Our ACHA bloggers cover many topics relevant to the CHD community. 

My Regional Conference Experience

by Jennifer Rogers on Friday, Jan 12, 2018

I recently discovered the Adult Congenital Heart Association, and I am so thankful that I did. As a young adult and college student living with CHD, sometimes there is a great amount of uncertainty that can come with it. I happened to be learn about ACHA’s Memphis Regional Conference this past October, and it struck my interest.

Read more

Always a Heart Warrior

by Kelly DiMaggio on Thursday, Jan 04, 2018

Almost six years ago I had my last cardiac catheterization—a procedure that lasted nine hours (yes, you read that right!) and almost resulted in my cardiology team at the University of Maryland having to flip the catheterization lab into a full blown OR for what would have been my fourth open heart surgery. Luckily, they were able to avoid that.

At the time, I had been dating my boyfriend (now husband) for just over two years. I was still so young and our relationship was long distance, as I was a few hours away at college. Like most young lovers, our relationship was tumultuous at times.

Read more

Travel Must-Knows of a Heart Warrior

by Jara Weinkauf on Friday, Dec 15, 2017

Travelling is one of my favourite things to do in my free time. But as life has it, exploring the world with a congenital heart disease can be slightly different than usual.

Read more

Whatever it is that brings you joy, do that.

by Kathleen Hutchinson on Wednesday, Dec 06, 2017

Wow, where does the time go? This past year has flown by. It seems not much has happened but when I look back, a lot has happened. I continue to feel great and believe I am healthier than I’ve ever been.

At the beginning of the year, instead of New Year’s resolutions, I made a “to-do” list for the year. I can say I accomplished at least half, if not more, on my “to-do” list.

Read more

Defining True Support

by Kim Edgren on Tuesday, Nov 21, 2017

It is that time of year that we reflect on what we are thankful for. This year, as I enjoy the calm of heart stability, it is easy to take that for granted. It is during this calm, however, that I should be the most thankful for that stability.

Read more

Treating Adult Congenital Heart Patients at a Children’s Hospital

by Wilson Lam, MD on Wednesday, Nov 01, 2017

While it may sound unconventional, it is not uncommon for an adult patient to be treated at a children’s hospital. In the congenital heart disease community, this tends to be the case for a variety of reasons.

Below, Dr. Wilson Lam, a pediatric and adult cardiologist at Texas Children’s Hospital, discusses his patient, Jason, and his role in treating the tallest and oldest patient at Texas Children’s Hospital.

Read more

ACHA ACHD Program Accreditation is NOT a Competition

by Christy Sillman on Monday, Oct 23, 2017

Historically, when searching for appropriate cardiology care, either as a child or an adult, we’ve had to rely on national “rankings” through lists like U.S. News Reports & World Report rankings, or through our own analysis of the transparent information presented in the ACHA program directory. It’s no wonder then, that when the first wave of ACHA ACHD Accredited Programs were announced, many patient’s first reaction was to view these accredited programs as a sort of ranking comparatively to other programs. I saw many comments on social media that included sentiments such as “I can’t believe ____ program wasn’t included!” or “where is _____ program, this doesn’t seem fair!”

Read more

Scars of Strength & Pride

by Ken Woodhouse on Thursday, Oct 05, 2017

Earlier this year, I posted a tweet that seemed to resonate with some of my followers:

As a child, I was very self-conscious about my scar. Today, it serves as a reminder of my inherent strength and resilience. #CHDlife

Whether or not a person has a congenital heart defect and its related scars, I think that many of us struggle with body image issues. We’re too fat, too skinny, too tall, too short, too hairy, or too smooth; we must fix these faults—at least that’s what popular culture wants us to believe.

Read more

Disclaimer

The opinions expressed by ACHA bloggers and those providing comments on the ACHA Blog are theirs alone, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied by the ACHA bloggers.

The contents of this blog are presented for informational purposes only, and should not be substituted for professional advice. Always consult your physicians with your questions and concerns.

Check out our profile