Our ACHA bloggers cover many topics relevant to the CHD community. 

A Pledge to Stop Mistreating My Heart

by Kelly Deeny on Friday, Jan 20, 2012

I follow my heart most of the time. It doesn’t always serve me well, but I still let it guide me where it chooses. I trust it to know what’s best—to understand my limitations, both physically and spiritually. After all, it’s been through a great deal. It was in need of repair from the start, yet it held on. It kept beating. Kept me alive. It knew struggle and so have I. We’re a pair. It takes care of me. And yet...

I don’t always return the favor.

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Confessions of a Hospital Snob

by Kim Edgren on Thursday, Jan 19, 2012

I consider myself a hospital snob. It is easy for me because I live so close to Boston and some of the top hospitals for anything I have ever needed. When my friends ask my opinion about healthcare, I always steer them in that direction, even with many other hospital options much closer.

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BHAG This-A-Way, BHAG That-A-Way

by Paul Willgoss on Wednesday, Jan 18, 2012

This is an unapologetic endurance athlete-type blog, which is why I’m starting off recalling an HR conference in deepest Yorkshire.

I had the pleasure of seeing a business guru do his guru-thing to an audience of suited women and men. Although most of what the presenter, Jim Collins, was saying went the way of much guru-isms, he did come out with something that made me think.

The BHAG: Big Hairy Audacious Goal

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Baby, I Was Born This Way

by Alissa Butterfass on Thursday, Jan 12, 2012

On my first date with my husband, he took me to a restaurant on the Upper West Side of New York, we discussed his upcoming vacation, and he told me he loved to cook homemade pizzas and apple pie (both of which he wouldn’t cook for me for nearly a year, by the way).

But this post isn’t about my first date with my husband. It’s about the last first date I had before I met my husband.

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Transitioning: An Unbelievably Similar Story

by Stephanie Hodgson on Tuesday, Jan 10, 2012

“Welcome to adulthood,” Dr. Heydarian’s nurse, who is also his wife, said, as I undressed for my first echocardiogram at age 17 in January 1983. Sometimes those gowns are useless when having this procedure, and I’m very glad a woman was with me during the echo. This is one of many CHD experiences I had going into adult health care, and we’re fortunate enough to have a team, such as ACHA, that understands this transition from adolescence to adulthood.

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Easy Chocolate Cake—in the Microwave!

by Jennifer Rice on Friday, Jan 06, 2012

I can’t believe that it is 2012 already! It seems like just yesterday it was Thanksgiving and in a blink of an eye it is already the New Year. For me, this means my birthday is super close by—it’s today! After my birthday, I know the holiday season is officially over and that “real life” will commence.

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Remembering What’s Important

by Lorelei Hill on Wednesday, Jan 04, 2012

Last month, I went for my first ever day-patient iron transfusion. Yippee, another new hospital experience! Like the old cardiac pro that I am, I arrived on the second floor with minutes to spare. With ID in hand, I approached the reception desk...

”Out this door and down the hall," I was instructed. Apparently this ‘old pro’ was in the wrong place.

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Happy New Year!

by Christy Sillman on Tuesday, Jan 03, 2012

It’s 2012! That is wild! Shouldn’t we have flying cars or be hanging out with neighboring aliens by now? That’s what I thought when I was a little girl. Sometimes I think we haven’t advanced much as a society. But when my best friend was anxiously grilling me on what the future of my cardiology needs might be, I realized that a lot has changed, especially in the field of CHD care.

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The opinions expressed by ACHA bloggers and those providing comments on the ACHA Blog are theirs alone, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied by the ACHA bloggers.

The contents of this blog are presented for informational purposes only, and should not be substituted for professional advice. Always consult your physicians with your questions and concerns.