Contact Your Senators Today: Urge Them to Preserve the Affordable Care Act’s Patient Protections

Posted Thursday, Jun 15, 2017

Senate Republicans are crafting a legislative alternative to the House-passed American Health Care Act (AHCA) to repeal and the Affordable Care Act (ACA). They have been working on their legislation in secret and do not plan to release their bill to the public until days before a planned vote on June 28. While details about what is included in the Senate bill are scarce, we anticipate that, like the AHCA, it will impact patient protections and potentially lead to significant losses in coverage. Contact your Senators today and urge them to oppose any legislation that undermines the ACA’s patient protections, many of which have benefited adults with congenital heart disease (CHD).

To find out who your Senators are, please follow the following steps:

  • First, visit
  • Go to the “Find Your Senators” tab, which is located on the upper left side of the home page.
  • You can then choose your state, which will list your two Senators and take you to their websites, which contains their phone number and a constituent contact form.

When you call or email your Senators, please include the following:

  • I am a constituent and have (or my loved one has) congenital heart disease (CHD).
  • The ACA’s patient protections are life-saving for those of us living with CHD and other individuals with pre-existing conditions. We must have access to specialists and therapies to lead healthy, productive lives.
  • Share how these protections have impacted your or your loved one’s life.
  • We are extremely concerned about the House bill’s provision to allow states to waive the ACA’s essential health benefits (EHB) requirement since this would lead to less comprehensive coverage and lifetime and annual limits could return. I urge you not to support a Senate version with this provision.
  • I also am very concerned about the policy that would let states waive rules to allow plans to set premiums based on health status. This would make coverage unaffordable for adults with CHDs.
  • The AHCA’s elimination of the Medicaid coverage expansion and changes to the program’s funding structure will lead to adults with CHDs losing coverage. We ask that any changes to the program more closely reflect the growth in Medicaid spending than what is included in the AHCA.
  • I urge you to ensure that any health reform bill passed by the Senate provides access to affordable health insurance coverage for all Americans, including adults with CHDs and those with other pre-existing conditions.