Our ACHA bloggers cover many topics relevant to the CHD community. If you are interested in blogging, please email info@achaheart.org.

How CHD Impacts One's Social Life

by Allie Gasiorowski on Wednesday, Aug 24, 2016

I am a glass half full kind of person. Regardless of what I’ve been going through over the years, I’ve learned that there will always be someone enduring even greater struggles.

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Bringing Together the Congenital Heart Disease Community

by Michael Pernick on Wednesday, Aug 03, 2016

When I think about the most satisfying event that I have ever attended in my life, the first memory that stirs isn’t a memory of a wedding or a birthday party. It isn’t a memory of a concert or school reunion. When I think of the most fulfilling event in my life, the first memory that always comes to mind is the last Adult Congenital Heart Association (ACHA) National Conference in Chicago.

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A Helping Hand in a Patient's Recovery

by Deb Flaherty-Kizer on Wednesday, Jul 27, 2016

At my birth, one of the nurses told my mom I wasn’t going to live. I had something “wrong” with my heart, but none of the doctors at the time knew what. Well, at 59 years old, I guess I proved that nurse wrong!

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The Dawn of a New Era in ACHD Care

by Christy Sillman on Thursday, Jul 21, 2016

I’ll never forget the moment I first realized I was receiving inappropriate cardiology care from a general cardiologist and discovered the Adult Congenital Heart Association (ACHA). I browsed the ACHA Clinic Directory and was so thankful that I had found this resource, but was also a bit bewildered. How does one become an adult congenital heart disease (ACHD) cardiologist? If I have several choices in my state, how do I know which ACHD program is better equipped to handle my care?

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Forever Affected by Congenital Heart Disease

by Stephanie Swirsky on Wednesday, Jul 13, 2016

Titles have always played a tricky role in my relationship with Dan. When we met, we were teenagers and spent way too much time trying to define our relationship. For years, we moved between friends, friends with benefits, and boyfriend and girlfriend.

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Creating New Friendships and Opening Doors

by Joe Valente on Wednesday, Jun 29, 2016

As I was on my countdown to my fourth open heart surgery, I saw a sign at my adult congenital heart disease (ACHD) clinic. It had been there for quite some time as it was wrinkled from the damp air, but I had never processed it before and I knew nothing about the Adult Congenital Heart Association (ACHA).

Like many patients with congenital heart disease (CHD), I went many years without needing serious intervention, in fact, it had been 24 years since my last open heart surgery. Contrary to the first six years of my life, I was blessed to live a relatively normal life for many of those years. I had always been a compliant patient and worked hard to understand everything I could about my heart and all my other medical complications, but had no inclination that there was anything bigger than my own struggles with my health.

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Finding What Makes You Feel Limitless

by Kelly DiMaggio on Wednesday, Jun 22, 2016

I think we all have that person, place, thing or activity that makes us feel limitless when it comes to our hearts. Let's face it, as adults with congenital heart defects, there are definitely a lot of obstacles and limitations that we face in our day to day lives. Yet it's amazing how those obstacles and limitations take the back burner when we discover the place, thing, or activity that makes us feel unstoppable.

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To the Young Woman I Met

by Becca Atherton on Tuesday, Jun 07, 2016

On Monday, May 30, 2016, my dad drove my older sister, three of our heart friends and myself up to California for a short trip to Disneyland. We met up with our other heart friends for dinner in Downtown Disney that same night. The restaurant thankfully had let me make a reservation a few days before our trip and we were able to put enough tables together to get 16 people all together to eat. It was an amazing weekend filled with lots of laughter and amazing memories.

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Disclaimer

The opinions expressed by ACHA bloggers and those providing comments on the ACHA Blog are theirs alone, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied by the ACHA bloggers.

The contents of this blog are presented for informational purposes only, and should not be substituted for professional advice. Always consult your physicians with your questions and concerns.