118 posts tagged with Pulmonary Atresia.

Looking for Answers

by Becca Atherton on Wednesday, Feb 25, 2015

I was expecting a phone call from the surgeon sometime this week, so my mom kept her cell phone with her at all times. Every time it rang or buzzed, our anticipation rose and we all looked over at her with an expectant face. My heart would swell with hope every time it went off, only to be deflated each time.

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Parents Have a CHD Story, Too

by Kim Russell on Wednesday, Feb 11, 2015

When I expressed interest in writing this blog, I had no idea how hard it would be to express to parents how much CHDers genuinely appreciate them. What better way than to say, “Thank you! Thank you from the bottom of our hearts!”

Magazine articles, websites, Facebook pages and organizations report that 1 in 100 babies is born with a CHD. Usually facts about these children and their struggles of dealing with CHD are listed: illness, surgeries, recoveries, and challenges that meet each CHDer the minute he/she is born. Each child has his/her own story and all of them are miraculous.

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Your Role in Your Healthcare Team

by Christy Sillman on Thursday, Feb 05, 2015

The patient is the most important member of the healthcare team. You know your body the best, you’ve been living with congenital heart disease, and you’ve got the firsthand account of your medical history. For some people, managing their health can be a full-time job, and I want to share some ways you can help succeed in collaborating with your team.

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CHD During a Job Interview: To Mention or Not to Mention?

by Jon Ritchings, Jr. on Thursday, Dec 18, 2014

Yesterday I had my first interview in a couple of years. It was for an internship in a medical office. One of the things I thought about was, do I mention my congenital heart disease?

When I was writing my resume for this position I struggled with adding things like my Facebook groups, social media experience, this blog, and my experience as a patient—to show I have had some contact with the medical community. If I did put this stuff on the resume, though, I would be saying, “Hey, guys! I have a physical defect that will cause lifelong issues.”

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A Thankfulness Theme

by Becca Atherton on Thursday, Dec 11, 2014

I hope everyone had a wonderful Thanksgiving that was spent with family, friends and laughter! When considering what I am thankful for, I thought about all the amazing things I have in my life—and I noticed a recurring theme. All of these amazing things in my life are because of my health. It's odd to think that something that is so terrible has still managed to bring so much joy into my life.

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Authorizations, Appeals, and Insurance Claims… Oh My!

by Christy Sillman on Thursday, Nov 06, 2014

It was such an honor to present at the 7th National ACHA Conference, and although I am happy to share the slides from my presentation on getting insurance to work with you, I want to summarize my presentation here.

The main message I want everyone to know is that insurance companies, like many people, do not understand congenital heart disease. Luckily, we have guidelines and will soon have medical board certification to help the insurance companies navigate our care – but they need a lot of education.

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How I Melt Stress Away

by Jon Ritchings, Jr. on Tuesday, Oct 28, 2014

Stress. Stress! STRESS! It’s the bane of my existence these days.

I’m taking 15 credits at school this semester and am the president of a student club, plus am organizing a bake sale, playing in two ukulele groups, and teaching a ukulele class in two weeks to one of those groups. To say I’m busy is an understatement. I wake up every morning and start going over my list of things to do that day before I’m even out of bed.

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Heart to Heart in Atlanta

by Kim Russell on Thursday, Oct 09, 2014

"I wanted to go to the ACHA National Conference, but wasn't able to. This Heart to Heart Where You Live event in Atlanta was a great opportunity to experience it in part on a local level," was a common comment heard after our event this past Saturday. People came from as far away as Arkansas to enjoy time together with fellow CHDers and hear informative speakers who talked about topics such as lifelong care, low-carb diet, and the electricity of the heart.

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Disclaimer

The opinions expressed by ACHA bloggers and those providing comments on the ACHA Blog are theirs alone, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied by the ACHA bloggers.

The contents of this blog are presented for informational purposes only, and should not be substituted for professional advice. Always consult your physicians with your questions and concerns.