Our ACHA bloggers cover many topics relevant to the CHD community. If you are interested in blogging, please email info@achaheart.org.

Partnership with The Mighty

Tuesday, Mar 14, 2017

We're thrilled to announce a new partnership that will bring our resources in front of The Mighty's wide-reaching readership. We will now have a growing home page  on The Mighty and appear on many stories on the site.

 

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Why I Fundraise for ACHA...

by Misty Sharpe on Thursday, Feb 23, 2017

As I was growing up, I always felt my parents did an excellent job of empowering me when it came to my congenital heart disease (CHD). I knew the importance of taking my medications and understanding my physical limitations.  What none of us knew until I was around 22 years old, however, is that there was an organization out there specifically for adults like me.

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Let's Talk About Love...

by Kelly DiMaggio on Wednesday, Feb 15, 2017

Being in love and in a relationship is one of the greatest gifts that life has to offer, especially for a congenital heart disease (CHD) patient.

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It's Heart Month!

by Paula Miller on Thursday, Feb 02, 2017

Did you know that one out of 100 people have congenital heart disease (CHD) - meaning that when they are born they have something structurally wrong with their heart. It has nothing to do with diet or smoking or weight. For me, it was four different defects. Rolled into one, it’s called Tetralogy of Fallot. When I was born there was no surgery and my chances to live was very low. I am lucky and I did eventually have surgery (in fact three of them so far). BUT I will never be cured.

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Learning to Love the Scar

by Clare Almand on Thursday, Jan 26, 2017

I wrote about body image five years ago, where I mentioned how proud I am of my scars and how I don’t have a problem wearing clothes that show them. While I feel that way now, that wasn’t always the case.

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A Decade Gone By: Then and Now With CHD

by Kelly DiMaggio on Thursday, Jan 12, 2017

When presented with the question "How different were you and your CHD 10 years ago compared to today?" my initial reaction was to laugh out loud. I know that probably seems like somewhat of a strange reaction – after all, there isn't really anything funny about congenital heart disease (CHD).

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Let Me Introduce Myself...

by Kim Russell on Thursday, Jan 05, 2017

Before I start, let me say it is a pleasure to meet you! Oh, I may not know you by name, but I am quite sure that we have a shared interest in congenital heart disease (CHD). Those are the people I enjoy meeting most, because CHD has become my passion.

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The Importance of Allies

by Ken Woodhouse on Thursday, Dec 15, 2016

I admit it. I am stubbornly independent. I like figuring things out on my own, and I take pride in being self-sufficient. I enjoy helping and supporting others, but I am terrible at asking for help.

Of course the reality is that no one—with very few exceptions—is completely self-sufficient. In fact, our culture almost requires interconnectivity. Most of us are not growing our own food, working entirely for ourselves, and building and maintaining our homes in isolation. In most cases, our networks are necessary for our very survival.

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Disclaimer

The opinions expressed by ACHA bloggers and those providing comments on the ACHA Blog are theirs alone, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied by the ACHA bloggers.

The contents of this blog are presented for informational purposes only, and should not be substituted for professional advice. Always consult your physicians with your questions and concerns.

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