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Join the Congenital Heart Initiative

The Congenital Heart Initiative (CHI) is the first patient-powered registry to improve the future of care for those living with congenital heart disease (CHD).

Registration and enrollment is currently paused, but the Congenital Heart Initiative (CHI) will be back soon. Thank you for your continued participation!

This initiative will give researchers, health care providers and patients a deeper understanding of adult congenital heart disease, inform future research projects, and spur innovation. Your voice will help us improve healthcare outcomes and quality of life for people with CHD!

 

Check out this video for more information:

 

The CHI’s Third Annual Report is Here!

The CHI’s third annual report sheds further light on what it means to live with CHD. The report explores the composition of the CHI—such as CHD diagnoses and gender, racial, and ethnic identities—while covering areas like employment and insurance. It also features CHI sub-studies across different topics including maternal health, specialized ACHD care, mental health, and more.

Click here to explore this year's annual report! (Last year’s second annual report can be found here.)

 

CHI Videos: Voices of the Community

Hear from CHD patients, providers, and our Presidnent/CEO on the importance of the CHI registry: