Heart to Heart Ambassadors
The Heart to Heart Ambassador Program provides patients and family members with the unique opportunity to give back to the congenital heart disease (CHD) community through providing one-on-one peer support to members, serving as a visible presence within their communities on behalf of ACHA and assisting with ACHA projects and initiatives through involvement in one of our Affinity Groups.
Ambassadors are chosen after a comprehensive application and interview process including submitting an application with three references (for patient applicants – one of which must be from an ACHD trained medical professional), an interview with the program coordinator and consultant, and an in-person orientation training program.
The Heart to Heart Ambassador Program typically trains 10-15 new patient and family members once a year. The program strives to be as diverse as possible within the program structure. For 2018, preference will be given to individuals living in locations where geographically there is a need for an Ambassador or who have any of the following defects or combination of defects: Hypoplastic Left/Right Heart Syndrome, Shone’s Syndrome, Double Inlet Left Ventricle, Endocardial Cushion (Atrioventricular Canal) Defect, Bicuspid Aortic Valve with Aortic Aneurysm or Total Anomalous Pulmonary Venous Return.
To read more about the opportunities available for Heart to Heart Ambassadors, see the Individual and Community Support sections below.
The 2018 application process is now open. Click here to complete the online application. All materials, including the online application and three letters of reference, must be received by the August 1 deadline.
Heart to Heart Ambassador Program Team
Membership & Volunteer Coordinator, ACHA
Program & Mental Health Consultant
Tracy Livecchi, LCSW
The ACHA Heart to Heart Ambassador Program connects ACHA patient and family members with trained peers who provide support, guidance and resources.
ACHA’s individual support program offers members of ACHA and their family the opportunity to connect one-on-one with other CHD patients or family members in a positive, supportive way. While each person’s experience with congenital heart disease (CHD) is unique, many patients find it helpful to talk to someone who has been or is currently in a similar medical situation.
After completing a support request form, in order to personalize each match, all members will talk with the program coordinator via telephone to determine his/her specific needs. Following this discussion, the member will be matched with the Ambassador who most closely meets those needs. Members often request support when he or she will be undergoing a new procedure or surgery, are experiencing a change in health, were recently diagnosed with a CHD, or want to speak with someone regarding life changes, such as disability or family planning. Matches are three months in length and focus on member education, self-advocacy and empowerment.
If you think you might benefit by being matched with an Ambassador, please click here for a support request application.
Heart to Heart Ambassadors champion ACHA’s mission through raising public awareness, partnering with their local medical communities, creating education resources for their peers, and raising funds to extend the reach of ACHA.
Ambassadors are viewed as leaders within this community and as key volunteers within the organization. Opportunities exist to lead and be involved in development of various projects and initiatives in one of six Affinity Groups. Ambassadors also communicate with members and volunteers who are interested in being involved with projects and initiatives of one of our Affinity Groups. These groups include the following:
Outreach: Our Outreach Affinity Group is focused on providing networking opportunities for ACHD patients across the United States, partnering with local ACHD programs and assisting in various outreach efforts on behalf of ACHA. Initiatives include establishing Meet and Greet events in cities across the U.S., promoting ACHD Program Accreditation and patient involvement in hospital-associated Patient Family Advisory Councils, and increasing awareness of ACHA in regional and local areas. If you’d like more information about outreach initiatives, or would like to plan a Meet and Greet event in your area, please email email@example.com.
Advocacy: This group is focused on grassroots advocacy efforts through engaging our members, both patient/family and medical professionals, at the local level. Initiatives for this group include development of an in-district advocacy day during summer Congressional recess, creation of resources for members wanting to learn more about advocacy, and continuing advocacy efforts year round in addition to the annual Congenital Heart Legislative Conference. If you are interested in becoming involved with the Advocacy Affinity Group, please email firstname.lastname@example.org.
Education: Our Education Affinity Group is focused on developing educational resources for our members. This group assists the Senior Education Manager with additional projects and initiatives as needed, such as developing Q & A resources for specific defects or topics. For 2018, projects will be focused on mental health, transition to adult care, insurance terminology, teen/college age resources, and resources for caregivers. If you have an idea for an educational resource, or have a particular skill set or experience you think would be helpful in developing these resources, please email email@example.com.
Congenital Heart Walks: Our Congenital Heart Walks Affinity Group is comprised of Ambassadors who are passionate about the mission of these events. They serve as representatives of ACHA at their respective walks during the Mission Moment and by interacting with walk participants at the ACHA table. They also collaborate with our Walk Coordinators and CHW Board Committee to develop ways to increase awareness of and participation in the Walks program. If you have questions about the Congenital Heart Walk Program or are interested in volunteering, please email firstname.lastname@example.org.
Forum & Online Presence: Ambassadors involved with our Forum & Online Presence Affinity Group serve as moderators for our online discussion forum and collaborate with our Communications Manager on additional social and news media projects and initiatives. If you have an idea for a project, or are sharing your story with your local news media and would like to highlight ACHA, please email email@example.com.
Speakers Bureau: Our Speaker’s Bureau is comprised of Ambassadors and volunteers who share their story and speak on behalf of ACHA at events on a variety of topics. Topics for talks are developed by Ambassadors with very specific points to keep our messaging consistent across the country. As our Speaker’s Bureau is developed, more information will become available regarding members of the Bureau, our menu of speech topics and how to join the Speaker’s Bureau. If you would like to request a speaker for your event, please email firstname.lastname@example.org.