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Join the Congenital Heart Initiative

The Congenital Heart Initiative (CHI) is the first patient-powered registry to improve the future of care for those living with congenital heart disease (CHD).

Registration and enrollment is currently paused, but the CHI will be back soon. Thank you for your continued participation!

This initiative will give researchers, health care providers and patients a deeper understanding of adult congenital heart disease, inform future research projects, and spur innovation. Your voice will help us improve healthcare outcomes and quality of life for people with CHD!


Check out this video for more information:

CHI Second Annual Report

The Congenital Heart Initiative (CHI)’s second annual report explores new patient-reported outcomes that shed light on what it means to live with CHD. It also shares important perspectives from the CHI community of patients, providers, and researchers collaborating to improve the future of care. Explore the report by clicking here!

CHI Videos: Voices of the Community

Hear from CHD patients, providers, and our Presidnent/CEO on the importance of the CHI registry: