Search

Disclaimer

By submitting your story and/or photo to ACHA, you are giving permission for your story and/or photo to be displayed on our website. The stories on this page are the property of the individual who has provided it. Stories may be edited for content. The experiences and opinions expressed are solely those of the individual, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied within these stories.

These stories are presented for informational purposes only, and should not be substituted for professional advice. Always consult your physicians with your questions and concerns.

Express Yourself

Minimize

Dan

By CaptainCardio on 1/18/2013 4:01 PM
In 1969 I was born with a hum-dinger of a condition: Tetralogy of Fallot along with a deviated septum AND transposition of the greater vessels. I had a Blalock shunt in 1971 and a Potts shunt in 1974. In 1986 I had open heart and a Fontan procedure.
By CaptainCardio on 1/15/2013 4:24 PM

I was born in South Dakota in 1961 with tetralogy of Fallot. My first heart procedure, a BT Shunt, was at a ripe age of 18 months at the Variety Club Heart Hospital in Minneapolis. After that surgery by Dr. Varco, I got along as best I could until 1969 when we returned to Minneapolis to have the ToF repaired.

I remember as a young boy trying to be involved in baseball with my friends and squatting in the outfield because I had figured out that seemed to help with shortness of breath. The ToF repair went very well and in short order I was running, and playing much like a "normal" kid. I would see a cardiologist occasionally while I was growing up, but for the most part I had no heart related concerns.

Jim

By CaptainCardio on 1/14/2013 4:46 PM
I was born in 1950 in Phoenix, Arizona with tetralogy of Fallot. Had a Blalock/Taussig shunt in 1953 at the University of California Hospital, Oakland. Grew up in Virginia Beach and Norfolk and was quite cyanotic in my grade school years. Had difficulty playing active games with kids and was very winded climbing stairs. I would walk a block, sit down for five minutes then walk another block.
By CaptainCardio on 1/11/2013 4:38 PM
I was born in 1964 with Double Outlet Right Ventricle (with HLHS), Mitral Valve Atresia, Pulmonic Stenosis, and Total Anomalous Venous Return. One of the rarest conditions, and at the ripe old age of five months, I went in for a Blalock-Taussig shunt procedure. The chances of survival were minimal, and the doctor’s gave my parents a year at most. They told my mother and father to take me home and enjoy the time they had with me.
Blog List
There are no categories in this blog.
Skip Navigation Links.