Our ACHA bloggers cover many topics relevant to the CHD community. If you are interested in blogging, please email info@achaheart.org.

Turn Blue to Pink...Death Into Life

by Joe Valente on Thursday, Nov 17, 2016

We watch movies for a myriad of reasons. For me, Something the Lord Made is a movie that touches all of my emotions. As a congenital heart disease (CHD) advocate, it motivates me, but also reminds me of all the work that is still ahead of us.

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Dealing With CHD During the Winter

by Deb Flaherty-Kizer on Thursday, Nov 03, 2016

Cold. Ice. Snow. Dark at morning and dark at night. The joys of winter. Ugh! Living with congenital heart disease (CHD) –or any disease—in winter can pose special challenges. I often wonder why in the world I moved to upstate New York, where a foot of snow is described as “just a dusting.”

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Expecting the Unexpected

by Misty Sharpe on Thursday, Oct 27, 2016

On October 6-7, I should have been enjoying the warmth of the Orlando sun and taking in a wealth of information on numerous congenital heart disease (CHD) related topics. Mother Nature, however, had other plans in the form of Hurricane Matthew. If you’re like me, a first time Adult Congenital Heart Association National Conference goer, you were extremely excited, and maybe a little nervous, about all that you were going to learn. Now, with the new dates of the conference being June 1-3, 2017 in Orlando, all of this got me thinking about the unexpected as it relates to having CHD.

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An Impactful Change

by Kim Russell on Thursday, Sep 29, 2016

Have you ever considered the impact that the Adult Congenital Heart Association (ACHA) has had in your life? The true support they have provided for you as an adult with congenital heart disease (CHD)? Before writing this blog, I had never truly thought through how much ACHA has changed my life and that of my family. Thank you, ACHA, for all you have been to me for the past twelve years. Thank you for the experiences and friendships I have had because of all of you!

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Transition to Adult CHD Care

by Joe Valente on Thursday, Sep 15, 2016

After my introduction to the Adult Congenital Heart Association and realizing that I was part of an ever-growing population of adults living with congenital heart disease, I realized that one of the overarching themes was that there were and are a significant number of adults with congenital heart disease (CHD) who got lost in care.

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Walking to Fight Congenital Heart Disease

by Kelly DiMaggio on Thursday, Sep 01, 2016

This past April, I was fortunate enough to participate in my first Congenital Heart Walk. When reflecting back on my first walk experience, one of the things that strikes me the most is how these walks are really growing and really coming into their own. The congenital heart disease (CHD) community, and even more so the adult congenital heart disease (ACHD) community, is a rather unique group. CHD’s are the most common birth defect, with one in 100 children being born with some form of CHD; yet they are still grossly underfunded and under advocated for. I think it’s so wonderful that the Adult Congenital Heart Association (ACHA) and The Children’s Heart Foundation partner up to put on such a great event! 

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How CHD Impacts One's Social Life

by Allie Gasiorowski on Wednesday, Aug 24, 2016

I am a glass half full kind of person. Regardless of what I’ve been going through over the years, I’ve learned that there will always be someone enduring even greater struggles.

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Bringing Together the Congenital Heart Disease Community

by Michael Pernick on Wednesday, Aug 03, 2016

When I think about the most satisfying event that I have ever attended in my life, the first memory that stirs isn’t a memory of a wedding or a birthday party. It isn’t a memory of a concert or school reunion. When I think of the most fulfilling event in my life, the first memory that always comes to mind is the last Adult Congenital Heart Association (ACHA) National Conference in Chicago.

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Disclaimer

The opinions expressed by ACHA bloggers and those providing comments on the ACHA Blog are theirs alone, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied by the ACHA bloggers.

The contents of this blog are presented for informational purposes only, and should not be substituted for professional advice. Always consult your physicians with your questions and concerns.

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