For the first time ever, the Adult Congenital Heart Association was pleased to have the opportunity to assemble members of the Board of Directors (BOD), Emeritus Board, Medical Advisory Board (MAB), Patient and Family Advisory Board (PFAB), and staff. The group met October 28-29 in Bloomington, MN, for a Leadership Retreat to review ACHA’s accomplishments over the last few years, and plan for the next three years through Vision 2025.
The Adult Congenital Heart Association (ACHA) is proud to announce its third round of research grants to fund four new projects across the United States. The total commitment for ACHA’s research program now totals $400,000 since 2019, which has funded 14 scientific research projects.
It's now August 2022 and students are beginning to start or return to college. Although COVID-19 hasn’t gone away, some rules and regulations have changed since we last shared tips for returning to college. Rules will be different at every institution of higher learning. Likely, current COVID-19 rules will now be based on COVID-19 Community Levels (low, medium, or high). This tool is based on the latest data from the Centers for Disease Control and Prevention (CDC). It is in place to assist communities in deciding what prevention steps to take.
On Wednesday, May 4, ACHA and The Mended Hearts, Inc. teamed up to host a Virtual Advocacy Day. Passionate volunteers including patients, family members, and medical providers representing both organizations met with legislators from states across the country. In total, the event had over 260 registrants. Upon completion, 185 meetings took place, which included meetings with legislative staff members and 10 Members of Congress from 32 states.
Thank you for your interest in joining the Adult Congenital Heart Association (ACHA) Patient & Family Advisory Board (PFAB).
ACHA is committed to creating a culture where patients and families across the country are empowered to communicate with Board and staff leadership in a collaborative effort to promote understanding and outcomes. The PFAB ensures the existence of an effective organizational mechanism for receiving and responding to diverse consumer perspectives on an ongoing basis. Members of the PFAB provide advice on current and proposed ACHA initiatives and help to ensure the effective delivery of those initiatives in their local communities. The PFAB functions as a standing advisory body to the ACHA Board of Directors (BOD).
In honor of Volunteer Month, we're sharing Jennifer Tripucka's recent Heart Happenings Spotlight. She's a member of our community who contributes in numerous ways, including blogging and fundraising on her social media accounts. Learn more about Jennifer and her support of ACHA in this Q&A.