Patient-family presentations from the 8th National Conference in Orlando that were recorded are linked below. Each title will open a Vimeo video in a new webpage.
My Heart is Not Alone: Breakout 1 (Liver)
My Heart is Not Alone: Breakout 2 (Brain, Kidneys)
Taking Ownership of My Health: Breakout 1 (Nutrition, Exercise, Therapy)
Taking Ownership of My Health: Breakout 2 (Preventive Screening, Oral Health)
CHD and the Family: Breakout 1 (Dating, Family Planning, Contraception)
CHD and the Family, Breakout 2 (Loved Ones with CHD, Children & Partners)
It Is All About Me: Self-Advocacy
Advancements in the Field: New and Novel Therapies
Taking Control of the End of Your Life
Joint Closing Session:
Michael Pernick - Patient Voice: Looking to the Future
Roberta Williams Keynote - ACHD: How Bright is the Future?