74 posts tagged with Tricuspid Atresia.

CHD and Finding “The One”

by Lauren Bednarz on Thursday, Nov 29, 2018

My husband, Chris, and I have been together 10 years and married almost seven. Some days I still can’t believe I found my soulmate and very best friend. I’m so grateful and blessed to have him in my life.

When I was born 31 years ago I was supposedly a healthy baby girl, but at 10 weeks old and in heart failure, I was diagnosed with complex congenital heart defects: tricuspid atresia, hypoplastic right ventricle, and ventricular septal defect. Medical technology to help save us complex CHDers was still so “new,” and my parents were living moment to moment never dreaming that 31 years later I would be happily married and living a wonderful full life despite all the challenges I have faced.

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Travel Must-Knows of a Heart Warrior

by Jara Weinkauf on Friday, Dec 15, 2017

Travelling is one of my favourite things to do in my free time. But as life has it, exploring the world with a congenital heart disease can be slightly different than usual.

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It All Started With A Stretch

by Ellen Greenberg on Friday, Feb 26, 2016

For the last two years, I have been dealing with chronic migraines—the worst kind. My cardiologist is not sure why I am living with this type of chronic pain. I know that many of us CHDers live with chronic pain. My neurologist is bewildered as to what to do for me—due to my multiple congenital heart defects—and common migraine medications have been difficult to administer.

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Half a Century with Half a Heart

by Tracey Grasty on Thursday, Jan 28, 2016

Sometimes I get scared I will be all alone. I'm scared my parents will leave me all alone because they are in their 80s. I need to have a Fontan revision sometime in the near future, but I'm scared I won't do well, or I will have to go it all alone because—let's face it—my mom won't fly, she has health issues of her own, and my dad, who is older than her, needs to keep her safe.

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I’m Just Jen

by Jennifer Gooden on Tuesday, Jan 12, 2016

I am not a heart hero. I am not a cardiac warrior. I am not a congenital heart survivor. I am not quite sure why it a plucks my nerve when people call me brave, strong or some combo of cardiac champion.

I am just Jen. I am me.

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The Spirit of Christmas

by Lorelei Hill on Tuesday, Dec 29, 2015

Snow or not, the spirit of Christmas blesses the world once again at this time of year. As the big day approaches, more and more happy shoppers wish friends and strangers a very merry Christmas. Likewise, excited children think about what to write to Santa, and whether or not Santa will think they have truly been nice.

Even the darkest of moods can be lifted by happy Christmas songs and friendly smiling faces. That is, unless the focus on being happy backfires. Feelings of loneliness, sadness, and despair can be just as strong at Christmastime as those of camaraderie, joy, and hope. In particular, less desirable feelings can quietly creep into the hearts and minds of those struggling with tragedy, poor health, and/or emotional stability.

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Not Cured

by Tracey Grasty on Friday, Nov 20, 2015

Hi readers, my name is Tracey, and I write to you today as a 49-year-old woman with tricuspid atresia (TA), hypoplastic right heart syndrome, atrial septal defect, and ventricular septal defect. I have had three heart surgeries: the BT shunt, the Waterston shunt, and the RA-PA Fontan (on the surgery front, I also have scoliosis and wore a Milwaukee brace for 5 ½ years, then had a Harrington rod placement surgery in 1983).

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Caring for an Adult in a Pediatric Cardiac Intensive Care Unit

by Jennifer Gooden on Tuesday, Nov 03, 2015

Last year I went to the Adult Congenital Heart Association Conference in Chicago with my zipper sister, Tracey. We both have tricuspid atresia, have had the Fontan procedure, and live in the same area. If that wasn’t enough of a bond, we also work together at a nationally-ranked pediatric hospital in the Cardiac Intensive Care Unit (CICU).

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The opinions expressed by ACHA bloggers and those providing comments on the ACHA Blog are theirs alone, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied by the ACHA bloggers.

The contents of this blog are presented for informational purposes only, and should not be substituted for professional advice. Always consult your physicians with your questions and concerns.