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ACHA's Patient & Family Advisory Board Recruitment Opens

Tuesday, May 09, 2023

Thank you for your interest in joining the Adult Congenital Heart Association (ACHA) Patient & Family Advisory Board (PFAB).

ACHA is committed to creating a culture where patients and families across the country are empowered to communicate with Board and staff leadership in a collaborative effort to promote understanding and outcomes. The PFAB ensures the existence of an effective organizational mechanism for receiving and responding to diverse consumer perspectives on an ongoing basis. Members of the PFAB provide advice and support on current and proposed ACHA initiatives and help to ensure the effective delivery of those initiatives in their local communities.  The PFAB functions as a standing advisory body to the ACHA Board of Directors (BOD). 

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ACHA's Diversity, Equity, and Inclusion (DEI) Committee Now Accepting Applications

Thursday, Apr 20, 2023

Help us ensure that ACHA’s programs continue to be supportive and representative of all impacted by CHD by applying to join ACHA’s Diversity, Equity, and Inclusion (DEI) Committee.

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ACHA Spotlight: Jason Williams, MD

Monday, Feb 27, 2023

As Black History Month comes to a close, we are sharing a Q&A with Jason Williams, MD. Dr. Williams is a Cardiothoracic Imaging Specialist and Pediatric Cardiologist at Duke Children’s in Durham, NC, and has shared his thoughts on the importance of diverse representation in medicine, how he is addressing health equity through his work with the congenital heart disease (CHD) community, and more.

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ACHA in Action: Heart Month 2023 Awareness Roundup

Tuesday, Feb 21, 2023

We are so thankful to all of the volunteers and supporters, including members of the Board of Directors (BOD) and Patient & Family Advisory Board (PFAB), who have worked hard to spread awareness about both ACHA and the importance of lifelong care for adults with congenital heart disease (CHD).

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Applications Available for ACHA's Research Grants, Including Newest Pulmonary Vascular Disease Award

Wednesday, Jan 25, 2023

Since launching our emerging research program in 2019, ACHA has invested $400,000 to fund 14 investigations at adult congenital heart disease (ACHD) centers across the country. We are excited to build upon our commitment to unlocking new discoveries for our patient population, and are thrilled to announce today that grant applications for ACHA’s 2023 Research Awards are now available!

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Welcome to the Newest Members of ACHA’s Board of Directors and Medical Advisory Board

Wednesday, Jan 11, 2023

The beginning of a new year means the addition of new members to the Adult Congenital Heart Association’s (ACHA) Board of Directors and Medical Advisory Board. This year, we are proud to announce the following members who are joining these impressive teams to become an integral part of fulfilling the ACHA mission to empower the congenital heart disease (CHD) community by advancing access to resources and specialized care that improve patient-centered outcomes.

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2022 ACHA Volunteer Award Winners

Wednesday, Dec 14, 2022

We are excited to announce our 2022 ACHA Volunteer Award recipients! ACHA staff and board members submitted nominations for the following four categories: Fundraiser of the Year, Rookie of the Year, Influencer of the Year, and Organizational Partner of the Year. Once all nominees were submitted, the ACHA Emeritus Board reviewed the nominations and selected the winner for each category. 

Thank you to our awardees for your dedication to furthering our mission this year! 

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Organization Leaders Plan ACHA’s Future

Wednesday, Nov 02, 2022

For the first time ever, the Adult Congenital Heart Association was pleased to have the opportunity to assemble members of the Board of Directors (BOD), Emeritus Board, Medical Advisory Board (MAB), Patient and Family Advisory Board (PFAB), and staff. The group met October 28-29 in Bloomington, MN, for a Leadership Retreat to review ACHA’s accomplishments over the last few years, and plan for the next three years through Vision 2025.

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ACHA Continues Commitment to Research, Including Additional Focus on Neurocognitive Studies

Wednesday, Sep 21, 2022

The Adult Congenital Heart Association (ACHA) is proud to announce its third round of research grants to fund four new projects across the United States. The total commitment for ACHA’s research program now totals $400,000 since 2019, which has funded 14 scientific research projects.  

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Board of Directors 2022 Recruitment Period Opens

Tuesday, Sep 06, 2022

The Adult Congenital Heart Association is currently recruiting highly-qualified candidates to serve on the ACHA Board of Directors (BOD). To learn more about the roles, responsibilities, and qualifications for our BOD, please click here.

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