27 posts tagged with Hypoplastic Left Heart Syndrome.

When You Meet Another with CHD, Part 2

by Jennifer Rogers on Wednesday, Feb 17, 2021

Hello! My name is Jennifer Rogers, and I have tetralogy of Fallot. I have been an ACHA blogger since 2018, and it has allowed me to meet many people like me, living with congenital heart disease. I believe highly in community and accountability, which is why I am so thankful to be part of this incredible organization. I really appreciate the opportunity to collaborate with Jared Gould, a fellow ACHA blogger, to discuss life with CHD and how our journeys have affected each other.

Jared was born with hypoplastic left heart syndrome. I read his series Pedaling the Pounds Off, and was inspired and motivated to stay active and be healthy. I reached out to him via Instagram in October 2020 to ask if we could talk one night. That conversation turned into friendship when we realized we shared the same feelings about our life experiences with CHD.

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When You Meet Another with CHD, Part 1

by Jared Gould on Sunday, Feb 07, 2021

Hi, my name is Jared Gould. Living with hypoplastic left heart syndrome, I enjoy opportunities to share information about my experiences with patients across the country. I started blogging for ACHA in July 2019 and since have met incredible people living with CHD. My blog series Pedaling the Pounds Off ended in early 2020, but I am now partnering with Jennifer Rogers, another ACHA blogger and friend, to write about issues facing CHD patients.

Jennifer was born with tetralogy of Fallot. We met virtually in October 2020 when out of nowhere I received a message from her on Instagram asking if we can connect. During our discussion, we discovered that we shared common views and experiences growing up with a heart condition. We even shared similar views on what it meant to be writing for ACHA and how we both questioned if we were the correct people to be sharing our stories.

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Pedaling the Pounds Off: Today and the Future

by Jared Gould on Thursday, Aug 27, 2020

In my last blog, Back in Mississippi, Part 2, I discussed how surrounding myself with highly motivated, hardworking people altered my weight loss journey. Through them, I learned that dedication to a routine was necessary to lose weight. And, as with all lessons I learned in my weight loss journey, I practiced keeping a strict routine during my senior year of college.

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“But you don’t look sick...”

by Kelly DiMaggio on Thursday, Jul 30, 2020

COVID-19 has brought those with chronic and invisible illness to the forefront. Or has it?

As the pandemic drags on, numbers rise, and political views heat up, the main risk group is still predominantly presented as the elderly. Yet there is a whole subset of people with chronic and invisible illness. Those with asthma, heart problems, auto-immune diseases, cancer survivors… the list goes on and on. But we aren't seen as sick; rather, we are seen as young and thus “safe.”

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COVID-19: An Eye-Opener For Life With CHD

by Kelly DiMaggio on Wednesday, Jun 24, 2020

The coronavirus (COVID-19) has certainly turned everyone's world upside down, and my heart goes out to everyone who has been affected. To every single person working as essential personnel, thank you doesn't even begin to cover it – but thank you! While the last three months have been a huge adjustment for many, I can't help but think how quarantine has offered people a glimpse into what life with a complex CHD is actually like on a normal basis. It's strange to feel like – for once – the rest of the non-CHD world and I are on a level playing field.

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Pedaling the Pounds Off: Back in Mississippi, Part 2

by Jared Gould on Thursday, Jun 11, 2020

In Part 1, I discussed that losing weight instilled in me a sense of confidence that altered my body image, giving me the courage to lead an organization at the University of Southern Mississippi. At the end, I hinted that living out my goals was not yet over, but that I was also met with new challenges.

In May 2018, I would intern in Jackson, Mississippi, for Governor Phil Bryant. The challenge came a few weeks before moving to Jackson. My brother was seeking to get out of the house and asked me if he could use my bike. I said, “yes!” But, 25 minutes later I received a call from him asking me to pick him up.

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Pedaling the Pounds Off: Back in Mississippi, Part 1

by Jared Gould on Tuesday, Apr 21, 2020

In my previous blog, Walk it Off, I wrote about my summer in Washington, D.C. After three months in D.C., I finally broke 240 pounds and when I returned to Mississippi in August to begin junior year, I was 230 pounds. I also discussed that by walking every day, I learned that exercise can be fun. Riding a bike, in fact, is not just a mechanism to lose weight. It is an adventure, a way to explore the environment and, as I will discuss in a future post, a great way to spend time with friends. On the day I returned to Mississippi, I hopped on the bike and took a long ride through my suburb, taking in my surroundings, looking at scenery, and even took a 30-minute break at the community lake.

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Why Walk for 1 in 100 with ACHA in 2020?

by Jared Gould on Tuesday, Mar 03, 2020

In my last post in the series Pedaling the Pounds Off, I discussed how I managed to lose weight in Washington, D.C. through walking.

After successfully losing weight by biking, I worried that living in D.C. without my bike would make losing weight more difficult. I could diet in D.C., but it seemed walking would burn fewer calories than cycling. 

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Disclaimer

The opinions expressed by ACHA bloggers and those providing comments on the ACHA Blog are theirs alone, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied by the ACHA bloggers.

The contents of this blog are presented for informational purposes only, and should not be substituted for professional advice. Always consult your physicians with your questions and concerns.