Research Fuels Progress
ACHA wants our community to know how important research is in improving the quality of care and the quality of life for people with adult congenital heart disease. We work to inform patients and caregivers about open studies, to support research and to develop partnerships that advance the research agenda for ACHD.
You can help advance research in adult congenital heart disease by:
- Increasing awareness of ACHD
- Advocating for research funding for ACHD
- Educating yourself about the ACHD research agenda
- Participating in a clinical trial of study
There are clinical trials for all types of ACHD as well as studies that focus on the emotional and social issues that people with CHD face. Some require only that you fill out a survey form or participate in an interview; others involve actual treatment in a specific clinic or center.
ACHA lists several open studies on these pages. These are projects that we have co-sponsored or supported or were conducted by our partners. We encourage you to review these studies and considering participating in a trial if it is appropriate.
The best way to find a clinical trial is to talk to your ACHD specialist about finding a study that is appropriate for you. You can also find clinical trials for adult congenital heart disease by going to www.clinicaltrials.gov. This is a very comprehensive website but some may find it difficult to use. Before searching this site, make sure you know your diagnosis and are aware of any issues or complications that you have. Every trial has very specific eligibility requirements. Talk to your doctor about your option to participate in a clinical trial. Print out anything you find on line for that discussion.
www.CenterWatch.com, is a resource that helps both professionals and patients find industry-sponsored clinical trials.
By participating in a clinical trial, you can potentially help yourself and make a real contribution to the treatment and care of adults with congenital heart disease, today and tomorrow.
Studies Enrolling Subjects
Discover where and how you can participate in Congenital Heart Disease studies, including the Quality of Life in Adults with Atrial Septal Defects study.
Learn about or enroll in ACHA sponsored research projects
These efforts address the great need for better information on the numbers and kinds of people affected by ACHD, and on the long-term outcomes of living with these heart conditions.