In conjunction with adult congenital heart disease (ACHD) medical programs and providers, ACHA organizes and facilitates patient education regional conferences nationwide. The objectives are to help adults with congenital heart disease (CHD) and their family members better understand their disease, take an active role in their cardiac care, and connect with their peers and with ACHD medical programs around the county. Through these regional conferences, adults with CHD and their family members receive the educational tools necessary for empowerment, allowing them to make informed decisions, seek lifelong care from CHD experts and learn how to advocate for their CHD needs, health and wellness. Additionally, they have the chance to meet and network with others with CHD and to speak one-on-one with CHD experts and ask questions. This is a unique opportunity for CHD patients and their families, as well as CHD medical professionals.
These events are made possible in part by sponsorship support from Actelion Pharmaceuticals US Inc. and an unrestricted educational grant from the Edwards Lifesciences Foundation.