Our ACHA bloggers cover many topics relevant to the CHD community. 

Problem. Solution.

by Clare Almand on Friday, Nov 04, 2011

After reading several blog posts about growing up with “expiration dates,” it really got me thinking about how different my childhood was. I never thought I had an expiration date. No one told me to watch out for a certain year. My life since day nine has been problem, solution, problem, solution. Problem on day nine: cardiac arrest. Solution: coarctation repair. Problem two months later: ventricular and atrial septal defects. Solution: my first open heart surgery. And so on and so forth.

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Mothers are the Powerhouses

by Kim Edgren on Wednesday, Nov 02, 2011

The title of this post is one of the lines from my daughter’s college essay about her night that she stayed with me in the hospital this past June as I recovered from my Melody valve procedure. Her reflection on that role reversal got me thinking about my own roles.

As it probably is for you, too, we have many roles; mine include wife, mother and daughter, to name just a few. In the days leading up to my procedure, it was often the worry over those roles that kept me up at night before I knew how this latest challenge would end: Would I be well enough to care for my kids? Would I still be able to make a living? And of course the big one—would I survive?

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A Doctor’s Note

by Paul Willgoss on Monday, Oct 31, 2011

The three little words in the title are almost designed to irritate and annoy…

Why?

As a school child, a doctor’s note was needed to “prove” my heart condition was such that I couldn’t play sports. I then needed another one when the advice changed and I was allowed to.

As an adult, I needed a medical exam with a note from my doctor to join the civil service.

As a half marathoner, I needed a doctor’s note to join the gym.

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Should I Be a Helicopter?

by Alissa Butterfass on Friday, Oct 28, 2011

As I write this, it’s a Sunday night. My family is just back from a long weekend in Florida. In just three days, we found time to build sandcastles on the beach, splash in the pool, eat some good Cuban food and hang out with my cousins. I even got in two good games of Scrabble with Grandma. Aside from my 2-year-old vomiting on me during the turbulent landing at LaGuardia, it was pretty close to perfect.

Except for one thing...

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Imagining: Healing Slowly but Surely

by Kelly Deeny on Wednesday, Oct 26, 2011

Imagine being roughly a year and a half old and having your chest cracked open. I'm imagining it right there with you because even though I experienced that situation, I have no conscious memory of it. I can't even fathom what the recovery period must have been like at that age. I had my tonsils out two years ago and I thought that was painful! So how did I get through all that pain and heal when I'm sure all I wanted to do was cry and fight? According to my parents, I was quite angry with them. And rightly so! (Just kidding—sort of).

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Goodbyes and Halos

by Stephanie Hodgson on Tuesday, Oct 25, 2011

Goodbyes are never easy.

A few months ago, one of my doctors informed me that she would be moving away so that she would be closer to her children and for her own spiritual journey in life. This news came as sort of a shock, only because I had thought I would be the one who would move away first. In fact, I had moved home for a few months to help my mother, but I had plans to move back.

My doctor is so stable that I took for granted that she would never move away. She helped me get stable and taught me how to be calm and breathe in oxygen. She once likened my life to a plate full of marbles—it’s been so unsteady. And, she once told me that my sister and I must have guardian angels as tall as the Empire State Building. She was also one of the main reasons for my moving back.

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Investing in my Future

by Christy Sillman on Friday, Oct 21, 2011

Ever since I was a little girl I have had this idea in my mind that I wouldn’t live past 30 years old. I’m not sure exactly why, but the catchphrase of “Doctors said she wouldn’t live past three days old and she ended up living 30 years” kept entering my mind. You see, I’ve been living my life on borrowed time. Every year feels like a gift or another year of defiance, and my pure focus has been on surviving.

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Do You Believe in Love at First Sight?

by Lorelei Hill on Wednesday, Oct 19, 2011

I have concrete evidence it exists.

In the spring of 2003, my husband Mike and I spent a weekend mulling over the pros and cons of perusing the adoption of a little boy we saw profiled in the “Book of Waiting Children.” As property of the Ontario Association of Children’s Aid Societies (OACAS), this book contains literally hundreds of photographs and stories of children hoping for a parent to come along and love them.

Struck by the size of the large grey binder, my heart ached when the receptionist handed it to me. On my first flip through, I saw a picture of a small boy and gasped, “He's beautiful!”

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Disclaimer

The opinions expressed by ACHA bloggers and those providing comments on the ACHA Blog are theirs alone, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied by the ACHA bloggers.

The contents of this blog are presented for informational purposes only, and should not be substituted for professional advice. Always consult your physicians with your questions and concerns.