Our ACHA bloggers cover many topics relevant to the CHD community. If you are interested in blogging, please email info@achaheart.org.

My “Heart Family”

by Allie Gasiorowski on Thursday, Apr 27, 2017

Throughout the first 12 years of my life, I was presented with a few opportunities to meet other patients with congenital heart defects. There were no other young heart patients that I knew of at school, in my community theater family, or in my dance classes, but throughout my four heart surgeries, my family and I connected with patients in the hospital enduring the same everyday struggles.

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Thoughts on the Eve of My Eleventh Heart Surgery

by Clare Almand on Tuesday, Apr 04, 2017

Tomorrow, I’m having my eleventh heart surgery.* Whenever I’m about to have surgery, I go through the same emotions. Most of my feelings go back to how absurd it is that this is a normal thing in my life. The following is a mostly concise description of what I’ve been thinking about.

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Partnership with The Mighty

Tuesday, Mar 14, 2017

We're thrilled to announce a new partnership that will bring our resources in front of The Mighty's wide-reaching readership. We will now have a growing home page  on The Mighty and appear on many stories on the site.

 

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Why I Fundraise for ACHA...

by Misty Sharpe on Thursday, Feb 23, 2017

As I was growing up, I always felt my parents did an excellent job of empowering me when it came to my congenital heart disease (CHD). I knew the importance of taking my medications and understanding my physical limitations.  What none of us knew until I was around 22 years old, however, is that there was an organization out there specifically for adults like me.

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Let's Talk About Love...

by Kelly DiMaggio on Wednesday, Feb 15, 2017

Being in love and in a relationship is one of the greatest gifts that life has to offer, especially for a congenital heart disease (CHD) patient.

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It's Heart Month!

by Paula Miller on Thursday, Feb 02, 2017

Did you know that one out of 100 people have congenital heart disease (CHD) - meaning that when they are born they have something structurally wrong with their heart. It has nothing to do with diet or smoking or weight. For me, it was four different defects. Rolled into one, it’s called Tetralogy of Fallot. When I was born there was no surgery and my chances to live was very low. I am lucky and I did eventually have surgery (in fact three of them so far). BUT I will never be cured.

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Learning to Love the Scar

by Clare Almand on Thursday, Jan 26, 2017

I wrote about body image five years ago, where I mentioned how proud I am of my scars and how I don’t have a problem wearing clothes that show them. While I feel that way now, that wasn’t always the case.

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A Decade Gone By: Then and Now With CHD

by Kelly DiMaggio on Thursday, Jan 12, 2017

When presented with the question "How different were you and your CHD 10 years ago compared to today?" my initial reaction was to laugh out loud. I know that probably seems like somewhat of a strange reaction – after all, there isn't really anything funny about congenital heart disease (CHD).

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Disclaimer

The opinions expressed by ACHA bloggers and those providing comments on the ACHA Blog are theirs alone, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied by the ACHA bloggers.

The contents of this blog are presented for informational purposes only, and should not be substituted for professional advice. Always consult your physicians with your questions and concerns.

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