I’m excited to share that the ACHA/ISACHD Adult Congenital Heart Disease (ACHD) Clinic Directory has been updated with full 2014 data! We’ve also added several new ACHD programs to our listings. All participants completed the 2014 ACHA/ISACHD ACHD clinic survey, providing us with the most recently available full years’ worth of data.
The directory is easily searchable and provides comparative information on more than 125 self-reported ACHD clinics in the United States and Canada. We include clinic contact information, such as website if available, medical director, and other healthcare team members. Additional information includes the number of ACHD patient visit yearly, the number of surgeries performed and a list of clinical services offered—and so much more!
Although ACHA does not endorse any specific ACHD doctors or clinics, we do endorse the 2008 ACC/AHA Guidelines for the Management of Adults with Congenital Heart Disease (click here for ACHA's handout on these guidelines), as well as ACC’s 32nd Bethesda Conference Report. Anyone who was told that they had a congenital heart defect as a child should have their heart checked at least once at an ACHD center.
While each clinic listed in our directory completes a survey to be included, the data they submit is self-reported and not verified. Their participation does not mean that the individual clinic meets standards for specialized ACHD care. To determine which clinic is best for you, you should ask questions and learn all you can about the ACHD clinics listed in the directory. In addition, click here for ACHA’ instructions on how to use the Clinic Directory.
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The opinions expressed by ACHA bloggers and those providing comments on the ACHA Blog are theirs alone, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied by the ACHA bloggers.
The contents of this blog are presented for informational purposes only, and should not be substituted for professional advice. Always consult your physicians with your questions and concerns.