47 posts tagged with Pulmonary Stenosis.

“But you don’t look sick...”

by Kelly DiMaggio on Thursday, Jul 30, 2020

COVID-19 has brought those with chronic and invisible illness to the forefront. Or has it?

As the pandemic drags on, numbers rise, and political views heat up, the main risk group is still predominantly presented as the elderly. Yet there is a whole subset of people with chronic and invisible illness. Those with asthma, heart problems, auto-immune diseases, cancer survivors… the list goes on and on. But we aren't seen as sick; rather, we are seen as young and thus “safe.”

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COVID-19: An Eye-Opener For Life With CHD

by Kelly DiMaggio on Wednesday, Jun 24, 2020

The coronavirus (COVID-19) has certainly turned everyone's world upside down, and my heart goes out to everyone who has been affected. To every single person working as essential personnel, thank you doesn't even begin to cover it – but thank you! While the last three months have been a huge adjustment for many, I can't help but think how quarantine has offered people a glimpse into what life with a complex CHD is actually like on a normal basis. It's strange to feel like – for once – the rest of the non-CHD world and I are on a level playing field.

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The Unknown Decade

by Kelly DiMaggio on Wednesday, Dec 19, 2018

November 23 marked my 30th birthday! Yes, 30 is definitely a milestone for everyone, but for me it was extra monumental. When I was born my parents were told I had hypoplastic left heart syndrome (HLHS)—a CHD incompatible with life—and that I would die within my first 24 hours. Miraculously, I defied the odds and 30 years later here I am. I couldn't be more grateful.

The months leading up to my birthday ended up being a roller coaster of emotions, some of which ended up taking me by surprise. Initially, I was ecstatic and beyond excited. Against all odds, I had made it! I wanted to scream it out from the rooftops.

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Unite to Fight Congenital Heart Disease

by Kelly DiMaggio on Thursday, May 03, 2018

I had the privilege of attending the 2018 DCMARVA Congenital Heart Walk this past Saturday and it was by far the most meaningful walk I've participated in thus far. My husband Mike first got involved in the Congenital Heart Walk even before I did, four years ago. I was out of town the weekend of the walk and Mike, within 72 hours, realized he could get the day off of work and attend the walk for the both of us.

In that short time, he raised more than $3,000, manned the registration table as a volunteer, and walked alone in my honor.

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Always a Heart Warrior

by Kelly DiMaggio on Thursday, Jan 04, 2018

Almost six years ago I had my last cardiac catheterization—a procedure that lasted nine hours (yes, you read that right!) and almost resulted in my cardiology team at the University of Maryland having to flip the catheterization lab into a full blown OR for what would have been my fourth open heart surgery. Luckily, they were able to avoid that.

At the time, I had been dating my boyfriend (now husband) for just over two years. I was still so young and our relationship was long distance, as I was a few hours away at college. Like most young lovers, our relationship was tumultuous at times.

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Defining True Support

by Kim Edgren on Tuesday, Nov 21, 2017

It is that time of year that we reflect on what we are thankful for. This year, as I enjoy the calm of heart stability, it is easy to take that for granted. It is during this calm, however, that I should be the most thankful for that stability.

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Empathy for the Routine CHD Patient

by Kelly DiMaggio on Thursday, Jul 20, 2017

As the first generation of adults living with CHD, I'm sure that just about all of us have faced an ignorant or beyond frustrating experience when dealing with a seemingly routine illness for a heart-healthy individual (like a stomach flu or upper respiratory infection) that is inherently more dangerous or has more severe complications for a CHD patient. Many of those who aren't familiar with complex CHDs, or who have never glimpsed into the life of someone with chronic illness, often have trouble grasping how these seemingly "run of the mill" illnesses can be much more serious for a CHD patient—including educated and well-intentioned medical professionals.

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Let's Talk About Love...

by Kelly DiMaggio on Wednesday, Feb 15, 2017

Being in love and in a relationship is one of the greatest gifts that life has to offer, especially for a congenital heart disease (CHD) patient.

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Disclaimer

The opinions expressed by ACHA bloggers and those providing comments on the ACHA Blog are theirs alone, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied by the ACHA bloggers.

The contents of this blog are presented for informational purposes only, and should not be substituted for professional advice. Always consult your physicians with your questions and concerns.