35 posts tagged with Transposition of the Great Vessels.

Still Cliché’?

by Alissa Butterfass on Thursday, Mar 31, 2016

My last post for the ACHA Blog was titled “Another New Year’s Cliché” and was about my resolution to (again!) try to improve my health through better eating, increased exercise and weight loss. Since it has been almost three months, I thought I’d share an update.

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Another New Year’s Cliché

by Alissa Butterfass on Wednesday, Jan 06, 2016

A new year is always an appropriate time to reflect on the year that has gone by and to think about our goals, wishes and hopes for the year to come. Last week, as my husband and I went on our last date night of 2015, we toasted to what a good year it had been.

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On Bravery and Strength

by Alissa Butterfass on Tuesday, Jun 02, 2015

There are two words I often hear in connection with living with my CHD, and more recently, when I had uterine cancer last year: “Brave” and “Strong.” I know my friends and family intend these words as compliments and as a way to encourage me when facing a challenging situation. But, I must admit, they make me cringe.

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I Am Not Immune To Cancer

by Alissa Butterfass on Monday, Nov 10, 2014

Back in 2011 I wrote a post for the ACHA Blog around Thanksgiving time. You can read it here, but the gist was that everyone has something; no one’s life is perfect. Sometimes it is easy to know what problem or issue someone is dealing with. Other times on the surface it might look like someone is living the perfect life—but the truth is that person is dealing with something too, you just might not know it. And my lot in life, my issue to deal with, was that I was born with a congenital heart defect.

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The Real Stress Test

by Alissa Butterfass on Friday, Sep 19, 2014

Many of us CHDers are familiar with the stress test. Often scheduled weeks in advance, we are told to wear comfy clothing and sneakers. We arrive at the hospital or doctor’s office and get hooked up to various machines and breathing masks, and then hop on either a bike or treadmill and start a carefully-monitored exercise session. The speed, tension and/or incline is increased in planned increments and the physicians or technicians take note of how our breathing, blood pressure, and heart rate are impacted by the stress of the exercise.

When we can no longer continue, we put a hand up, the machines are returned to starting positions and we slowly cool down and eventually stop altogether. Once we’ve caught our breath and the wires are detached, we are free to go about our business. Though I often complain about the effort required to coordinate scheduling and go into the city for the test, in truth it is hardly “stressful” for me at all.

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Part 2 and a Connection

by Alissa Butterfass on Monday, Jun 23, 2014

First, an update: When I last blogged, it was weeks before an upcoming cardiac catheterization. My doctor was hoping to attain images and measurements not accessible in other tests, and I was hoping to finally get an answer to what my exercise limitations are, and whether I could actually try to take up running or participate in a half marathon walk with my cousin.

The catheterization took place in late April. Even though only diagnostics were performed and no interventions were necessary, the recovery was more difficult than I anticipated—a massive headache for three days, likely due to dehydration, and a sore leg at the site of the catheter placement for a week.

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A (Not So) Simple Question

by Alissa Butterfass on Tuesday, Apr 08, 2014

It all started with a simple question to my cardiologist: “Do you think I could train for a 5K run?”

I have always been a walker. Come the warmer months, I lace up my sneakers and walk around the park or the neighborhood. When I am being good about my fitness, in colder months I will hop on an elliptical. But walking always felt kind of “lame” and I thought that if my heart could withstand the exertion and I could build up to a point where I didn’t get out of breath so quickly, I would enjoy running much more than walking. So on my most recent visit to the cardiologist I posed the question.

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Why I Support ACHA

by Alissa Butterfass on Tuesday, Dec 10, 2013

This is the season when many of us, our friends and our family open our hearts and wallets to donate much-needed funds to those causes most important to us. If you are like me, there are probably several charities and organizations that you want to support—and if our pockets were deep enough we’d give to them all. So today I want to share why ACHA is one well-deserving organization to which I donate year after year—and I hope you will too.

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The contents of this blog are presented for informational purposes only, and should not be substituted for professional advice. Always consult your physicians with your questions and concerns.