82 posts tagged with Transposition of the Great Arteries.

Feeling Like the Smelly Girl on the Playground

by Ellen Greenberg on Monday, Nov 25, 2013

This summer I graduated with my master’s degree. Upon graduation I became extremely sick with migraine headaches. For four months I laid in the dark of my bedroom feeling as if I was literally having open heart surgery on my head.

None of the doctors knew what to do for me. I had a CT scan both with and without contrast. Nothing was found. So the neurologist I had placed me on steroids.

This did not work. I was met with resistance for more steroids when the first round did not work. A headache specialist suggested admitting me for intravenous high dose steroids. The neurologist said “NO,” because “should something happen, her cardiologist would not be there.”

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On Belly Buttons and Infection Prevention

by Jennifer Gooden on Monday, Nov 04, 2013

Some of us ACHDers have to take prophylactic or preventive antibiotics before routine procedures like teeth cleaning. I am one of those people whose cardiologist suggests that I take antibiotics before teeth cleaning and getting piercings. My doctor recommends taking antibiotics preventively to protect against a serious heart infection called bacterial endocarditis.

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Ebb and Flow

by Kim Edgren on Tuesday, Oct 15, 2013

I sometimes feel like life with CHD is like the ebb and flow of the ocean. It sometimes is in the forefront of my daily life, crashing down on everything, and sometimes, it is way in the background, just a gentle reminder here and there. My health heavily influences where we are in that cycle, but even during the stable, “healthy” times, CHD can sometimes make its presence known in my day-to-day life.

CHD can be that little motivator. I have really been trying to maximize my current state of health and be as active as I can. While daily life can get in the way, I often find myself thinking two things:

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My Work Wife

by Jennifer Gooden on Thursday, Sep 05, 2013

It's always nice to have work buddy—someone who has your back during a bad day, who understands your stressors, and shares in your accomplishments. You can also talk to your work buddy about life outside of the office, or in my case, my unit. The right work buddy can be more like a work wife or hubby.

The large majority of nurses are female. And I am lucky to have a cool work wife. I hate to brag but my work wife—Tracy—is super special! Not only do we share a bond at work, but we also share a heart bond. She is an ACHD warrior, too.

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Conquering Control Issues at the Canyon

by Kim Edgren on Tuesday, Sep 03, 2013

A few weeks ago I went to Purgatory Chasm for a hike with my sister and her family. One thing I love about my current state of “heart healthy” is doing things like this—being out in nature, enjoying the elements. As we walked, we talked about going to the Grand Canyon. I am all for the concept of visiting the canyon, just not so much a mule ride.

So I spent the rest of the hike adamantly proclaiming I could hike down the canyon (no, I am not so naive to think I can hike up—still working out that plan!). Now, mind you, I know I am a heart patient, but still, I am all for the hike down one of the seven natural wonders of the world!

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“All Fontans Fail”

by Jennifer Gooden on Thursday, Jul 25, 2013

Late last year I shared with the ACHA community that I had gotten my dream job! I am working in the cardiac intensive care unit at a major medical center. This hospital also happens to be where I had all four of my surgeries (many years ago) and it is still the hospital I go to for my cardiac care now.

This job has challenged me in so many ways that I never thought possible. I get to work with some of the most astute medical minds in the world. They are a truly amazing group of people that have such a wealth of knowledge that I am dying to learn. Whenever I find time to pick the brain of a more senior nurse, I do! I ask about all kinds of cardiac conditions and blood flow patterns and medication dosages.

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Volunteering: In the Name of Research

by Kim Edgren on Monday, Jul 15, 2013

So… here is the scene:

I am on a bike, in a johnny that opens in the front. I am connected to equipment by 12 wires to my chest, two more for each index finger, and a blood pressure cuff. My nose is pinched closed and I am breathing into a plastic tube hanging from the ceiling.

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The Hood That Made Me Cry

by Ellen Greenberg on Thursday, May 30, 2013

I feel that embarking on a new situation is extremely scary and comes with constant worry and doubt. People who appear confident might have that as a front so no one sees their fear, but everyone feels it. We wonder if this is the right choice, how long until I know for sure that this is what I want, or do I even like my decision?

People want to know what the easy way out is. Well, guess what? If you have the drive and want to be successful, there is no easy way out. We as patients and people know this on a daily basis. If you breathe, you are going to take chances and risks.

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The opinions expressed by ACHA bloggers and those providing comments on the ACHA Blog are theirs alone, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied by the ACHA bloggers.

The contents of this blog are presented for informational purposes only, and should not be substituted for professional advice. Always consult your physicians with your questions and concerns.