Join ACHA at a Fall Regional Conference in New York City, Memphis or St. Louis
The conferences are a unique opportunity for adults with congenital heart disease and their families, as well as CHD medical professionals.
ACHA Launches National Accreditation Program
More than a dozen centers throughout the United States are the first to earn ACHA Adult Congenital Heart Disease (ACHD) Accreditation
Congenital Heart Walks A national fundraising event series happening near you!
Show the nation how a team of inspired individuals can join together to make a difference. Funds raised support nonprofits uniting to fight CHD.
Become a Congenital Heart Champion!
Be a part of this special group of supporters who give monthly. Join and receive an exclusive Congenital Heart Champion t-shirt as a gift from ACHA.
Find your doctor
Connect with practices and practitioners specializing in adult congenital heart disease.
Clinic Directory
Living day-to-day
Living with a congenital heart defect requires critical attention to even the most ordinary medical procedures, like a dental visit.
What I need to know
16,000+ walkers
More than 30 cities
More than 30 cities
Join us in raising millions to benefit cutting-edge research, patient programs, and advocacy initiatives!
By bringing our expertise on congenital heart disease to the adults that live with it, we offer the promise for safer, healthier lives.
Supporting Patients
and Families
and Families
Congenital heart disease is survivable, manageable, yet in the routine years between infancy and adulthood, sometimes forgettable. The Adult Congenital Heart Association is a resource, advocate and knowledge base for everyone affected.
Find out more
Empowering
Providers
Providers
Treating congenital heart defects in adults is to understand the continuum of the disease from its infancy. The Adult Congenital Heart Association brings together valuable research, training opportunities and standards of care to help you help your patients and further define this specialization of cardiovascular disease.
Get started
A Blog for the Congenital Heart Disease Community
Scars of Strength & Pride
Earlier this year, I posted a tweet that seemed to resonate with some of my followers:
As a child, I was very self-cons…
Can We Just State the Obvious? CHD St…
It’s funny that four years ago, I stopped writing posts for the ACHA Blog because I’d run out of topics. My health was s…
Pacemaker Check, Reality Check: Impla…
There has been a small amount of coverage in the news cycles lately about the potential for pacemakers and defibrillator…
The Beauty of My Oxygen
I was a counselor this year once more at a camp for kids with CHD. The camp is Nick and Kelly Children’s Heart Camp in P…
Navigating the Detours
As children, we all have dreams of what we want to do or be when we grow up. At one point, I was convinced I was going t…
The Importance of Research to the ACH…
Perhaps what any of us may think about our congenital heart disease (CHD) may not necessarily based on scientific fact. …
My Struggle with FOMO is a Real Thing…
FOMO—fear of missing out. I think it’s a real feeling and an even bigger one for people with a congenital heart defect.
…
On CHD and Traveling
When I found out that I was going to Cuba with CubaOne on their TuCuba Literary trip, I thought about the Cuba I see in …
Advocacy in Action
I traveled to D.C. recently, worried about the impacts the proposed health bill in the Senate would have on those with C…
Empathy for the Routine CHD Patient
As the first generation of adults living with CHD, I'm sure that just about all of us have faced an ignorant or beyond f…
Check out our profile