79 posts tagged with Transposition of the Great Arteries.

The Most Important Summer

by Heather Magee-Anderson on Friday, Jul 10, 2020

I am a fiction writer. I like to write stories about people, their challenges, their fears, and joys. I do not like writing about myself, because for so long, my life was fiction. I told many tales in order to escape from my reality. I didn’t want to be someone with congenital heart disease, so like my stories, I changed the narrative. I now embrace my truth and advocate for those like myself, but I still find it difficult to write about myself.

However, 40 years ago, my life was saved, and I feel the need to acknowledge that moment and express my gratitude.

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"So, You're Fixed Now?" ...And Other Things People Have Said to Me About CHD

by Jennifer Casson Tripucka on Tuesday, Apr 14, 2020

“Wow, you have transposition of the great arteries and you survived to adulthood?” — a general practitioner (GP) doctor who then proceeded to pull his colleagues in to show them a diagram of my heart and how it works, on Google no less.

Sounds crazy at a GP’s office that I visited for a lingering cold a few years back, yet if you’re an adult with a congenital heart defect, this is a pretty common theme. Either someone has “heard” of your condition and is shocked you’re alive, has never heard of it but thinks you’re fine because you don’t look sick, or something similar. In my 33 years of having CHD, I’ve heard it all — and then some. Here are a few things people have said about CHD, which, if you have CHD, you’ll probably find eerily familiar.

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How Anxiety Helped Me with CHD

by Jennifer Casson Tripucka on Monday, Jul 22, 2019

When I was in graduate school, I literally thought I was dying—having severe palpitations and waking up sweating and unable to feel my limbs. A few cardiology tests later, it turned out it was anxiety: body-paralyzing, completely overwhelming panic attacks and night terrors. Chalk it up to not sleeping, too much caffeine, demanding work and school schedules, family things—it was undeniable.

Being a naturally anxious, type-A person (please find me someone with a heart condition who isn't, I would love to talk shop!), having CHD can be quite a rough diagnosis. But sometimes, there’s a silver lining in it. Here’s how anxiety really helped me personally get in tune with my body.

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Why Show Up?

by Darcie Farella on Thursday, Mar 21, 2019

This year marked my third consecutive year going to Washington D.C. for the Congenital Heart Legislative Conference. To be honest, I almost didn't attend. The Congenital Heart Futures Reauthorization Act was just signed into law a few months earlier and I was debating if I really should go advocate.

I recently moved, still had stuff in boxes, and had more than enough going on at work. Frankly, I just wanted to use the couple of days I had scheduled out of the office to sleep in, hangout with my cat and unpack some of my belongings. The one thing that kept me from cancelling was that I had a newly elected Representative for my district and I knew it was important to start early with making a connection, so I showed up!

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A Lesson on CHD and Acceptance

by Marissa Mendoza on Tuesday, Jun 12, 2018

I had been studying for my last college exam when a friend from the Adult Congenital Heart Association asked if I would become involved with a “Congenital Heart Disease (CHD) Assembly” in Northern New Jersey. The assembly was for third to fifth graders, and their school was doing a week-long CHD awareness/fundraising event prior to the assembly. Just over 22 years ago, I was born with six complex congenital heart defects, and I underwent three open heart surgeries before I was two. I was within weeks of finishing my nursing degree when I was asked about the assembly, so I was eager to get involved with an event so close to my heart not only personally, but also professionally.

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Defining True Support

by Kim Edgren on Tuesday, Nov 21, 2017

It is that time of year that we reflect on what we are thankful for. This year, as I enjoy the calm of heart stability, it is easy to take that for granted. It is during this calm, however, that I should be the most thankful for that stability.

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It All Started With A Stretch

by Ellen Greenberg on Friday, Feb 26, 2016

For the last two years, I have been dealing with chronic migraines—the worst kind. My cardiologist is not sure why I am living with this type of chronic pain. I know that many of us CHDers live with chronic pain. My neurologist is bewildered as to what to do for me—due to my multiple congenital heart defects—and common migraine medications have been difficult to administer.

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Not a Piece of Cake

by Kim Edgren on Thursday, Jan 21, 2016

Being a mom is a beautiful gift that at one point in my life I thought may never happen. Being a CHD mom comes with so many blessings, but worries as well. Along with all the worries for my children’s health and happiness comes fear of what my heath trials may put them through.

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Disclaimer

The opinions expressed by ACHA bloggers and those providing comments on the ACHA Blog are theirs alone, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied by the ACHA bloggers.

The contents of this blog are presented for informational purposes only, and should not be substituted for professional advice. Always consult your physicians with your questions and concerns.