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By submitting your story and/or photo to ACHA, you are giving permission for your story and/or photo to be displayed on our website. The stories on this page are the property of the individual who has provided it. Stories may be edited for content. The experiences and opinions expressed are solely those of the individual, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied within these stories.

These stories are presented for informational purposes only, and should not be substituted for professional advice. Always consult your physicians with your questions and concerns.

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By CaptainCardio on 3/21/2013 4:40 PM
I am a 37 year old healthy female who was recently diagnosed with ASD. Very scary considering my father just passed 6 months ago after getting his mitral valve replaced. My cardiologist just referred me to a surgeon and I'm waiting for treatment options. Since I'm new to all of this, I'm nervous and in the process of gathering information.
By CaptainCardio on 3/11/2013 3:51 PM
Unlike so many with a CHD, I lived a healthy active childhood. I was always outside climbing trees and running around, took dance lessons for 14 years, and began training to swim competitively in high school. At the age of 16 I was undergoing a routine physical to obtain clearance to swim with the high school team. My new physician listened to my heart for an unusually long time and then asked, "Has anyone ever told you that you have a heart murmur?"

Jon

By CaptainCardio on 2/6/2013 4:15 PM
I was born in 1971 with Pulmonary Atresia, a small ASD, and a small right ventricle. I had my first open heart surgery the day after I was born. During that surgery they made a hole between the right ventricle and the pulmonary arteries. My second surgery was just before I turned 4. They enlarged the original hole and put a stitch in my ASD to close that up.
By CaptainCardio on 1/11/2013 4:34 PM
In 1965 I was born with congenitally corrected transposition of the great arteries; Dextrocardia (heart on the right side); associated ventricular septal defects and atrial septal defects, subpulmonic stenosis. As a bonus all my vital organs are opposite, but function normally. I’m posting this so Craig knows that there are more of us “oldies” out there with CC-TGV.
By CaptainCardio on 1/8/2013 4:29 PM
There I was rolling through life, a healthy, athletic, non-smoking, 46-year-old male. I had never been to the hospital for anything more than a broken finger. Then, last July I had some discomfort in my chest for a couple days. Heartburn was my diagnosis. Reluctantly, and by the persistence of my girlfriend I went to the emergency room. My EKG showed normal sinus rhythm. Not a heart attack, good news!
By CaptainCardio on 12/5/2012 12:36 PM

I was born in the city of Uberlandia, state of Minas Gerais, Brazil on March 26, 1980. I was born with 5 congenital heart defects: my right ventricle is atrophic, I do not have the tricuspid valve, I have pulmonary stenosis, inter-atrial septal defect, inter-ventricular septal defect, and the mitral valve was over working. In other words, my right ventricle did not work properly at all. The doctors considered me a blue baby.

My first 5 months of life was very hard. I had all kind of sickness possible, colds, flu, and almost every day my pulmonary valve would close and I was in crisis with short of breath. My mom would try every possible way to help me but all in vain. My mom, at that time did not know the extension of my health problems.

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