Join our D.C. Advocates and Participate from Home on Tuesday, March 5!

Posted Monday, Mar 04, 2019

On Tuesday, March 5, nearly 200 fellow advocates will be on Capitol Hill meeting with their Members of Congress as part of the 2018 Congenital Heart Legislative Conference.

They are asking their lawmakers to support research, data collection and awareness activities related to congenital heart disease (CHD), and to support the more than 2.4 million Americans living with the lifelong consequences of congenital heart disease.

We need you to participate from home!

Help us bring the voice of CHD to Washington by sending an email to your Members of Congress.

It’s as easy as 1, 2, 3!

  1. Find your legislator’s contact information.
    – If this is your first time reaching out, use the contact form on the legislator’s website to send your email. Visit or
    – If you have identified the Health Legislative Aide, or had a previous contact with your legislator or a member of his or her staff, please feel free to use the direct email address you were given.
  2. Copy and paste the email below – adding your own personal story.
  3. Send it!

You did it! If you successfully connect with your legislator or their office, let us know you made contact by completing an Advocacy Feedback Form for each contact. Click here for the form. 

Thank you in advance for your participation!




Sample Letter:

Subject: Support Congenital Heart Disease Research

Dear Senator/Congressman [Fill in name here],

I’m writing to urge you to support federal research, surveillance and awareness for congenital heart disease (CHD).

Every 15 minutes, a baby is born with congenital heart disease, the most common birth defect and leading cause of birth defect related infant death. Even for those who receive successful intervention, it is not a cure. Children and adults with congenital heart disease require ongoing, costly, specialized cardiac care and face a lifelong risk of permanent disability and premature death. As a result, healthcare utilization among the congenital heart disease population is significantly higher than the general population.

Continued federal investment is necessary to provide rigorous epidemiological and longitudinal public health surveillance and public health research on infants, children, adolescents and adults to better understand congenital heart disease at every age, improve outcomes and reduce costs.

We urge Congress to:

  1. Support our congenital heart disease appropriations requests for CDC and NIH. We urge Congress to:
    • Provide, as authorized by the Congenital Heart Futures Reauthorization Act, full funding of $10 million in FY2020 to the Congenital Heart Failure program at the Center for Disease Control and Prevention’s National Center on Birth Defects and Developmental Disabilities to support surveillance and awareness activities to address the public health impact of congenital heart disease across the lifespan; and to
    • Provide $41.6 billion for FY2020 to the National Institutes of Health to support efforts to develop innovative and cost-effective interventions for those living with congenital heart disease.
  2. Support federal policy provisions that promote access to specialized care across the lifespan.
  3. Join the House Congenital Heart Congressional Caucus by contacting Shayne Woods with Congressman Bilirakis (

If you would like any additional information please contact the Adult Congenital Heart Association at

Thank you-
[Your Name – your city/state]