Get Involved by Volunteering

Help us educate the world about congenital heart disease, and make a difference today! Here’s how:

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When you sign up as an ACHA member, not only do you get ACHA member announcements and information, but you also add your voice to ACHA’s efforts. It’s free! Join now!

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Additional Volunteer Opportunities

ACHA volunteers are the backbone of our organization – our mission keepers and our message. By becoming involved with ACHA, you are helping us achieve the goals outlined in Vision 2025 and supporting our mission of improving and extending the lives of the millions board with heart defects. Below you’ll find an overview of our current opportunities.


Our outreach efforts are focused on providing networking opportunities for ACHD patients across the United States, partnering with local ACHD programs and assisting in various outreach/awareness efforts throughout the country. Initiatives include establishing social events in cities across the U.S., promoting ACHD Program Accreditation and patient involvement in hospital-associated Patient Family Advisory Councils, and increasing awareness of ACHA in regional and local areas through community events.


Volunteer opportunities exist to help ACHA engage both patient/family and medical professionals at the local level in advocacy efforts. Initiatives include development of an in-district advocacy day during summer Congressional recess, creation of resources for members wanting to learn more about advocacy, and continuing advocacy efforts year round in addition to the annual Congenital Heart Legislative Conference. Opportunities exist to serve as a liaison between ACHA and state or federal representatives, assist and/or lead local advocacy trainings and share your story. For more information on our advocacy program, click here.


A key part of ACHA’s mission is education, which currently includes webinars, regional and national conferences, and print/PDF resources. We are continuously seeking to develop additional resources on topics pertinent to our members. Opportunities exist to assist our Heart to Heart Ambassadors and Senior Education Manager with development, research and peer review for additional projects and initiatives, such as developing Q & A resources for specific defects or topics. In addition to defect-specific resources, additional focus areas include mental health, transition to adult care, teen/college age resources, and resources for caregivers/spouses.


ACHA hosts events all across the country each year that wouldn’t be possible without the assistance of dedicated volunteers. Opportunities, both large and small, exist for our Walk for 1 in 100 series, galas/benefits, and regional conferences and events. ACHA members around the country can also help ACHA raise funds and awareness by organizing events in their community. For more information, visit our events and fundraiser pages.

Online Community & Social Media Presence

Our new online community  offers multiple ways to communicate, collaborate and connect with ACHA members all across the U.S. Volunteer opportunities include serving as a moderator for defect and topic-specific forums and updating community and regional group calendars. One of the easiest ways to get involved is to follow ACHA on Facebook, Twitter and Instagram and be an ACHA Social Influencer by sharing our posts to increase our reach and raise awareness.

Speakers Bureau

The Speakers Bureau is an initiative comprised of patients and family members who talk about the importance of lifelong care, ACHA programming and share their personal story in their communities with various audiences. These audiences can include, but are not limited to, medical providers, college campuses, community groups, and CHD patients and family members.

Ready to get started? Interested in any of these opportunities? Email to get started!