61 posts tagged with Atrial Septal Defect.

Thoughts on the Eve of My Eleventh Heart Surgery

by Clare Almand on Tuesday, Apr 04, 2017

Tomorrow, I’m having my eleventh heart surgery.* Whenever I’m about to have surgery, I go through the same emotions. Most of my feelings go back to how absurd it is that this is a normal thing in my life. The following is a mostly concise description of what I’ve been thinking about.

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Learning to Love the Scar

by Clare Almand on Thursday, Jan 26, 2017

I wrote about body image five years ago, where I mentioned how proud I am of my scars and how I don’t have a problem wearing clothes that show them. While I feel that way now, that wasn’t always the case.

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You Are Not a Tree

by Clare Almand on Tuesday, May 31, 2016

I have always struggled with motivation. Unfortunately, reading inspirational quotes on Pinterest doesn’t help me complete that screenplay—it’s just three hours down the drain. Luckily, the upcoming ends of two eras have inspired me enough to really get things going.

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It All Started With A Stretch

by Ellen Greenberg on Friday, Feb 26, 2016

For the last two years, I have been dealing with chronic migraines—the worst kind. My cardiologist is not sure why I am living with this type of chronic pain. I know that many of us CHDers live with chronic pain. My neurologist is bewildered as to what to do for me—due to my multiple congenital heart defects—and common migraine medications have been difficult to administer.

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A New Sense of Living

by Katherine Buchanan on Monday, Feb 08, 2016

A little over two years ago I had my second heart surgery. I was a sophomore in college and terrified of the prospect of putting my life in someone else’s hands. While the support of my family and friends was immense and so meaningful, it could not put my fears of mortality and pain at bay.

The period of waiting and recovery was long, dramatic and difficult and defined by a rollercoaster of truly dynamic feelings. I remember walking around my college campus during the fall semester of my sophomore year feeling defined by limitations and drowning in the immense weight of my depression and anxiety.

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Half a Century with Half a Heart

by Tracey Grasty on Thursday, Jan 28, 2016

Sometimes I get scared I will be all alone. I'm scared my parents will leave me all alone because they are in their 80s. I need to have a Fontan revision sometime in the near future, but I'm scared I won't do well, or I will have to go it all alone because—let's face it—my mom won't fly, she has health issues of her own, and my dad, who is older than her, needs to keep her safe.

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Stress, Anxiety, Fear, Oh My!

by Katherine Buchanan on Monday, Nov 23, 2015

The summer is gone, replaced by fall. I swear 24 hours are so much longer in the summertime. As a student in my first semester of senior year of college, I have experienced a noticeable change of pace since I last blogged. While my summer was no means lackadaisical, the pressure of 17 hours of class on top of project demands, a campus job, and the need to find a “big girl” career—all while appearing to have my life together—is noticeably taking a larger toll on me than balancing work and fun this summer.

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Not Cured

by Tracey Grasty on Friday, Nov 20, 2015

Hi readers, my name is Tracey, and I write to you today as a 49-year-old woman with tricuspid atresia (TA), hypoplastic right heart syndrome, atrial septal defect, and ventricular septal defect. I have had three heart surgeries: the BT shunt, the Waterston shunt, and the RA-PA Fontan (on the surgery front, I also have scoliosis and wore a Milwaukee brace for 5 ½ years, then had a Harrington rod placement surgery in 1983).

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