Our ACHA bloggers cover many topics relevant to the CHD community. If you are interested in blogging, please email info@achaheart.org.

A Decade Gone By: Then and Now With CHD

by Kelly DiMaggio on Thursday, Jan 12, 2017

When presented with the question "How different were you and your CHD 10 years ago compared to today?" my initial reaction was to laugh out loud. I know that probably seems like somewhat of a strange reaction – after all, there isn't really anything funny about congenital heart disease (CHD).

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Let Me Introduce Myself...

by Kim Russell on Thursday, Jan 05, 2017

Before I start, let me say it is a pleasure to meet you! Oh, I may not know you by name, but I am quite sure that we have a shared interest in congenital heart disease (CHD). Those are the people I enjoy meeting most, because CHD has become my passion.

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The Importance of Allies

by Ken Woodhouse on Thursday, Dec 15, 2016

I admit it. I am stubbornly independent. I like figuring things out on my own, and I take pride in being self-sufficient. I enjoy helping and supporting others, but I am terrible at asking for help.

Of course the reality is that no one—with very few exceptions—is completely self-sufficient. In fact, our culture almost requires interconnectivity. Most of us are not growing our own food, working entirely for ourselves, and building and maintaining our homes in isolation. In most cases, our networks are necessary for our very survival.

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Turn Blue to Pink...Death Into Life

by Joe Valente on Thursday, Nov 17, 2016

We watch movies for a myriad of reasons. For me, Something the Lord Made is a movie that touches all of my emotions. As a congenital heart disease (CHD) advocate, it motivates me, but also reminds me of all the work that is still ahead of us.

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Dealing With CHD During the Winter

by Deb Flaherty-Kizer on Thursday, Nov 03, 2016

Cold. Ice. Snow. Dark at morning and dark at night. The joys of winter. Ugh! Living with congenital heart disease (CHD) –or any disease—in winter can pose special challenges. I often wonder why in the world I moved to upstate New York, where a foot of snow is described as “just a dusting.”

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Expecting the Unexpected

by Misty Sharpe on Thursday, Oct 27, 2016

On October 6-7, I should have been enjoying the warmth of the Orlando sun and taking in a wealth of information on numerous congenital heart disease (CHD) related topics. Mother Nature, however, had other plans in the form of Hurricane Matthew. If you’re like me, a first time Adult Congenital Heart Association National Conference goer, you were extremely excited, and maybe a little nervous, about all that you were going to learn. Now, with the new dates of the conference being June 1-3, 2017 in Orlando, all of this got me thinking about the unexpected as it relates to having CHD.

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An Impactful Change

by Kim Russell on Thursday, Sep 29, 2016

Have you ever considered the impact that the Adult Congenital Heart Association (ACHA) has had in your life? The true support they have provided for you as an adult with congenital heart disease (CHD)? Before writing this blog, I had never truly thought through how much ACHA has changed my life and that of my family. Thank you, ACHA, for all you have been to me for the past twelve years. Thank you for the experiences and friendships I have had because of all of you!

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Transition to Adult CHD Care

by Joe Valente on Thursday, Sep 15, 2016

After my introduction to the Adult Congenital Heart Association and realizing that I was part of an ever-growing population of adults living with congenital heart disease, I realized that one of the overarching themes was that there were and are a significant number of adults with congenital heart disease (CHD) who got lost in care.

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The opinions expressed by ACHA bloggers and those providing comments on the ACHA Blog are theirs alone, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied by the ACHA bloggers.

The contents of this blog are presented for informational purposes only, and should not be substituted for professional advice. Always consult your physicians with your questions and concerns.

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