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ACHA Supported Legislation and Policies

The Adult Congenital Heart Association advocates for legislation and policies that influence the care, treatment, and quality of life of the community of adults living with CHD. We prioritize laws and policies with the broadest impact on those we serve.

Below are current legislation and policies ACHA supports in the areas of our four key priorities of increasing funding for research, improving access to care, growing awareness of ACHD, and ensuring people with ACHD have a voice in all aspects of their care.

Support the Congenital Heart Futures Reauthorization Act of 2024

In 2024 ACHA’s highest legislative priority is advocating for successful passage of the Congenital Heart Futures Reauthorization Act of 2024 (H.R. 7189/S. 3757). This legislation, also known as CHFRA, authorizes up to $10 million in annual federal funding for CHD programs at the U.S. Centers for Disease Control and Prevention (CDC), and requires the CDC to study and make recommendations to address the shortage of providers with expertise in ACHD.

Learn about the Congenital Heart Futures Reauthorization Act of 2024 (coming soon).
Show your support for CHFRA.

House Resolution Supporting Awareness of Young Adults with Chronic Conditions

In late 2023, ACHA supported a resolution introduced by Rep. Jamie Raskin (D-MD-08) and Sen. Chris Van Hollen (D-MD) expressing support for raising awareness of the growing population of young adults living with chronic health conditions. Complex CHD was highlighted, and the resolution called for increased awareness, research, interagency data-sharing, and acknowledgment of the long-term health and social impacts of chronic illnesses.

Read the resolution.
Find out what ACHA’s CEO and President Mark Roeder said about the resolution.

Contact us about legislation and policies in your area that we should track or support.

Updated 5/21/2024