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Resources

Learn about key issues impacting congenital heart disease patients and caregivers. Use tools from ACHA including the Clinic Directory, which helps you locate ACHD clinics in the United States and Canada.

You are not alone.

There are nearly 2 million adults in the United States living with a congenital heart defect.

  • Nearly one in 100 of babies are born with a congenital heart defect.
  • There are more adults living with CHD than children.
  • Heart murmurs, cyanosis (bluish color to the skin or mucous membranes), clubbing of the finger or toe nails, shortness of breath and excessive fatigue are among the potential symptoms of congenital heart disease in adults.

Put ACHA to work for you by connecting with other adult congenital heart patients, family members and friends and accessing important information and resources. Stay up to date on topics such as medical advances and insurance, and engage with the CHD community.

Explore our CHD Resources

ACHD Clinic Directory

Clinic Directory

The ACHD Clinic Directory offers information on ACHD Board Certified providers certified by the American Board of Internal Medicine (ABIM) and ACHA ACHD Accredited Centers.

ACHD Care Guidelines

ACHD Care Guidelines

If you are living with adult congenital heart disease, you will need to be your own best advocate. This means learning to be an active participant in your treatment decisions and...

Learn how to get Social Security Disability Benefits

Social Security Disability

Are you eligible for Social Security Disability? That can be a tricky question. For many people with congenital heart disease, getting access to Social Security Disability...

Insurance and Affordable Care Act

Insurance & Affordable Care Act

Find out how to get the insurance you need for your adult heart condition Quick Resources ACHA Q&A on Insurance: Click here to access a printable PDF Comprehensive...

Download ACHA Materials

Download Materials

You can download any of the PDFs listed below at no charge. These include our defect-related Q&As, fact sheets, brochures, our Personal Health Passport, Travel Directory and...