120 posts tagged with Pulmonary Atresia.

Passing the Heart Torch: Are You Up for the Challenge?

by Kim Russell on Tuesday, Dec 08, 2015

As a 55-year-old with a double inlet left ventricle, pulmonary atresia, chronic cyanosis, and recently-acquired pulmonary hypertension, I remain very active in the CHD community, both in Atlanta and nationally for ACHA. A couple of weeks ago, a local hospital called to ask if I would help find CHD adults to be on a panel at a recent teen transition conference. I have helped arrange and have participated in this panel discussion for several years, so I was excited to be a part of it again.

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Embracing All Kinds of Change

by Jon Ritchings, Jr. on Tuesday, Dec 01, 2015

I’m graduating—and with that, I will end my school career. Soon I’ll be interviewing and then working at a new job. This has me thinking about the sense of loss or excitement we can feel as we transition from one part of life to the next.

As congenital heart defect patients we often make transitions in our lives. Sometimes it’s a slow transition as our heart function declines and our bodies tire. Other times it is in the opposite direction as through surgery, medications, and changes in lifestyle, we get healthier and are able to physically do more.

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The Emotional Rollercoaster of Getting Bad News

by Becca Atherton on Friday, Nov 06, 2015

It's been a few weeks since we heard news concerning my transplant and since then, I've been trying to wrap my brain around it all. The hospital decided that I was too high risk for the transplant and denied me. Part of living with a chronic and/or terminal illness is that you are bound to get bad news from the doctors. But you never get used to it and each time you get bad news, you have to go through the healing and coping process all over again.

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Knowing What to Know

by Christy Sillman on Monday, Sep 14, 2015

One of the hardest things about being an adult with congenital heart disease is knowing what to watch for and when to call the doctor. For the longest time I hesitated before calling my doctor for something I was concerned about. I didn’t want to bother him, I didn’t want to seem annoying, and I wasn’t sure if my issue was worthy of a call. Now, as the person who receives the calls, I’m here to tell you the importance of calling.

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On the Other Side of the Bed

by Jon Ritchings, Jr. on Monday, Aug 03, 2015

I’ve recently started dating a young lady who also has a congenital heart condition. Two weekends ago we were supposed to get together for a date; however, our plans were disrupted by CHD. For once it’s not me and my wonky heart that were acting up, instead it was her wonky heart.

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A Life-Changing Event

by Kim Russell on Wednesday, Jun 17, 2015

In 2004 my CHD cardiologist finally talked me into attending the first ACHA conference. At the same time, my local cardiologist got me to agree to volunteer at Children’s Healthcare of Atlanta’s Camp Braveheart, a camp for children ages 7-18 with CHD. Both events completely changed my life forever.

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When You Talk About Your CHD

by Jon Ritchings, Jr. on Friday, May 22, 2015

I have a ton of friends. I get invites to concerts, dinners and outings all the time. However, I’ve noticed that some people shy away from you when you mention that you have a chronic illness. I don’t know if they are uncomfortable, just don’t want to get involved, or are heartless.

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Expiration Date

by Christy Sillman on Thursday, Apr 16, 2015

Many of us have asked our doctors THE question:

“When will I die?”

“How much longer do I have?”

“Does _____ test result mean that I am dying?”

It’s on all of our minds, and I know many of us have actually received answers to these questions—and then surpassed the physician-stamped expiration date. I know I have, on multiple occasions.

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Disclaimer

The opinions expressed by ACHA bloggers and those providing comments on the ACHA Blog are theirs alone, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied by the ACHA bloggers.

The contents of this blog are presented for informational purposes only, and should not be substituted for professional advice. Always consult your physicians with your questions and concerns.