This initiative will give researchers, health care providers and patients a deeper understanding of adult congenital heart disease, inform future research projects, and spur innovation. Your voice will help us improve healthcare outcomes and quality of life for people with CHD!
If you are an adult living with CHD, please consider enrolling in the registry!
Check out this video for more information:
CHI Second Annual Report
The Congenital Heart Initiative (CHI)’s second annual report explores new patient-reported outcomes that shed light on what it means to live with CHD. It also shares important perspectives from the CHI community of patients, providers, and researchers collaborating to improve the future of care. Explore the report by clicking here!
CHI Videos: Voices of the Community
Hear from CHD patients, providers, and our Presidnent/CEO on the importance of the CHI registry:
