By Kim Russell
11 Feb

Parents Have a CHD Story, Too

Wednesday, February 11, 2015

When I expressed interest in writing this blog, I had no idea how hard it would be to express to parents how much CHDers genuinely appreciate them. What better way than to say, “Thank you! Thank you from the bottom of our hearts!”

Magazine articles, websites, Facebook pages and organizations report that 1 in 100 babies is born with a CHD. Usually facts about these children and their struggles of dealing with CHD are listed: illness, surgeries, recoveries, and challenges that meet each CHDer the minute he/she is born. Each child has his/her own story and all of them are miraculous.

Parents, this means that each and every one of you, too, have a CHD story. Some of you found out in the early years when very little was known about CHD. Some of you found out about your child’s defect before the child was born. I can only imagine from talking to some of you what a heartbreak it was to find out your child has CHD. Most of you probably had never heard of it before and instantly thought “short life” for your baby. Some found out immediately after birth and your babies were whisked off to a children’s hospital for intense care and/or surgery.

Thank you! Thank you to all of you for everything you have been through for on our behalf. We appreciate the agonizing times you spent waiting to find out our exact diagnosis, the sleepless nights you spent worrying about upcoming surgeries, the countless hours you entertained us during long hospital stays. Your love and dedication knows no bounds and your endless support through the years has been amazing. You are the reason that we value our CHD lives! To you we express our deep gratitude and thanks. We love you dearly.

I could not end this blog without giving my parents a special tribute. Mom and Dad, thank you for the 54 years of love and support you have brought to my life. God has brought me many special blessings through you. Much love and many thanks to both of you!


Add yours below.


The opinions expressed by ACHA bloggers and those providing comments on the ACHA Blog are theirs alone, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied by the ACHA bloggers.

The contents of this blog are presented for informational purposes only, and should not be substituted for professional advice. Always consult your physicians with your questions and concerns.