2016 8th National Conference Orlando, October 7-8
Join us at the DoubleTree by Hilton Universal Orlando. This year's conference theme is "The Changing Landscape of Adult Congenital Heart Disease."
Help us improve the quality of care for adults with congenital heart disease
Learn how your center can become part of the ACHA ACHD Accreditation Program.
Congenital Heart Walks A national fundraising event series Happening near you!
Show the nation how a team of inspired individuals can join together to make a difference. Funds raised support nonprofits uniting to fight CHD.
Find your doctor
Connect with practices and practitioners specializing in adult congenital heart disease.
Clinic Directory
Living day-to-day
Living with a congenital heart defect requires critical attention to even the most ordinary medical procedures, like a dental visit.
What I need to know
By bringing our expertise on congenital heart disease to the adults that live with it, we offer the promise for safer, healthier lives.
Supporting Patients
and Families
and Families
Congenital heart disease is survivable, manageable, yet in the routine years between infancy and adulthood, sometimes forgettable. The Adult Congenital Heart Association is a resource, advocate and knowledge base for everyone affected.
Find out more
Empowering
Providers
Providers
Treating congenital heart defects in adults is to understand the continuum of the disease from its infancy. The Adult Congential Heart Association brings together valuable research, training opportunities and standards of care to help you help your patients and further define this specialization of cardiovascular disease.
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A Blog for the Congenital Heart Disease Community
Transition to Adult CHD Care
After my introduction to the Adult Congenital Heart Association and realizing that I was part of an ever-growing populat…
Walking to Fight Congenital Heart Dis…
This past April, I was fortunate enough to participate in my first Congenital Heart Walk. When reflecting back on my fir…
How CHD Impacts One's Social Life
I am a glass half full kind of person. Regardless of what I’ve been going through over the years, I’ve learned that ther…
Bringing Together the Congenital Hear…
When I think about the most satisfying event that I have ever attended in my life, the first memory that stirs isn’t a m…
A Helping Hand in a Patient's Recover…
At my birth, one of the nurses told my mom I wasn’t going to live. I had something “wrong” with my heart, but none of th…
The Dawn of a New Era in ACHD Care
I’ll never forget the moment I first realized I was receiving inappropriate cardiology care from a general cardiologist …
Forever Affected by Congenital Heart …
Titles have always played a tricky role in my relationship with Dan. When we met, we were teenagers and spent way too mu…
Creating New Friendships and Opening …
As I was on my countdown to my fourth open heart surgery, I saw a sign at my adult congenital heart disease (ACHD) clini…
Finding What Makes You Feel Limitless…
I think we all have that person, place, thing or activity that makes us feel limitless when it comes to our hearts. Let'…
To the Young Woman I Met
On Monday, May 30, 2016, my dad drove my older sister, three of our heart friends and myself up to California for a shor…