Join our D.C. Advocates and Participate from Home on Tuesday, February 27!

Posted Tuesday, Feb 27, 2018

As you read this, nearly 200 fellow advocates are on Capitol Hill meeting with their Members of Congress as part of the 2018 Congenital Heart Legislative Conference. Their energy is high, as last night the Congenital Heart Future Reauthorization Act (H.R.1222) passed in the House of Representatives! 

They are asking their lawmakers to support research, data collection and awareness activities related to congenital heart disease (CHD). This includes recruitment of co-sponsors in the Senate for the reintroduced Congenital Heart Futures Reauthorization Act of 2017.

We need you to participate from home!

Help us bring the voice of CHD to Washington by sending an email to your Members of Congress.

It’s as easy as 1, 2, 3!

  1. Find your legislator’s contact information.
    – If this is your first time reaching out, use the contact form on the legislator’s website to send your email. Visit www.senate.gov or www.house.gov.
    – If you have identified the Health Legislate Aide, or had a previous contact with your legislator or a member of his or her staff, please feel free to use the direct email address you were given.
  2. Copy and paste the email below – adding your own personal story. (And if you contact your Representative, please say thank you for passing last night's bill!)
  3. Send it!

You did it! If you successfully connect with your legislator or their office, let us know you made contact by completing an Advocacy Feedback Form for each contact. Click here for the form. 

Thank you in advance for your participation!

 

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Sample Letter:

Subject: Support Congenital Heart Disease Research

Dear Senator/Congressman [Fill in name here],

I’m writing to urge you to support federal research, surveillance and awareness for congenital heart disease (CHD).

Every 15 minutes, a baby is born with congenital heart disease, the most common birth defect and leading cause of birth defect related infant death. Even for those who receive successful intervention, it is not a cure. Children and adults with congenital heart disease require ongoing, costly, specialized cardiac care and face a lifelong risk of permanent disability and premature death. As a result, healthcare utilization among the congenital heart disease population is significantly higher than the general population.

Continued federal investment is necessary to provide rigorous epidemiological and longitudinal public health surveillance and public health research on infants, children, adolescents and adults to better understand congenital heart disease at every age, improve outcomes and reduce costs.

We urge Congress to:

  • Co-Sponsor the Congenital Heart Futures Reauthorization Act in the Senate (S.477). To cosponsor this important legislation please contact Max Kanner (max_kanner@durbin.senate.gov).
  • Join the Congenital Heart Caucus in the House by contacting Shayne Woods with Congressman Bilirakis (Shayne.woods@mail.house.gov).
  • Provide $7.0 million in FY2018 and FY2019 to the Center for Disease Control and Prevention’s National Center on Birth Defects and Disabilities to support surveillance and public health research to build upon current activities to better understand the public health impact of congenital heart disease across the lifespan. Provide $36.2 billion for FY2018 and $38.4 billion for FY2019 to the National Institutes of Health to support efforts to develop innovative and cost-effective interventions for those living with congenital heart disease.

If you would like any additional information please contact the Adult Congenital Heart Association at advocacy@achaheart.org.

Thank you-
[Your Name – your city/state]

 

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