Our ACHA bloggers cover many topics relevant to the CHD community. 

Music Helps My Heart Beat

by Christy Sillman on Thursday, Aug 25, 2011

One of the most vivid memories of my last open heart surgery in 1998 was driving through San Francisco on our way to UCSF with the music blaring. I felt a pit in my stomach as I contemplated whether that day would be the final day of my life. I felt an urge in my legs to tremble but instead I was forcing them to tap to the beat. The song was “Hit Me with Your Best Shot” by Pat Benatar.

“You’re a real tough cookie with a long history, of breaking little hearts like the one in me” — was I imagining God or my surgeon when I sang along to that lyric, or maybe just fate?

“That’s OK, let’s see how you do it. Put up your dukes, let’s get down to it. Hit me with your best shot. Fire away…”

Read more

A Shout-Out to All the Moms, Especially Mine

by Alissa Butterfass on Monday, Aug 22, 2011

Usually when I think of my heart condition, it’s that—MY condition. Something that is a part of me. Part of my life. My issue. As someone who has been living with a CHD for nearly (cough, cough) years—ok, 40—I feel like I am an authority on the subject in a special way exclusive to only those of us who have been living with a CHD.

Read more

No Smoking

by Kelly Deeny on Thursday, Aug 18, 2011

My beloved grandmother (aka Mom Mom) died of a heart attack when I was seven years old. I adored her. Loved her with all my heart. She was an incredible woman. One full of strength, love and unwavering support. But for all her tremendous attributes there’s only one that creates disappoint within me; she was a smoker.

It was the mid-80s, so smoking was still accepted most places, but when she died I lashed onto something to blame. And smoking became my nemesis. Even during a health presentation in elementary school I railed against it. Even if smoking didn’t cause her heart attack, it most certainly didn’t help the situation. And so, I vowed never to take up such a deadly habit.

Read more

The Heart of the Matter

by Stephanie Hodgson on Tuesday, Aug 16, 2011

These days when I listen to my heart I hear things that are sometimes too hard to bring to the surface. Like the pain of being divorced twice and the reality of possibly never being in a successful relationship in the future. Like the pain of trying to have a child despite that I put myself in extreme danger by getting pregnant twice, but both times having ectopic pregnancies, which almost killed me.

I'm constantly being barraged by other outside forces these days too. My lately nomadic lifestyle, my impulsive decision making, and not being grounded, keeps these deep-seated feelings buried alive, keeps me at ground zero, prevents me from getting from point A to point B, and hinders me from making any real progress.

Read more

The Heart Disease Label

by Christy Sillman on Wednesday, Aug 10, 2011

I remember the first time I sat in an adult cardiology waiting room. It was refreshing to have adult-themed magazines to look at and I enjoyed the peace and quiet of the elevator music. I still stood out from the crowd, but this time instead of being the oldest patient in the room I was now the youngest. I wasn’t quite sure of what to expect when I transitioned into adult cardiology care, but I never anticipated how much I would ultimately need to advocate for myself in a world where the title “heart disease” is synonymous with coronary artery disease, or acquired heart disease.

Read more

Some Candid Thoughts and Advice on Surrogacy

by Alissa Butterfass on Monday, Aug 08, 2011

For those of you considering gestational surrogacy, please know there is no one right way to go about it. Here are just some thoughts I can share based on my own experience (which I blogged about here and here). I am always very open and candid about what I went through, so if you’d like to discuss further, please feel free to contact me through ACHA.

Read more

Push It

by Amy Verstappen on Friday, Aug 05, 2011

The joke in my family is that I never met a bureau I did not want to move. Although none of us have an athletic bone in our bodies, of my five sisters I am by far the most physically active. I am lucky enough to have had a pediatric cardiologist who, even back in the 1960s, believed in self-regulation. Told to do whatever I wanted “until my body said stop,” I took this instruction quite literally. When playing tag, my signal to stop was my heart pounding so loud I could not hear, combined with the distinct urge to both faint and vomit.

Read more

Funding Research: Chocolate or CHD?

by Amy Basken on Wednesday, Aug 03, 2011

I love chocolate. Dove Dark Chocolate Promises. Well, and M&M’s, too. This should come as no surprise to anyone who knows me.

Any woman I know would agree that chocolate is wonderful—it reduces stress, renews energy, and may even be an aphrodisiac. Many women will also agree that chocolate may save lives—particularly those of our spouses. Thus, in our house, the tradition of chocolate for Valentine’s Day has morphed to the giving of a bag of Dove Chocolate once every 28 days.

Read more

Disclaimer

The opinions expressed by ACHA bloggers and those providing comments on the ACHA Blog are theirs alone, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied by the ACHA bloggers.

The contents of this blog are presented for informational purposes only, and should not be substituted for professional advice. Always consult your physicians with your questions and concerns.