121 posts tagged with Pulmonary Atresia.

Sharing My Adoption Story

by Kim Russell on Tuesday, Jun 17, 2014

“She will not be able to bear children,” the doctor said. Of course, this was disappointing, but understandable. “She can’t have children?” my mother asked the doctor.

The doctor shook his head. “No, I said she cannot bear children. She will need to adopt. And there are many children out there who need good families.”

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Medications, Side Effects, and Safety

by Christy Sillman on Tuesday, Jun 10, 2014

I feel really lucky that for most of my life I wasn’t on any medications aside from the prophylactic antibiotics I took prior to dental procedures. When I sought out care from my fantastic ACHD doctor and finally got the care I needed, I was suddenly faced with starting multiple heart medications because my heart health had been neglected for so long.

For many patients, their ACHD care involves medications. As an ACHD nurse I often find myself counseling patients on medication compliance, safety, and understanding the side effects. I’d like to share some of my tips.

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More Questions

by Becca Atherton on Tuesday, May 27, 2014

After the frustrations in my last post, the plans to go to the new hospital were canceled because I got the stomach flu. This weekend I am headed up to California for a quick doctor appointment and to see my brother's girlfriend graduation! (Note: this post was written and submitted last week before the trip.) I don't expect too many tests or big changes to come from the appointment. I am meeting with my doctor to ask him questions about the upcoming heart cath that the new hospital I wrote about it my last post wants to do.

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Lean Forward

by Jon Ritchings, Jr. on Wednesday, Apr 23, 2014

I find little life lessons everywhere. After my last surgery I made the decision to change careers and go back to school. One of the classes I’m taking is an office keyboarding class. The teacher for that class is a runner and about two-thirds of the way through the semester she talked to us about what the rest of the semester would hold.

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Growing Up with CHD, Into a Precious Piece of Art

by Kim Russell on Thursday, Apr 10, 2014

Over the past few years, I have had opportunity to visit with many CHD parents across the United States. Listening to their stories, triumphs and challenges has made me realize that their work is much like that of a sculpting artist.

They find out their child has CHD, which is something they know nothing about—they have been given a precious amount of molding clay. So the first thing they do is gather all the tools and information they will need to form this precious child into a strong, independent adult. Then they begin their work of molding, so that each curve and edge is just the right shape.

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The Waiting Game

by Becca Atherton on Tuesday, Mar 18, 2014

A few weeks ago we got the good news that a hospital – although far from home – has agreed to evaluate me for a heart-lung transplant and see if they think they would be able to transplant me when the time comes. However, we haven't really heard from them for a few weeks now since the first time they called to talk to me about it.

At first we were told that the hospital was in-network with my insurance but now we are being told they still have to work things out with the insurance. My doctors in California gave the contact person my parent’s cell phone number as well as the home phone, but there was still an issue with a missed call left on our home phone.

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Heart Mom 2.0

by Christy Sillman on Friday, Feb 21, 2014

I thought pregnancy/labor was going to be the hardest part of being a mother with congenital heart disease, and let me tell you, it wasn’t exactly a walk in the park—but what I’ve found most surprising is how challenging motherhood itself would be in the face of my CHD.

Regardless of how you become a parent – old fashioned baby-making vs. surrogacy vs. adoption – you never really know what you’re getting into until you’re there. It’s a club only parents understand. I thought working 12-hour night shifts in a busy pediatric ICU was motherhood “training,” but little did I know that I’d later view those 12-hour shifts as my mommy breaks!

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Anatomy of a Great ACHD Visit

by Jon Ritchings, Jr. on Tuesday, Feb 18, 2014

It never fails to amaze me how happy a great visit to my ACHD doctor can make me. For me it’s like winning the lottery. There are a bunch of mixed emotions that crash together inside me. Elation at the good news. The drastic change from slight anxiousness to full-on relief. Pride in the fact that I did everything I was asked to do—and more—to get healthier. And definitely gratitude to my entire cardiac team for repairing all my heart’s broken bits and the guidance on what I should do to get healthy.

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Disclaimer

The opinions expressed by ACHA bloggers and those providing comments on the ACHA Blog are theirs alone, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied by the ACHA bloggers.

The contents of this blog are presented for informational purposes only, and should not be substituted for professional advice. Always consult your physicians with your questions and concerns.