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Join the Congenital Heart Initiative

The Congenital Heart Initiative (CHI) is the first patient-powered registry to improve the future of care for those living with congenital heart disease (CHD).

This initiative will give researchers, health care providers and patients a deeper understanding of adult congenital heart disease, inform future research projects, and spur innovation. Your voice will help us improve healthcare outcomes and quality of life for people with CHD!

If you are an adult living with CHD, please consider enrolling in the registry!

Click here to enroll

Check out this video for more information:

CHI Second Annual Report

The Congenital Heart Initiative (CHI)’s second annual report explores new patient-reported outcomes that shed light on what it means to live with CHD. It also shares important perspectives from the CHI community of patients, providers, and researchers collaborating to improve the future of care. Explore the report by clicking here!

CHI Videos: Voices of the Community

Hear from CHD patients, providers, and our Presidnent/CEO on the importance of the CHI registry:



Connect with ACHA

Join us in our mission to empower the congenital heart disease community by advancing access to resources and specialized care that improve patient-centered outcomes.

Enter your name, email and state to get started. If you choose to, you can provide more information to us in the next step for more tailored communications! We'll never, for any reason, share your personal information. Already get ACHA emails? We’ve got you! You do NOT need to fill out this form.

*By sharing your information, you consent to receiving emails from ACHA.

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