Virtual Advocacy Briefing: Understanding & Addressing the Needs of the ACHD Population

Nov 09 2021
Tuesday, November 09, 2021
2:30 p.m. EST
Location Virtual
More info & registration

Join us for a virtual briefing on the 10+ years of CHD progress underway at the CDC!

When: November 9 at 2:30 p.m. EST
Where: Register to join us LIVE on Zoom

Congress passed the Congenital Heart Futures Act in 2010 and reauthorized the legislation in 2018. These efforts have expanded congenital heart disease (CHD) research, data collection, and CHD awareness efforts at the CDC. In this virtual briefing, we’ll hear from CDC health scientists and physician researchers on past research, current CHD initiatives, and what’s next for the growing population of adults with congenital heart disease!

Presenters include:

  • Karen Remley, MD, MBA, MPH, FAAP, Director of the National Center on Birth Defects and Developmental Disabilities at the CDC
  • Jennita Reefhuis, MD, Chief of the Birth Defects Monitoring and Research Branch at the CDC
  • Susan Timmins, Board Member, Adult Congenital Heart Association, Chair, CHD Care for Life Working Group, Congenital Heart Public Heart Consortium, Parent of Adult CHD Patient
  • Michelle Gurvitz, MD, MS, FACC, Boston Adult Congenital Heart Program, Boston Children’s Hospital, Associate Professor of Pediatrics, Harvard Medical School
  • Jamil Aboulhosn, MD, FACC, FSCAI, Director of the Ahmanson/UCLA Adult Congenital Heart Program, Streisand/AHA Professor of Medicine and Pediatrics at the UCLA School of Medicine
  • Moderated by: Mark Roeder, President and CEO, Adult Congenital Heart Association

We hope to virtually “see” you there! If you have any questions, please contact Danielle Hile at advocacy@achaheart.org.