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Patient & Family Action Committee

The Adult Congenital Heart Association (ACHA) Patient & Family Action Committee (PFAC) plays a key role in advancing ACHA’s vision of a future where every adult with congenital heart disease (CHD) lives their fullest life by receiving quality health care and community support.

Our Patient & Family Action Committee (PFAC) is made up of adults with CHD and immediate family members (spouses, partners, parents, siblings, and children) who help ACHA stay connected to the real, lived experiences of the CHD community. Through PFAC, we build a consistent, effective way to hear diverse perspectives and respond to them.

PFAC members help bring ACHA's vision to life, a future where every adult with CHD lives their fullest life by receiving quality health care and community support, through action in three key areas:

  1. Community outreach and education
  2. Legislative advocacy
  3. Fundraising

Because PFAC reflects the diversity of adults and families living with CHD across the country, their voices spark new ideas and shape our programs. They play a direct role in bringing initiatives to life in their communities and strengthen our impact. The PFAC serves as a standing advisory body to the ACHA Board of Directors.

ACHA PFAC members each represent one of nine distinct regions:

  • New England (Connecticut, Maine, Massachusetts, New Hampshire, Rhode Island, and Vermont)
  • Mid-Atlantic (New Jersey, New York, and Pennsylvania)
  • East North Central (Illinois, Indiana, Michigan, Ohio, and Wisconsin)
  • West North Central (Iowa, Kansas, Minnesota, Missouri, Nebraska, North Dakota, and South Dakota)
  • South Atlantic (Delaware, Florida, Georgia, Maryland, North Carolina, South Carolina, Virginia, Washington D.C., and West Virginia)
  • East South Central (Alabama, Kentucky, Mississippi, and Tennessee)
  • West South Central (Arkansas, Louisiana, Oklahoma, and Texas)
  • Mountain (Arizona, Colorado, Idaho, Montana, Nevada, New Mexico, Utah, and Wyoming)
  • Pacific (Alaska, California, Hawaii, Oregon, and Washington)
Meredith Rahn-Oakes PFAC Co-Chair West North Central
Melissa Gardner-Lomax PFAC Co-Chair West South Central
Carly Anderson East North Central
Jackson Beckerley East North Central
Liz Blumenfeld South Atlantic
Haley Bradshaw East South Central
Andrea Rose Burdette East North Central
Anna C. South Atlantic
Leslie Cannon Pacific
Stephanie Brightharp Cartwright South Atlantic
Josie Chan Pacific
Jacob Chico Middle Atlantic
Deb Compton Mountain
Anthony T. Dean South Atlantic
Anthony DeCamillis New England
Meredith DiPiazza West North Central
Brook Dorris East South Central
Jaclyn Drager East North Central
Kristine Faulkner South Atlantic
Deborah Flaherty-Kizer Middle Atlantic
Amber D. Franklin South Atlantic
David Gilligan West South Central
Mindy Gorton West North Central
Jan Homan Pacific
Jeanette Jones South Atlantic
John Latsha Middle Atlantic
Maria Laucella South Atlantic
Dorothy Li Pacific
Caren McDonald Pacific
Mclain Miller Middle Atlantic
Andy Ohlson East North Central
Joe O'Reilly East North Central
Jean Parrish West South Central
Jordan Pecora Middle Atlantic
Stephanie Phan West South Central
Drezden Plotkin East South Central
Brian Reil Middle Atlantic
Samuel Rubinsztain South Atlantic
Conor Russo South Atlantic
John Shook West North Central
Jesse Smith Pacific
Leah Soffer South Atlantic
Hollie Stephenson East North Central
Katherine Thompson West South Central
Jason Trojanowski Middle Atlantic
Jordan Troxel South Atlantic
Jennifer Walker West South Central
In Memoriam: Karen Jo Duvall 1976-2022
In Memoriam: James McNulty 1968-2022
In Memoriam: Bryan Johnston Rothlein 1977-2021
In Memoriam: Alan Sabal 1952-2024

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Join us in our mission to empower the congenital heart disease community by advancing access to resources and specialized care that improve patient-centered outcomes.

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