COVID-19 Resources
ACHA has shared information on COVID-19 (Coronavirus) for adults with congenital heart disease, including Q&As and webinars.
ACHA's Inaugural Research Grants
We are funding three provider research grants and three fellow research grants, focusing on crucial topics surrounding adult congenital heart disease.
ACHA's National Accreditation Program
More than 30 centers throughout the United States have earned ACHA Adult Congenital Heart Disease (ACHD) Accreditation.
Find your doctor
Connect with practices and practitioners specializing in adult congenital heart disease.
Clinic Directory
Living day-to-day
Living with a congenital heart defect requires critical attention to even the most ordinary medical procedures, like a dental visit.
What I need to know
NEWS & EVENTS FROM ACHA
30 Days Your Way for ACHA
This month, we challenge our supporters to help us raise $25,000—funds vital to our ability to serve the CHD community—by hosting a fundraiser.
START FUNDRAISING TODAY
Telemedicine: What Adults with CHD Need to Know
This most recent addition to our Health Information webpages features a Q&A and webinars.
CHECK IT OUT
COVID-19 Resources
Stay informed about COVID-19 with updates and resources tailored for the CHD community.
LEARN MORESupporting Patients
and Families
and Families
Congenital heart disease is survivable, manageable, yet in the routine years between infancy and adulthood, sometimes forgettable. The Adult Congenital Heart Association is a resource, advocate and knowledge base for everyone affected.
Find out more
Empowering
Providers
Providers
Treating congenital heart defects in adults is to understand the continuum of the disease from its infancy. The Adult Congenital Heart Association brings together valuable research, training opportunities and standards of care to help you help your patients and further define this specialization of cardiovascular disease.
Get started
By bringing our expertise on congenital heart disease to the adults that live with it, we offer the promise for safer, healthier lives.
A Blog for the Congenital Heart Disease Community
The Man with a Big Heart
Gerald David Stenzel, or “Jerry,” as he was better known, was born October 14, 1966, in Wells, Minnesota to Dominic and …
Pedaling the Pounds Off: Today and th…
In my last blog, Back in Mississippi, Part 2, I discussed how surrounding myself with highly motivated, hardworking peop…
“But you don’t look sick...”
COVID-19 has brought those with chronic and invisible illness to the forefront. Or has it?
As the pandemic drags on, nu…
Food From and For the Heart: Introduc…
In response to the success of our Midweek Motivation cooking and baking sessions, ACHA is excited to introduce a series …
The Most Important Summer
I am a fiction writer. I like to write stories about people, their challenges, their fears, and joys. I do not like writ…
COVID-19: An Eye-Opener For Life With…
The coronavirus (COVID-19) has certainly turned everyone's world upside down, and my heart goes out to everyone who has …
When Did Noah Build the Ark?
In the adult congenital heart disease (ACHD) community, two important studies were recently published that highlight an …
Pedaling the Pounds Off: Back in Miss…
In Part 1, I discussed that losing weight instilled in me a sense of confidence that altered my body image, giving me th…
Pedaling the Pounds Off: Back in Miss…
In my previous blog, Walk it Off, I wrote about my summer in Washington, D.C. After three months in D.C., I finally brok…
"So, You're Fixed Now?" ...And Other …
“Wow, you have transposition of the great arteries and you survived to adulthood?” — a general practitioner (GP) doctor …