You are not alone.
There are nearly 2 million adults in the United States living with a congenital heart defect.
- Nearly one in 100 of babies are born with a congenital heart defect.
- There are more adults living with CHD than children.
- Heart murmurs, cyanosis (bluish color to the skin or mucous membranes), clubbing of the finger or toe nails, shortness of breath and excessive fatigue are among the potential symptoms of congenital heart disease in adults.
Put ACHA to work for you by connecting with other adult congenital heart patients, family members and friends and accessing important information and resources. Stay up to date on topics such as medical advances and insurance, and engage with the CHD community.
Explore our CHD Resources
ACHD Clinic Directory
The ACHD Clinic Directory offers information on ACHD Board Certified providers certified by the American Board of Internal Medicine (ABIM) and ACHA ACHD Accredited Centers.
Patient Resource Directory
The ACHA Adult Congenital Heart Disease (ACHD) Patient Resource Directory provides information, resources, and tools for ACHD patients who might experience barriers when...
ACHD Care Guidelines
If you are living with adult congenital heart disease, you will need to be your own best advocate. This means learning to be an active participant in your treatment decisions and...
New to CHD?
Congenital heart disease describes a range of defects that affect the way the heart works. A congenital heart defect is a structural abnormality within the heart that develops...
Learn how to get Social Security Disability Benefits
Are you eligible for Social Security Disability? That can be a tricky question. For many people with congenital heart disease, getting access to Social Security Disability...
Insurance and Affordable Care Act
Find out how to get the insurance you need for your adult heart condition Quick Resources ACHA Q&A on Insurance: Click here to access a printable PDF Comprehensive...
Download ACHA Materials
Anyone can download any of the PDFs linked below at no charge. These include our defect-specific and lifestyle Q&As, fact sheets, brochures, Personal Health Passport, Travel...