help!

Do you have an update to a resource or a local resource not currently listed that you would like to share with ACHA? We are grateful for the assistance of the ACHA community in making the Patient Resource Directory as robust as it can be. Click here for more information and to add or update a resource. 


Filter Resources

  • View All
  • ACHD/CHD Organizations
    • ACHD/CHD Patient/Family Advocacy
    • Other
    • ACHD Professional
  • Other Health Advocacy Organizations
    • Professional Advocacy
    • Patient/Family Advocacy
  • Other Health Resources
    • Mental Health
    • Substance Abuse
    • General Disability Information
    • Other
  • Access to Care
    • Insurance
    • Financial Assistance Programs
    • Medical Records
    • Other
  • Miscellaneous
    • Travel Resources
    • College Scholarships
    • CHD Camps
    • Pregnancy, Surrogacy and Adoption
    • Connecting with other CHDers
    • Other
    • CHD Books
  • Diversity, Equity, and Inclusion
    • Latino Community
    • LGBTQIA+ Community
    • Black Community




NOTE: Searching by zip code shows the 10 closest resources, including approximate distance.

0 matching results found. Please try a different filter.

Connect with ACHA

Join us in our mission to empower the congenital heart disease community by advancing access to resources and specialized care that improve patient-centered outcomes.

Enter your name, email and state to get started. If you choose to, you can provide more information to us in the next step for more tailored communications! We'll never, for any reason, share your personal information. Already get ACHA emails? We’ve got you! You do NOT need to fill out this form.

*By sharing your information, you consent to receiving emails from ACHA.

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