3 posts tagged with Intact Ventricular Septum.

Coping with My CHD: Finding the Balance

by Emily Moore on Friday, Feb 23, 2018

This past weekend, my husband and I went on an amazing adventure. We traveled to Michigan’s Upper Peninsula (UP) to go dog sledding. As in, we get our own pack of dogs, hop on a sled and they pull us through the beautiful UP winter woods. It was one of the greatest experiences of my life.

One of the better things about our vacation was being off my phone and living in the moment and enjoying my company—Mike. Our lives are so busy down in the city with our 9-5 jobs, rush hour traffic, and the mindless adult tasks of never-ending laundry and doing the dishes, that sometimes I miss that time to just be. Just be with myself, and with Mike, in the moment.

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Remembering Dr. Francis Fontan

by Emily Moore on Tuesday, Jan 23, 2018

When you lose someone you didn’t know personally but who has made such an impact in your life, it can be an odd mix of emotions. There is sadness, of course, but maybe even a sense of loneliness. Simply said—they will be missed, and you miss them deeply—even if you’d never spoken to the person.

When someone like Dr. Francis Fontan dies, the world is silent for a moment. For me, I felt this sense of sorrow. I thought “Wow, this man is pretty much the reason I am alive today, and I never got to say thank you.” There is this sense of gratefulness mixed with grief.

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The Guilt of Living with a Heart Condition

by Emily Moore on Wednesday, Jun 21, 2017

Throughout my childhood, my heart condition was never something that defined me. Growing up with it, it was almost like I didn’t even know. More recently, with getting married and wanting to start my own family, it has come to the forefront of my mind. My heart condition was always just a part of me, and I honestly didn’t do anything different because of it.

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