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ACHA Research Update: Fontan-Associated Liver Disease

Thursday, Mar 28, 2024

ACHA has been advancing research for adult congenital heart disease (ACHD) patients since the ACHA Research Program started in 2019. ACHA is the only national nonprofit organization focusing solely on research for adult CHD patients now and in the future. The researchers who were awarded research grants through the ACHA Research Program are hoping to improve the landscape of treatment options, innovative surgery/intervention options, medications, and overall neurocognitive health of all ACHD patients.

ACHA has awarded grants in three main categories: neurocognitive research, pulmonary vascular research and general research focused on ACHD. Throughout 2024, we will be spotlighting researchers and the research that has been conducted since 2019 so that we can continue to share the results that directly affect those with ACHD.

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Applications Now Available for ACHA's 2024 Research Grants

Tuesday, Mar 26, 2024

Since launching our emerging research program in 2019, ACHA has invested more than half a million dollars to fund 18 investigations at adult congenital heart disease (ACHD) centers across the country. We are excited to build upon our commitment to unlocking new discoveries for our patient population, and are thrilled to announce today that grant applications for ACHA’s 2024 Research Awards are now available!

ACHA’s 2024 research program will continue to accept applications for early investigation and pilot studies for all ACHD disciplines. We are proud to once again offer the Meil Family Foundation Research Award for Neurocognitive Studies, which debuted in 2022, as well as the Pulmonary Vascular Disease Research Award, funded by a corporate sponsorship from Johnson & Johnson, which debuted in 2023.

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Adult Congenital Heart Association Advocates on Capitol Hill

Thursday, Mar 07, 2024

ACHA leadership requests support for the Congenital Heart Futures Reauthorization Act of 2024

The Adult Congenital Heart Association’s board of directors and staff closed out Heart Month by visiting Capitol Hill February 29 to ask lawmakers to sign on as co-sponsors to the Congenital Heart Futures Reauthorization Act of 2024. This critical legislation ensures continued funding of up to $10 million annually through federal fiscal year 2029 to advance congenital heart disease (CHD) research, surveillance, and awareness programs.

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ACHA’s Patient and Advisory Board Commemorate CHD Awareness Week Around the Country

Monday, Feb 12, 2024

During Heart Month and especially Congenital Heart Disease (CHD) Awareness Week, we want to thank all of our volunteers and supporters for so diligently spreading awareness about both ACHA and the importance of lifelong care for adults with CHD.

Specifically, our Patient and Family Advisory Board (PFAB) has joined together to write and submit proclamation requests that have resulted in CHD Awareness Week, February 7-14, being officially recognized by legislators in U.S. cities, states and counties.

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Senate Introduces the Congenital Heart Futures Reauthorization Act of 2024 to Reauthorize CHD Surveillance Research Funding and Address ACHD Workforce Shortages

Wednesday, Feb 07, 2024

The Adult Congenital Heart Association Thanks Bipartisan Legislators for Work to Reauthorize CHD Programs and Address Workforce Needs

Earlier today, U.S. Senators Dick Durbin (D-IL) and Todd Young (R-IN) introduced the Congenital Heart Futures Reauthorization Act of 2024, joining their colleagues, Congressman Gus Bilirakis (R-FL) and Adam Schiff (D-CA) in the U.S. House of Representatives, who last week introduced the bipartisan bill in that chamber.

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Bipartisan Bill Introduced to Reauthorize Funding for Congenital Heart Disease Research: The Congenital Heart Futures Reauthorization Act of 2024

Thursday, Feb 01, 2024

The Adult Congenital Heart Association Applauds Legislative Effort to Extend Critical Support for CHD Research and Surveillance Programs

Today, U.S. Representatives Gus Bilirakis (R-FL) and Adam Schiff (D-CA), along with original cosponsors Representatives Tony Cardenas (D-CA), Buddy Carter (R-GA), María Elvira Salazar (R-FL), and Darren Soto (D-FL), introduced the Congenital Heart Futures Reauthorization Act of 2024 – a bipartisan bill that will authorize continued funding for congenital heart disease research and surveillance programs at the Centers for Disease Control and Prevention (CDC).

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Volunteer Spotlight: Dawn Carreira

Monday, Jan 22, 2024

From a life-changing diagnosis to a heart transplant at 64, Dawn Carreira's resilience shines through. Read about her CHD story and consider joining ACHA at a Walk for 1 in 100 around the country. 

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Enter the Walk for 1 in 100 Nationwide T-Shirt Design Contest

Tuesday, Jan 09, 2024

Review the official rules for our T-Shirt Design Contest!

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Reflecting on 2023

Friday, Dec 08, 2023

As the year winds down and we all celebrate the holiday season, ACHA has much to reflect upon and celebrate this year!

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A Letter From Our President and CEO: ACHA's First Newsletter

Friday, Oct 20, 2023

Reposted from ACHA's October 2023 Heart Happenings e-newsletter: 

As many of you know, we have been celebrating the Adult Congenital Heart Association‘s (ACHA) 25th Anniversary throughout 2023. Given that the actual date of ACHA’s incorporation is this month – October 27th to be exact – I thought we should use this edition of Heart Happenings to reminisce a bit about our first printed newsletter.

Called The Laurel Wreath, ACHA’s original newsletter was published in Fall 1998. Click here to take a look at this issue. It was a four-page newsletter that started out by explaining why it carried the banner of The Laurel Wreath (hint: the Laurel Wreath is an emblem of honor and achievement).

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