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Applications Now Available for ACHA's 2025 Research Grants

Tuesday, May 06, 2025

Since launching our emerging research program in 2019, ACHA has invested nearly $600,000 to fund 20 investigations at adult congenital heart disease (ACHD) centers across the country. We are excited to build upon our commitment to unlocking new discoveries for our patient population, and are thrilled to announce today that grant applications for ACHA’s 2025 Research Awards are now available!

ACHA’s 2025 research program will continue to accept applications for early investigation and pilot studies for all ACHD disciplines. We are proud to once again offer the Meil Family Foundation Research Award for Neurocognitive Studies, which debuted in 2022.

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ACHA's Patient & Family Advisory Board Recruitment Opens

Monday, Apr 28, 2025

Thank you for your interest in applying to the Patient & Family Advisory Board (PFAB) of the Adult Congenital Heart Association (ACHA)! The goal of our PFAB is to empower patients and family members across the country to engage with ACHA and the public for improved understanding, collaboration, and outcomes for adults with congenital heart disease (CHD).

Members of our PFAB advise us on the needs of the CHD community, support delivery of programs on the ground, and provide a platform for diverse voices and experiences. As a member of the PFAB, you will gain skills to help you serve as an ACHA advocate, connecting adults with CHD to one another and to critical resources. The PFAB is a standing advisory body to the ACHA Board of Directors (BOD).

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Congenital Heart Initiative Research Opportunities

Wednesday, Mar 19, 2025

ACHA has partnered with the Congenital Heart Initiative (CHI), the first patient-powered registry for adults with congenital heart disease (ACHD), since its inception. There are currently two opportunities for you to share feedback and continue to help ACHA and the CHI start to better understand some of the barriers the patients and families face when it comes to participation in research.

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ACHA Commemorates CHD Awareness Week Around the Country

Monday, Feb 10, 2025

During Heart Month, and especially during Congenital Heart Disease (CHD) Awareness Week from February 7-14, we extend our heartfelt gratitude to our incredible volunteers and supporters. Your dedication to raising awareness about ACHA and the critical need for lifelong care for adults with CHD makes a meaningful impact.

Specifically, our Patient and Family Advisory Board (PFAB) and members of the ACHA team have joined together to write and submit proclamation requests that have resulted in CHD Awareness Week being officially recognized by legislators in U.S. cities, states and counties.

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ACHA Seeking Opinions on Supporting Adults with CHD

Friday, Jan 10, 2025

As ACHA begins to develop our next strategic plan, we need to know what our supporters think about our mission-focused activities so that we can provide the services that best support ACHA members and the overall adult CHD community.

In this year's Strategic Planning Survey, we are asking about why you engage with ACHA, which programs you think are most important, and more. New this year, there are surveys for both of our core audiences: patients and family members and medical providers.

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2025 Walk for 1 in 100 Nationwide T-Shirt Design Contest Opens

Friday, Nov 08, 2024

Review the official rules for our 2025 T-Shirt Design Contest!

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Board of Directors 2024 Recruitment Period Opens

Wednesday, Sep 18, 2024

The Adult Congenital Heart Association is currently recruiting highly-qualified candidates to serve on the ACHA Board of Directors (BOD). To learn more about the roles, responsibilities, and qualifications for our BOD, please click here.

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ACHA Welcomes Erin Walsh-Beguin to the Board of Directors

Wednesday, Sep 04, 2024

The Adult Congenital Heart Association (ACHA) – whose mission is to empower the congenital heart disease (CHD) community by advancing access to resources and specialized care that improve patient-centered outcomes – has appointed Erin Walsh-Beguin to its Board of Directors.

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2024 ACHA Volunteer Award Winners

Tuesday, Jun 04, 2024

During National Volunteer Month in April, we asked members of the ACHA community to submit nominations to recognize and celebrate those who have demonstrated exceptional enthusiasm and commitment to our mission. Once all nominees were submitted, the ACHA Emeritus Board reviewed the nominations and selected the winners.

We are thrilled to share our 2024 ACHA Volunteer Award winners today! This year’s recipients are Ashlyn Arthur and Drezden Plotkin, both of whom have made a strong impact on the ACHA and CHD communities over the last year. In fact, they both had multiple nominations. You can learn more about Ashlyn and Drezden below.

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ACHA's Patient & Family Advisory Board Recruitment Opens

Thursday, May 16, 2024

Thank you for your interest in joining the Adult Congenital Heart Association (ACHA) Patient & Family Advisory Board (PFAB).

ACHA is committed to creating a culture where patients and families across the country are empowered to communicate with Board and staff leadership in a collaborative effort to promote understanding and outcomes. The PFAB ensures the existence of an effective organizational mechanism for receiving and responding to diverse consumer perspectives on an ongoing basis. Members of the PFAB provide support and advice on current and proposed ACHA initiatives and help to ensure the effective delivery of those initiatives in their local communities. The PFAB functions as a standing advisory body to the ACHA Board of Directors (BOD).

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Become a monthly donor of ACHA!

Choose your welcome gift when you join ACHA’s monthly giving program. Help us create a healthier future for those living with CHD, one month at a time.