84 posts tagged with Transposition of the Great Arteries.

I’m Just Jen

by Jennifer Gooden on Tuesday, Jan 12, 2016

I am not a heart hero. I am not a cardiac warrior. I am not a congenital heart survivor. I am not quite sure why it a plucks my nerve when people call me brave, strong or some combo of cardiac champion.

I am just Jen. I am me.

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The Gift of Time

by Kim Edgren on Wednesday, Nov 11, 2015

“You do too much” is something I hear often, mostly from my mom—although I usually write it off as worry. Lately, however, I have begun questioning if there isn’t some truth to that. I feel as if the months have swept by at an unbelievable speed and each day is as busy as the next. I admit, I tend to take on a lot.

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Caring for an Adult in a Pediatric Cardiac Intensive Care Unit

by Jennifer Gooden on Tuesday, Nov 03, 2015

Last year I went to the Adult Congenital Heart Association Conference in Chicago with my zipper sister, Tracey. We both have tricuspid atresia, have had the Fontan procedure, and live in the same area. If that wasn’t enough of a bond, we also work together at a nationally-ranked pediatric hospital in the Cardiac Intensive Care Unit (CICU).

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My Very First Congenital Heart Walk

by Ellen Greenberg on Wednesday, Oct 28, 2015

This month I had the pleasure of participating in my first Congenital Heart Walk benefiting the Adult Congenital Heart Association and The Children’s Heart Foundation. To say that I was motivated and excited would be an understatement, because my goal is always to raise awareness.

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Looking for the Little Signs

by Kim Edgren on Monday, Aug 31, 2015

I have blogged in the past about waiting for the other shoe to drop from a cardiac standpoint. It is inevitable that there will be another intervention in my future. Of course the hope is that it is of the less invasive kind and not open heart surgery, but there are no guarantees.

I am always looking for some little sign that my heart status is changing and because of the subtle changes that led up to my heart failure the last time, I wish I knew what little memos my body may be trying to send me. And, I am hoping I didn’t get one last March.

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The Power of Knowledge

by Ellen Greenberg on Monday, Jul 20, 2015

I think that as CHD patients we may have more medical knowledge than the average person. It is said that knowledge is power. But as CHD patients, is this power helpful or hurtful? The more we know, the scarier our own personal situations can be. This knowledge can also be a helpful tool. I like to feel the positive—that it is power.

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When Your Doctor Retires

by Jennifer Gooden on Thursday, Jun 04, 2015

I only have one more appointment with my ACHD cardiologist until she retires in July. My current cardiologist, we’ll call her Dr. L, is only my second cardiologist—ever. And my first ACHD cardiologist. I have been seeing her since I was about 19 years old. She is not only an amazing doctor—how many docs give you their cell phone number?—but she is a pretty cool person, too.

But while I am one of her biggest fans now, we have not always seen eye to eye.

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The Best Village Ever

by Kim Edgren on Thursday, May 28, 2015

Gratitude: “the the quality of being thankful; readiness to show appreciation for and to return kindness.”

These past couple months I have felt a lot of gratitude for all the support our team received in raising money for the Boston Congenital Heart Walk and for the help I receive from my family and friends in planning for, working towards and showing up on walk day. It takes a village and I have the best village ever.

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