Posts by Anne Gammon

We have had dozens of bloggers since this blog began who have been so open with their stories. If you are interested in blogging, too, we'd love to hear from you. Please email info@achaheart.org.

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Introducing My Daughter to Advocacy

by Anne Gammon on Thursday, Feb 11, 2016

Washing dishes at my sink Monday morning, it seemed hard to fathom that just a week ago I was in Washington, D.C., for the kick off to the 2016 Congenital Heart Legislative Conference. This was my fourth advocacy day, but it had been several years since I was last able to be present. Even more noteworthy, it was the first time I would attend with my daughter with congenital heart disease, Shay, age 15.

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Celebrate Heart Month with Advocacy Day

by Anne Gammon on Monday, Feb 03, 2014

The deadline to register for this year’s Advocacy Day, which is Feb. 26-27, is in just a few days. If you have never attended, please consider doing so; an empowering and inspirational day awaits.

The first year I attended was in 2009, representing a pediatric organization as our daughter with CHD, Shay, was just 8 years old. For so many years, we had thought of Shay’s life in terms of days and eventually years, but never decades.

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The contents of this blog are presented for informational purposes only, and should not be substituted for professional advice. Always consult your physicians with your questions and concerns.