COVID-19 Resources
ACHA has shared information on COVID-19 (Coronavirus) for adults with congenital heart disease, including Q&As and webinars.
ACHA's Inaugural Research Grants
We are funding three provider research grants and three fellow research grants, focusing on crucial topics surrounding adult congenital heart disease.
ACHA's National Accreditation Program
More than 30 centers throughout the United States have earned ACHA Adult Congenital Heart Disease (ACHD) Accreditation.
Find your doctor
Connect with practices and practitioners specializing in adult congenital heart disease.
Clinic Directory
Living day-to-day
Living with a congenital heart defect requires critical attention to even the most ordinary medical procedures, like a dental visit.
What I need to know
NEWS & EVENTS FROM ACHA
April 29, 2020
Medical Leaders of ACHA Initiate Worldwide COVID-19 Study in Adults with CHD
Walk for 1 in 100 and ACHA Your Way
Raise vital funds for the 1 in 100 children and adults impacted by CHD across the country by walking at an in-person event this fall or hosting a remote ACHA Your Way fundraiser.
GET INVOLVED
ACHA Webinars
Learn about CHD-related topics by watching ACHA’s live and archived webinars—all presented by medical experts.
ACCESS WEBINARS
COVID-19 Resources
Stay informed about COVID-19 with updates and resources tailored for the CHD community.
LEARN MORESupporting Patients
and Families
and Families
Congenital heart disease is survivable, manageable, yet in the routine years between infancy and adulthood, sometimes forgettable. The Adult Congenital Heart Association is a resource, advocate and knowledge base for everyone affected.
Find out more
Empowering
Providers
Providers
Treating congenital heart defects in adults is to understand the continuum of the disease from its infancy. The Adult Congenital Heart Association brings together valuable research, training opportunities and standards of care to help you help your patients and further define this specialization of cardiovascular disease.
Get started
By bringing our expertise on congenital heart disease to the adults that live with it, we offer the promise for safer, healthier lives.
A Blog for the Congenital Heart Disease Community
The Most Important Summer
I am a fiction writer. I like to write stories about people, their challenges, their fears, and joys. I do not like writ…
COVID-19: An Eye-Opener For Life With…
The coronavirus (COVID-19) has certainly turned everyone's world upside down, and my heart goes out to everyone who has …
When Did Noah Build the Ark?
In the adult congenital heart disease (ACHD) community, two important studies were recently published that highlight an …
Pedaling the Pounds Off: Back in Miss…
In Part 1, I discussed that losing weight instilled in me a sense of confidence that altered my body image, giving me th…
Pedaling the Pounds Off: Back in Miss…
In my previous blog, Walk it Off, I wrote about my summer in Washington, D.C. After three months in D.C., I finally brok…
"So, You're Fixed Now?" ...And Other …
“Wow, you have transposition of the great arteries and you survived to adulthood?” — a general practitioner (GP) doctor …
Fear, Concern, The Pool, and Coronavi…
Living with congenital heart disease, I have a predisposition to fear. I’m fearful about what the next doctor’s visit wi…
COVID-19 and the Impact on ACHD Patie…
I can’t be the only person who wakes up every morning and thinks to myself, “Maybe it was just a bad dream? This can’t b…
The Ones Who Care For Us Part 2
Back in March 2016, after my valve replacement surgery, I wrote a post for ACHA called The Ones Who Care For Us. I discu…
Why Walk for 1 in 100 with ACHA in 20…
In my last post in the series Pedaling the Pounds Off, I discussed how I managed to lose weight in Washington, D.C. thro…