"Adult Congenital Cardiac Care” published in Mar-Apr issue of World Journal for Pediatric and Congenital Heart Surgery
The Adult Congenital Heart Association (ACHA) is dedicated to supporting patients with congenital heart disease. To guide patients to qualified providers and programs, it maintains a publicly accessible directory of dedicated adult congenital cardiac programs. We analyzed the directory in 2006 and 2015, aiming to evaluate the growth of the directory as a whole and to evaluate the growth of individual programs within the directory. We also hope this raises awareness of the growing opportunities that exist in adult congenital cardiology and cardiac surgery.
ACHA has always worked to improve the quality and access to care available for adult congenital heart disease patients, and to develop the highest standards to determine which doctors and facilities offer quality care. One of the ways that this historically has been done is through the publication of the ACHA Clinic Directory , a joint project with the International Society of Adult Congenital Heart Disease (ISACHD). Dr. Brian Kogon, lead author on this study and ACHA Medical Advisory member, analyzed directory data in 2006 and 2015, with the aim of evaluating the growth of the directory as a whole and to evaluate the growth of individual programs within the directory. Paula Miller, ACHA Member Outreach Manager, who maintains the directory on the ACHA website, contributed to this article in the areas of manuscript preparation, and review.