29 posts tagged with Pulmonary Hypertension.

“But you don’t look sick...”

by Kelly DiMaggio on Thursday, Jul 30, 2020

COVID-19 has brought those with chronic and invisible illness to the forefront. Or has it?

As the pandemic drags on, numbers rise, and political views heat up, the main risk group is still predominantly presented as the elderly. Yet there is a whole subset of people with chronic and invisible illness. Those with asthma, heart problems, auto-immune diseases, cancer survivors… the list goes on and on. But we aren't seen as sick; rather, we are seen as young and thus “safe.”

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My Story of an Unintentional Mistake

by Becca Atherton on Wednesday, Jan 17, 2018

About three months ago I messed up big time when it came to my health and medication. While it was all an accident, I didn't want to update and tell everyone what had happened because it was all my fault and I really didn't want to feel like I had to defend myself or reassure people that I didn't do it on purpose.

I forgot to take two weeks’ worth of one of my pulmonary hypertension medications.

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The Beauty of My Oxygen

by Becca Atherton on Friday, Sep 15, 2017

I was a counselor this year once more at a camp for kids with CHD. The camp is Nick and Kelly Children’s Heart Camp in Prescott, AZ. My cabin was wonderful. I had three campers that I had last year, so it was great getting to see them again this year.

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To the Young Woman I Met

by Becca Atherton on Tuesday, Jun 07, 2016

On Monday, May 30, 2016, my dad drove my older sister, three of our heart friends and myself up to California for a short trip to Disneyland. We met up with our other heart friends for dinner in Downtown Disney that same night. The restaurant thankfully had let me make a reservation a few days before our trip and we were able to put enough tables together to get 16 people all together to eat. It was an amazing weekend filled with lots of laughter and amazing memories.

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The Emotional Rollercoaster of Getting Bad News

by Becca Atherton on Friday, Nov 06, 2015

It's been a few weeks since we heard news concerning my transplant and since then, I've been trying to wrap my brain around it all. The hospital decided that I was too high risk for the transplant and denied me. Part of living with a chronic and/or terminal illness is that you are bound to get bad news from the doctors. But you never get used to it and each time you get bad news, you have to go through the healing and coping process all over again.

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Looking for Answers

by Becca Atherton on Wednesday, Feb 25, 2015

I was expecting a phone call from the surgeon sometime this week, so my mom kept her cell phone with her at all times. Every time it rang or buzzed, our anticipation rose and we all looked over at her with an expectant face. My heart would swell with hope every time it went off, only to be deflated each time.

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A Thankfulness Theme

by Becca Atherton on Thursday, Dec 11, 2014

I hope everyone had a wonderful Thanksgiving that was spent with family, friends and laughter! When considering what I am thankful for, I thought about all the amazing things I have in my life—and I noticed a recurring theme. All of these amazing things in my life are because of my health. It's odd to think that something that is so terrible has still managed to bring so much joy into my life.

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The Reality of the “Red Band Society”

by Becca Atherton on Thursday, Oct 02, 2014

I have seen the internet abuzz over a new television show called Red Band Society. I've read a few reviews of the show that were written by chronically or terminally ill teens who had watched the pilot, and their reviews made me worried they wouldn't be portrayed properly. While there were a few things that I disliked about how they portrayed life in the hospital, there were some wonderful teaching moments and this show will hopefully raise awareness about children with terminal or chronic illnesses.

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