Our ACHA bloggers cover many topics relevant to the CHD community. If you are interested in blogging, please email info@achaheart.org.

An Impactful Change

by Kim Russell on Thursday, Sep 29, 2016

Have you ever considered the impact that the Adult Congenital Heart Association (ACHA) has had in your life? The true support they have provided for you as an adult with congenital heart disease (CHD)? Before writing this blog, I had never truly thought through how much ACHA has changed my life and that of my family. Thank you, ACHA, for all you have been to me for the past twelve years. Thank you for the experiences and friendships I have had because of all of you!

Read more

Transition to Adult CHD Care

by Joe Valente on Thursday, Sep 15, 2016

After my introduction to the Adult Congenital Heart Association and realizing that I was part of an ever-growing population of adults living with congenital heart disease, I realized that one of the overarching themes was that there were and are a significant number of adults with congenital heart disease (CHD) who got lost in care.

Read more

Walking to Fight Congenital Heart Disease

by Kelly DiMaggio on Thursday, Sep 01, 2016

This past April, I was fortunate enough to participate in my first Congenital Heart Walk. When reflecting back on my first walk experience, one of the things that strikes me the most is how these walks are really growing and really coming into their own. The congenital heart disease (CHD) community, and even more so the adult congenital heart disease (ACHD) community, is a rather unique group. CHD’s are the most common birth defect, with one in 100 children being born with some form of CHD; yet they are still grossly underfunded and under advocated for. I think it’s so wonderful that the Adult Congenital Heart Association (ACHA) and The Children’s Heart Foundation partner up to put on such a great event! 

Read more

How CHD Impacts One's Social Life

by Allie Gasiorowski on Wednesday, Aug 24, 2016

I am a glass half full kind of person. Regardless of what I’ve been going through over the years, I’ve learned that there will always be someone enduring even greater struggles.

Read more

Bringing Together the Congenital Heart Disease Community

by Michael Pernick on Wednesday, Aug 03, 2016

When I think about the most satisfying event that I have ever attended in my life, the first memory that stirs isn’t a memory of a wedding or a birthday party. It isn’t a memory of a concert or school reunion. When I think of the most fulfilling event in my life, the first memory that always comes to mind is the last Adult Congenital Heart Association (ACHA) National Conference in Chicago.

Read more

A Helping Hand in a Patient's Recovery

by Deb Flaherty-Kizer on Wednesday, Jul 27, 2016

At my birth, one of the nurses told my mom I wasn’t going to live. I had something “wrong” with my heart, but none of the doctors at the time knew what. Well, at 59 years old, I guess I proved that nurse wrong!

Read more

The Dawn of a New Era in ACHD Care

by Christy Sillman on Thursday, Jul 21, 2016

I’ll never forget the moment I first realized I was receiving inappropriate cardiology care from a general cardiologist and discovered the Adult Congenital Heart Association (ACHA). I browsed the ACHA Clinic Directory and was so thankful that I had found this resource, but was also a bit bewildered. How does one become an adult congenital heart disease (ACHD) cardiologist? If I have several choices in my state, how do I know which ACHD program is better equipped to handle my care?

Read more

Forever Affected by Congenital Heart Disease

by Stephanie Swirsky on Wednesday, Jul 13, 2016

Titles have always played a tricky role in my relationship with Dan. When we met, we were teenagers and spent way too much time trying to define our relationship. For years, we moved between friends, friends with benefits, and boyfriend and girlfriend.

Read more


The opinions expressed by ACHA bloggers and those providing comments on the ACHA Blog are theirs alone, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied by the ACHA bloggers.

The contents of this blog are presented for informational purposes only, and should not be substituted for professional advice. Always consult your physicians with your questions and concerns.