ACHA Launches National Accreditation Program
Eleven centers throughout the United States are the first to earn ACHA Adult Congenital Heart Disease (ACHD) Accreditation
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Living with a congenital heart defect requires critical attention to even the most ordinary medical procedures, like a dental visit.
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Congenital heart disease is survivable, manageable, yet in the routine years between infancy and adulthood, sometimes forgettable. The Adult Congenital Heart Association is a resource, advocate and knowledge base for everyone affected.
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Treating congenital heart defects in adults is to understand the continuum of the disease from its infancy. The Adult Congenital Heart Association brings together valuable research, training opportunities and standards of care to help you help your patients and further define this specialization of cardiovascular disease.
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A Blog for the Congenital Heart Disease Community
Pacemaker Check, Reality Check: Impla…
There has been a small amount of coverage in the news cycles lately about the potential for pacemakers and defibrillator…
The Beauty of My Oxygen
I was a counselor this year once more at a camp for kids with CHD. The camp is Nick and Kelly Children’s Heart Camp in P…
Navigating the Detours
As children, we all have dreams of what we want to do or be when we grow up. At one point, I was convinced I was going t…
The Importance of Research to the ACH…
Perhaps what any of us may think about our congenital heart disease (CHD) may not necessarily based on scientific fact. …
My Struggle with FOMO is a Real Thing…
FOMO—fear of missing out. I think it’s a real feeling and an even bigger one for people with a congenital heart defect.
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On CHD and Traveling
When I found out that I was going to Cuba with CubaOne on their TuCuba Literary trip, I thought about the Cuba I see in …
Advocacy in Action
I traveled to D.C. recently, worried about the impacts the proposed health bill in the Senate would have on those with C…
Empathy for the Routine CHD Patient
As the first generation of adults living with CHD, I'm sure that just about all of us have faced an ignorant or beyond f…
An Open Letter to my CHD
Dear Topher,
I hate you! What have I ever done to you? I mean, seriously!? For seemingly no apparent reason, you have p…
CHD and Sports
Sports? Me? No way. “Sports” and “athlete” were never words in my vocabulary. My CHD diagnosis was not made until I was …
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