Advocacy Events

Join Us for
Congenital Heart Legislative Conference 2018
Washington, D.C. 

We will share information for 2018's premier advocacy event on this page when it is available! 

At Congenital Heart Advocacy Day, you will:

  • Learn about current CHD activities in Washington D.C.
  • Learn how to effectively tell your story.
  • Connect with other CHD patients and professionals.
  • Share your story with your members of Congress.
  • Inform your legislators about the key policy issues including the need for research and data collection.
  • Make a difference on behalf of those living with CHD!




Introducing My Daughter to Advocacy
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The Importance of Ongoing Advocacy
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One Small Pebble
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We Must Use Our Voices
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Celebrate Heart Month with Advocacy Day
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The One-Two Punch
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The Community of Advocacy
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The Two Best Things About Advocacy Day
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30 Seconds Add Up
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Congenital Heart Lobby Day 2012 was certainly one to celebrate! Nearly 80 advocates gathered in Washington, D.C., on March 1 for this incredible opportunity to talk to their lawmakers about congenital heart disease.

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In March 2011, ACHA once again, joined with partner organizations The Children’s Heart Foundation and Mended Little Hearts in hosting National Congenital Heart Lobby Day in Washington, D.C.

This year’s event targeted members of the appropriations committee, with 33 advocates flown in from key districts to visit 42 legislative offices. The message continued to be urgent request for funding of the provisions outlined in the Congenital Heart Futures Act, including increased National Institutes of Health funding and $7.25 million to the CDC for CHD surveillance.


More than 100 dedicated patients, caregivers and medical professionals, representing 28 states, united in one voice, asking their lawmakers to fund the provisions outlined in the Congenital Heart Futures Act at Lobby Day 2010.

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National Congenital Heart Lobby Day 2009 proved a successful kick off for the first joint undertaking by five of the seven National Congenital Heart Coalition (NCHC) groups.

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The prediction of a major winter storm in Washington, DC, on February 13, 2007, did not stop 74 congenital heart advocates from 19 states from attending the second National Congenital Heart Lobby Day on Capitol Hill.

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Lobby Day 2006 was a joint partnership of the Adult Congenital Heart Association (ACHA), the Congenital Heart Information Network (CHIN) and the Children’s Heart Foundation (CHF).

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