37 posts tagged with Coarctation of the Aorta.

My Name Is Clare Almand and I Have CHD (Part 2 of 2)

by Clare Almand on Thursday, Mar 22, 2018

Note: To read Part 1 of Clare’s post, click here.

When I last left you, I was talking about being more open about my heart condition and sharing it on a larger scale—“fulfilling my purpose,” if you will. So here’s what I’m doing: I’ve collaborated with a dozen amazing women—writers, actors, and directors—and the first weekend in May we’re putting on a women’s perspective show in Los Angeles. We’re all writing and performing pieces about our lives: where we come from, the issues that are important to us, and the events that have shaped us

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My Name is Clare and I Have CHD (Part 1 of 2)

by Clare Almand on Tuesday, Feb 13, 2018

I don’t consider myself a “sick” person.

If I count the number of years that I’ve had heart surgeries and procedures, I can say that I’ve spent most my life “healthy”—as in “not being hospitalized.” Only 11 of my 31 years have I had heart issues that needed treatment, either medicinal or surgical. This ratio of “healthy” years to “sick” ones is an important part of my identity. And because I don’t consider myself sick, I don’t tell people regularly about my chronic illness.

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Can We Just State the Obvious? CHD Stinks.

by Clare Almand on Wednesday, Sep 27, 2017

It’s funny that four years ago, I stopped writing posts for the ACHA Blog because I’d run out of topics. My health was stable and I had no new angle or insight on my CHD experiences that I hadn’t covered or had been covered by someone else. And there were no new problems to report. It’s funny because, guys, that is sooooo over! My heart is back to being a huge jerk.

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Navigating the Detours

by Misty Sharpe on Wednesday, Aug 30, 2017

As children, we all have dreams of what we want to do or be when we grow up. At one point, I was convinced I was going to be an actress or comedian. If you could sit down with my mom and listen to the stories—or worse yet, watch some of the embarrassing videos of me as a child—that very well could have come true.

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Thoughts on the Eve of My Eleventh Heart Surgery

by Clare Almand on Tuesday, Apr 04, 2017

Tomorrow, I’m having my eleventh heart surgery.* Whenever I’m about to have surgery, I go through the same emotions. Most of my feelings go back to how absurd it is that this is a normal thing in my life. The following is a mostly concise description of what I’ve been thinking about.

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Why I Fundraise for ACHA...

by Misty Sharpe on Thursday, Feb 23, 2017

As I was growing up, I always felt my parents did an excellent job of empowering me when it came to my congenital heart disease (CHD). I knew the importance of taking my medications and understanding my physical limitations.  What none of us knew until I was around 22 years old, however, is that there was an organization out there specifically for adults like me.

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Learning to Love the Scar

by Clare Almand on Thursday, Jan 26, 2017

I wrote about body image five years ago, where I mentioned how proud I am of my scars and how I don’t have a problem wearing clothes that show them. While I feel that way now, that wasn’t always the case.

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Expecting the Unexpected

by Misty Sharpe on Thursday, Oct 27, 2016

On October 6-7, I should have been enjoying the warmth of the Orlando sun and taking in a wealth of information on numerous congenital heart disease (CHD) related topics. Mother Nature, however, had other plans in the form of Hurricane Matthew. If you’re like me, a first time Adult Congenital Heart Association National Conference goer, you were extremely excited, and maybe a little nervous, about all that you were going to learn. Now, with the new dates of the conference being June 1-3, 2017 in Orlando, all of this got me thinking about the unexpected as it relates to having CHD.

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Disclaimer

The opinions expressed by ACHA bloggers and those providing comments on the ACHA Blog are theirs alone, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied by the ACHA bloggers.

The contents of this blog are presented for informational purposes only, and should not be substituted for professional advice. Always consult your physicians with your questions and concerns.