19 posts tagged with Hypoplastic Left Heart Syndrome.

Why Walk for 1 in 100 with ACHA in 2020?

by Jared Gould on Tuesday, Mar 03, 2020

In my last post in the series Pedaling the Pounds Off, I discussed how I managed to lose weight in Washington, D.C. through walking.

After successfully losing weight by biking, I worried that living in D.C. without my bike would make losing weight more difficult. I could diet in D.C., but it seemed walking would burn fewer calories than cycling. 

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Pedaling the Pounds Off: It Takes a Long Time

by Jared Gould on Monday, Jan 27, 2020

In my second post, I discussed what I called “The Learning Curve.” That is, cycling alone was not enough to continue to lose weight. Instead, my lifestyle had to change. I began to seriously consider what I was putting in my body.

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Pedaling the Pounds Off: The Learning Curve

by Jared Gould on Thursday, Dec 05, 2019

In my first post, I discussed my life struggle with weight. Going into my second semester of freshman year, I was nearly 300 pounds. Thinking I was on the verge of having a heart attack or developing diabetes, I made a decision to lose weight through cycling.

For an entire semester, I followed a strict routine. Every Monday, Wednesday, and Friday, I rode a hybrid fitness bike (seen in the first post) between 20-45 minutes and, on the weekends, I went on a two-hour ride with a friend. 

 

 

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Pedaling the Pounds Off: Where My Story Begins

by Jared Gould on Wednesday, Nov 06, 2019

Hello, world! My name is Jared Gould. I was born with hypoplastic left heart syndrome (HLHS), a congenital heart defect where the left side of the heart is extremely underdeveloped. From the time I was born until the age of four, I had four open heart surgeries. Of course, I was too young to recall that experience now, and having heart surgeries erased from my memory might be a blessing. However, growing up with HLHS is not.

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The Unknown Decade

by Kelly DiMaggio on Wednesday, Dec 19, 2018

November 23 marked my 30th birthday! Yes, 30 is definitely a milestone for everyone, but for me it was extra monumental. When I was born my parents were told I had hypoplastic left heart syndrome (HLHS)—a CHD incompatible with life—and that I would die within my first 24 hours. Miraculously, I defied the odds and 30 years later here I am. I couldn't be more grateful.

The months leading up to my birthday ended up being a roller coaster of emotions, some of which ended up taking me by surprise. Initially, I was ecstatic and beyond excited. Against all odds, I had made it! I wanted to scream it out from the rooftops.

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Cardio is Hardio: Running With CHD

by Annie Kaftor on Thursday, Dec 06, 2018

How I became a runner after many years of cardiologists telling me I “can’t” run still amazes me. I was born with hypoplastic left heart syndrome and had three open heart surgeries by the time I was one. I was always told I should do some sort of cardio but running is a no-go (“can’t” lift anything over my head and definitely “can’t” run a mile for gym class).

All that changed December 12, 2015, when I decided to run my “first” 5k with some friends at the San Diego Santa Run.

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Unite to Fight Congenital Heart Disease

by Kelly DiMaggio on Thursday, May 03, 2018

I had the privilege of attending the 2018 DCMARVA Congenital Heart Walk this past Saturday and it was by far the most meaningful walk I've participated in thus far. My husband Mike first got involved in the Congenital Heart Walk even before I did, four years ago. I was out of town the weekend of the walk and Mike, within 72 hours, realized he could get the day off of work and attend the walk for the both of us.

In that short time, he raised more than $3,000, manned the registration table as a volunteer, and walked alone in my honor.

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Always a Heart Warrior

by Kelly DiMaggio on Thursday, Jan 04, 2018

Almost six years ago I had my last cardiac catheterization—a procedure that lasted nine hours (yes, you read that right!) and almost resulted in my cardiology team at the University of Maryland having to flip the catheterization lab into a full blown OR for what would have been my fourth open heart surgery. Luckily, they were able to avoid that.

At the time, I had been dating my boyfriend (now husband) for just over two years. I was still so young and our relationship was long distance, as I was a few hours away at college. Like most young lovers, our relationship was tumultuous at times.

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Disclaimer

The opinions expressed by ACHA bloggers and those providing comments on the ACHA Blog are theirs alone, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied by the ACHA bloggers.

The contents of this blog are presented for informational purposes only, and should not be substituted for professional advice. Always consult your physicians with your questions and concerns.