118 posts tagged with Pulmonary Atresia.

A Lesson on CHD and Acceptance

by Marissa Mendoza on Tuesday, Jun 12, 2018

I had been studying for my last college exam when a friend from the Adult Congenital Heart Association asked if I would become involved with a “Congenital Heart Disease (CHD) Assembly” in Northern New Jersey. The assembly was for third to fifth graders, and their school was doing a week-long CHD awareness/fundraising event prior to the assembly. Just over 22 years ago, I was born with six complex congenital heart defects, and I underwent three open heart surgeries before I was two. I was within weeks of finishing my nursing degree when I was asked about the assembly, so I was eager to get involved with an event so close to my heart not only personally, but also professionally.

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Coping with My CHD: Finding the Balance

by Emily Moore on Friday, Feb 23, 2018

This past weekend, my husband and I went on an amazing adventure. We traveled to Michigan’s Upper Peninsula (UP) to go dog sledding. As in, we get our own pack of dogs, hop on a sled and they pull us through the beautiful UP winter woods. It was one of the greatest experiences of my life.

One of the better things about our vacation was being off my phone and living in the moment and enjoying my company—Mike. Our lives are so busy down in the city with our 9-5 jobs, rush hour traffic, and the mindless adult tasks of never-ending laundry and doing the dishes, that sometimes I miss that time to just be. Just be with myself, and with Mike, in the moment.

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Remembering Dr. Francis Fontan

by Emily Moore on Tuesday, Jan 23, 2018

When you lose someone you didn’t know personally but who has made such an impact in your life, it can be an odd mix of emotions. There is sadness, of course, but maybe even a sense of loneliness. Simply said—they will be missed, and you miss them deeply—even if you’d never spoken to the person.

When someone like Dr. Francis Fontan dies, the world is silent for a moment. For me, I felt this sense of sorrow. I thought “Wow, this man is pretty much the reason I am alive today, and I never got to say thank you.” There is this sense of gratefulness mixed with grief.

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My Story of an Unintentional Mistake

by Becca Atherton on Wednesday, Jan 17, 2018

About three months ago I messed up big time when it came to my health and medication. While it was all an accident, I didn't want to update and tell everyone what had happened because it was all my fault and I really didn't want to feel like I had to defend myself or reassure people that I didn't do it on purpose.

I forgot to take two weeks’ worth of one of my pulmonary hypertension medications.

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ACHA ACHD Program Accreditation is NOT a Competition

by Christy Sillman on Monday, Oct 23, 2017

Historically, when searching for appropriate cardiology care, either as a child or an adult, we’ve had to rely on national “rankings” through lists like U.S. News Reports & World Report rankings, or through our own analysis of the transparent information presented in the ACHA program directory. It’s no wonder then, that when the first wave of ACHA ACHD Accredited Programs were announced, many patient’s first reaction was to view these accredited programs as a sort of ranking comparatively to other programs. I saw many comments on social media that included sentiments such as “I can’t believe ____ program wasn’t included!” or “where is _____ program, this doesn’t seem fair!”

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The Beauty of My Oxygen

by Becca Atherton on Friday, Sep 15, 2017

I was a counselor this year once more at a camp for kids with CHD. The camp is Nick and Kelly Children’s Heart Camp in Prescott, AZ. My cabin was wonderful. I had three campers that I had last year, so it was great getting to see them again this year.

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The Guilt of Living with a Heart Condition

by Emily Moore on Wednesday, Jun 21, 2017

Throughout my childhood, my heart condition was never something that defined me. Growing up with it, it was almost like I didn’t even know. More recently, with getting married and wanting to start my own family, it has come to the forefront of my mind. My heart condition was always just a part of me, and I honestly didn’t do anything different because of it.

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Let Me Introduce Myself...

by Kim Russell on Thursday, Jan 05, 2017

Before I start, let me say it is a pleasure to meet you! Oh, I may not know you by name, but I am quite sure that we have a shared interest in congenital heart disease (CHD). Those are the people I enjoy meeting most, because CHD has become my passion.

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The opinions expressed by ACHA bloggers and those providing comments on the ACHA Blog are theirs alone, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied by the ACHA bloggers.

The contents of this blog are presented for informational purposes only, and should not be substituted for professional advice. Always consult your physicians with your questions and concerns.