News

Margaret High-Thomas Named Community Development Coordinator in Columbus Ohio

Thursday, May 31, 2018

The only organization in the country that specifically serves adults with congenital heart disease (CHD), the Adult Congenital Heart Association (ACHA) has named Margaret High-Thomas Community Development Coordinator for Columbus—one of five regions ACHA has targeted for expansion this year. In this role, High-Thomas will plan, implement, and lead local program and development initiatives, including patient and family education and support groups, CHD conferences, fundraising and volunteer activities, and overall community outreach.

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New Los Angeles Community Development Coordinator: Emily Earhart

Thursday, May 31, 2018

The only organization in the country that specifically serves adults with congenital heart disease (CHD), the Adult Congenital Heart Association (ACHA) has named Emily Earhart Community Development Coordinator for Los Angeles—one of five regions ACHA has targeted for expansion this year. In this role, Los Angeles native Earhart will plan, implement, and lead local program and development initiatives, including patient and family education and support groups, CHD conferences, fundraising and volunteer activities, and overall community outreach.

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Introducing Greater Philadelphia’s New Community Development Coordinator Trawana Porter

Wednesday, Apr 25, 2018

The Adult Congenital Heart Association (ACHA), the only organization in the country that specifically serves adults with congenital heart disease (CHD), has named Trawana Porter Community Development Coordinator for Greater Philadelphia. In this role, Porter will plan, implement, and lead local program and development initiatives, including patient and family education and support groups, CHD conferences, fundraising and volunteer activities, and overall community outreach.

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April 2018 President/CEO Letter: National Conference and Events Update

Wednesday, Apr 18, 2018

In the past few weeks, I have heard from several constituents inquiring about the timing and location for the next ACHA National Conference, so I want to provide an update to our full membership.

The ACHA National Conference—our premier event that gathers both patient/family members and medical providers—has recently taken place every three years (2011 in L.A., 2014 in Chicago, 2017 in Orlando). Following that cycle, our next Conference year would be 2020, and that is the target we are working toward. However, we want to make sure there are enhanced opportunities for gatherings in the “off years” as well.

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Urge Your Members of Congress to Sign the Durbin-Grassley FY 2019 CHD Appropriations Letter

Wednesday, Mar 28, 2018

You don’t have to be in Washington, DC to advocate for CHD support. Contact your Senators today!

Senate Sign-On Deadline: Tuesday, April 3, at Noon

As Congress considers its Fiscal Year 2019 federal spending bills, ACHA asks that you urge your two Senators to sign the Durbin-Grassley Fiscal 2019 Appropriations Letter in support of funding for the CDC program to address the lifelong needs Americans with congenital heart defects (CHDs). Members of Congress send letters outlining their funding priorities for the next year, and we want as many people to sign onto the letter as possible!

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Nicole Fernandez: New Community Development Coordinator of Greater Boston

Thursday, Mar 22, 2018

The Adult Congenital Heart Association (ACHA) has named Nicole Fernandez Community Development Coordinator for Greater Boston, re-establishing a formal presence in the city where it was founded 20 years ago by a young woman who sought support and resources related to congenital heart disease (CHD). In this role, Fernandez will plan, implement, and lead local program and development initiatives, including patient and family education and support groups, CHD conferences, fundraising and volunteer activities, and overall community outreach.

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March 2018 President/CEO Letter

Wednesday, Mar 14, 2018

As we anticipate the start of spring next week, I want to take a few minutes to look back and congratulate all ACHA members, advocates, donors, and staff on an amazing Heart Month 2018! You did an outstanding job helping to spread CHD awareness and the importance of lifelong care throughout February by sharing our social postings at a record rate. Combined across all platforms, our postings reached an astounding 8 million people during Heart Month, and our Facebook, Twitter and Instagram followers increased by more than 1,000 people. Way to go!

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Join our D.C. Advocates and Participate from Home on Tuesday, February 27!

Tuesday, Feb 27, 2018

As you read this, nearly 200 fellow advocates are on Capitol Hill meeting with their Members of Congress as part of the 2018 Congenital Heart Legislative Conference. They are asking their lawmakers to support research, data collection and awareness activities related to congenital heart disease (CHD). This includes recruitment of co-sponsors in the Senate for the reintroduced Congenital Heart Futures Reauthorization Act of 2017.

We need you to participate from home!

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ACHA Applauds the House of Representatives for Passing the Congenital Heart Futures Reauthorization Act

Tuesday, Feb 27, 2018

We applaud the House of Representatives for passage of the Congenital Heart Futures Reauthorization Act (CHFRA), H.R. 1222

Congenital heart defects are the most prevalent category of birth defects, affecting nearly 1 in 100 babies; more than five percent will not live to see their first birthday, and those who receive successful intervention are not cured. Children and adults with congenital heart disease (CHD) require ongoing, costly, specialized cardiac care, and face a lifelong risk of permanent disability and premature death. 

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February 2018 President/CEO Letter

Wednesday, Feb 14, 2018

Greetings!

February is Heart Month and we’re asking all of you to help us spread awareness of CHD and lifelong care by sharing the items we post on our social media networks. Many of you do this already throughout the year, but we are asking ALL our members to take note of our posts this month and pass them on. You may have noticed that our theme for this year’s Heart Month is Empowerment: Taking Control of your CHD, which we hope resonates with all of you.

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