3 posts tagged with Hypoplastic Right Heart Syndrome.

CHD and Finding “The One”

by Lauren Bednarz on Thursday, Nov 29, 2018

My husband, Chris, and I have been together 10 years and married almost seven. Some days I still can’t believe I found my soulmate and very best friend. I’m so grateful and blessed to have him in my life.

When I was born 31 years ago I was supposedly a healthy baby girl, but at 10 weeks old and in heart failure, I was diagnosed with complex congenital heart defects: tricuspid atresia, hypoplastic right ventricle, and ventricular septal defect. Medical technology to help save us complex CHDers was still so “new,” and my parents were living moment to moment never dreaming that 31 years later I would be happily married and living a wonderful full life despite all the challenges I have faced.

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Half a Century with Half a Heart

by Tracey Grasty on Thursday, Jan 28, 2016

Sometimes I get scared I will be all alone. I'm scared my parents will leave me all alone because they are in their 80s. I need to have a Fontan revision sometime in the near future, but I'm scared I won't do well, or I will have to go it all alone because—let's face it—my mom won't fly, she has health issues of her own, and my dad, who is older than her, needs to keep her safe.

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Not Cured

by Tracey Grasty on Friday, Nov 20, 2015

Hi readers, my name is Tracey, and I write to you today as a 49-year-old woman with tricuspid atresia (TA), hypoplastic right heart syndrome, atrial septal defect, and ventricular septal defect. I have had three heart surgeries: the BT shunt, the Waterston shunt, and the RA-PA Fontan (on the surgery front, I also have scoliosis and wore a Milwaukee brace for 5 ½ years, then had a Harrington rod placement surgery in 1983).

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