11 posts tagged with Chronic Cyanosis.

Let Me Introduce Myself...

by Kim Russell on Thursday, Jan 05, 2017

Before I start, let me say it is a pleasure to meet you! Oh, I may not know you by name, but I am quite sure that we have a shared interest in congenital heart disease (CHD). Those are the people I enjoy meeting most, because CHD has become my passion.

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An Impactful Change

by Kim Russell on Thursday, Sep 29, 2016

Have you ever considered the impact that the Adult Congenital Heart Association (ACHA) has had in your life? The true support they have provided for you as an adult with congenital heart disease (CHD)? Before writing this blog, I had never truly thought through how much ACHA has changed my life and that of my family. Thank you, ACHA, for all you have been to me for the past twelve years. Thank you for the experiences and friendships I have had because of all of you!

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Passing the Heart Torch: Are You Up for the Challenge?

by Kim Russell on Tuesday, Dec 08, 2015

As a 55-year-old with a double inlet left ventricle, pulmonary atresia, chronic cyanosis, and recently-acquired pulmonary hypertension, I remain very active in the CHD community, both in Atlanta and nationally for ACHA. A couple of weeks ago, a local hospital called to ask if I would help find CHD adults to be on a panel at a recent teen transition conference. I have helped arrange and have participated in this panel discussion for several years, so I was excited to be a part of it again.

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A Life-Changing Event

by Kim Russell on Wednesday, Jun 17, 2015

In 2004 my CHD cardiologist finally talked me into attending the first ACHA conference. At the same time, my local cardiologist got me to agree to volunteer at Children’s Healthcare of Atlanta’s Camp Braveheart, a camp for children ages 7-18 with CHD. Both events completely changed my life forever.

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Taking a Slithery Challenge for CHD

by Kim Russell on Friday, Apr 10, 2015

Have you benefited from a prenatal diagnosis of your CHD baby? Have you searched out specialized adult care because of something you read or learned about in an ACHA resource or at an event? These sorts of efforts are examples of those funded by donors like yourself through individual giving or by donating to a Congenital Heart Walk!

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Parents Have a CHD Story, Too

by Kim Russell on Wednesday, Feb 11, 2015

When I expressed interest in writing this blog, I had no idea how hard it would be to express to parents how much CHDers genuinely appreciate them. What better way than to say, “Thank you! Thank you from the bottom of our hearts!”

Magazine articles, websites, Facebook pages and organizations report that 1 in 100 babies is born with a CHD. Usually facts about these children and their struggles of dealing with CHD are listed: illness, surgeries, recoveries, and challenges that meet each CHDer the minute he/she is born. Each child has his/her own story and all of them are miraculous.

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Heart to Heart in Atlanta

by Kim Russell on Thursday, Oct 09, 2014

"I wanted to go to the ACHA National Conference, but wasn't able to. This Heart to Heart Where You Live event in Atlanta was a great opportunity to experience it in part on a local level," was a common comment heard after our event this past Saturday. People came from as far away as Arkansas to enjoy time together with fellow CHDers and hear informative speakers who talked about topics such as lifelong care, low-carb diet, and the electricity of the heart.

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When I Finally Met People With CHD

by Kim Russell on Thursday, Aug 21, 2014

While recently visiting with a social worker at an ACHD clinic, I found out that there are still adult CHDers who have never met anyone else with CHD. I remember that feeling. It wasn’t one that was talked about or that I verbalized, but it was one that was forever in the back of my mind.

“Am I the only one going through this?” “Wouldn’t it be nice to have someone to talk to who understands what this is like?”

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The contents of this blog are presented for informational purposes only, and should not be substituted for professional advice. Always consult your physicians with your questions and concerns.