Posts by Tracey Grasty

We have had dozens of bloggers since this blog began who have been so open with their stories. If you are interested in blogging, too, we'd love to hear from you. Please email info@achaheart.org.

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Half a Century with Half a Heart

by Tracey Grasty on Thursday, Jan 28, 2016

Sometimes I get scared I will be all alone. I'm scared my parents will leave me all alone because they are in their 80s. I need to have a Fontan revision sometime in the near future, but I'm scared I won't do well, or I will have to go it all alone because—let's face it—my mom won't fly, she has health issues of her own, and my dad, who is older than her, needs to keep her safe.

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Not Cured

by Tracey Grasty on Friday, Nov 20, 2015

Hi readers, my name is Tracey, and I write to you today as a 49-year-old woman with tricuspid atresia (TA), hypoplastic right heart syndrome, atrial septal defect, and ventricular septal defect. I have had three heart surgeries: the BT shunt, the Waterston shunt, and the RA-PA Fontan (on the surgery front, I also have scoliosis and wore a Milwaukee brace for 5 ½ years, then had a Harrington rod placement surgery in 1983).

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The opinions expressed by ACHA bloggers and those providing comments on the ACHA Blog are theirs alone, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied by the ACHA bloggers.

The contents of this blog are presented for informational purposes only, and should not be substituted for professional advice. Always consult your physicians with your questions and concerns.