45 posts tagged with Pulmonary Stenosis.

Finding What Makes You Feel Limitless

by Kelly DiMaggio on Wednesday, Jun 22, 2016

I think we all have that person, place, thing or activity that makes us feel limitless when it comes to our hearts. Let's face it, as adults with congenital heart defects, there are definitely a lot of obstacles and limitations that we face in our day to day lives. Yet it's amazing how those obstacles and limitations take the back burner when we discover the place, thing, or activity that makes us feel unstoppable.

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To My Village: Thank You

by Kelly DiMaggio on Tuesday, Mar 29, 2016

I’m sure we have all heard the saying, “It takes a village to raise a child,” but I feel this rings particularly true for those of us with congenital heart disease and our respective family and friends.

My open heart surgeries were performed when I was three months old, two years old, and four years old. From the get-go, a strong community of loved ones surrounded me. My parent’s friends and my grandparent’s friends became regular visitors at the hospital and were by me just as much as my immediate family.

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Not a Piece of Cake

by Kim Edgren on Thursday, Jan 21, 2016

Being a mom is a beautiful gift that at one point in my life I thought may never happen. Being a CHD mom comes with so many blessings, but worries as well. Along with all the worries for my children’s health and happiness comes fear of what my heath trials may put them through.

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An End-of-Year Reflection on Love

by Kelly DiMaggio on Thursday, Dec 17, 2015

As the year comes to a close, many people find themselves reflecting on the past 12 months. I am no exception. 2015 was a rollercoaster of a year for me. In May, I lost my stepfather, Dave, a long and grueling battle with cancer. Dave was my right-hand man health-wise. He GOT every feeling I’ve ever had regarding living life with chronic illness. For those of us who fall into the medically-related sector of anxiety and depression, you know how strong the bond is between those with shared medical experiences. Losing that bond was devastating.

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The Gift of Time

by Kim Edgren on Wednesday, Nov 11, 2015

“You do too much” is something I hear often, mostly from my mom—although I usually write it off as worry. Lately, however, I have begun questioning if there isn’t some truth to that. I feel as if the months have swept by at an unbelievable speed and each day is as busy as the next. I admit, I tend to take on a lot.

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The Beauty of Scars

by Kelly DiMaggio on Friday, Sep 18, 2015

I loved writing this post, as it encompasses so much: love, friendship, and the beauty surrounding the "imperfect" body of those scarred CHD warriors. I often struggle to put my thoughts into words, as words don’t do justice to the vast spectrum of all that comes with being an ACHD patient. With that in mind I decided to focus my latest piece around a styled bridal shoot that I was lucky enough to model for. After all, a picture's worth a thousand words… right?!

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Looking for the Little Signs

by Kim Edgren on Monday, Aug 31, 2015

I have blogged in the past about waiting for the other shoe to drop from a cardiac standpoint. It is inevitable that there will be another intervention in my future. Of course the hope is that it is of the less invasive kind and not open heart surgery, but there are no guarantees.

I am always looking for some little sign that my heart status is changing and because of the subtle changes that led up to my heart failure the last time, I wish I knew what little memos my body may be trying to send me. And, I am hoping I didn’t get one last March.

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What Heart Defect?

by Kelly DiMaggio on Tuesday, Jul 07, 2015

Last month I had the pleasure of tuning in to a webinar entitled “When is Transplant an Option in the ACHD Patient?” presented by ACHA. I must admit, the presentation certainly stirred up a lot of emotions in me, many of which I’m still working through.

Writing has always been my solace, but it’s been hard to capture the rollercoaster of emotions and experiences in words. Yet these are the narratives that must be told. CHD patients are living well into decades that many physicians never thought they would see, and it is up to us to keep paving the path forward.

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Disclaimer

The opinions expressed by ACHA bloggers and those providing comments on the ACHA Blog are theirs alone, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied by the ACHA bloggers.

The contents of this blog are presented for informational purposes only, and should not be substituted for professional advice. Always consult your physicians with your questions and concerns.