Our ACHA bloggers cover many topics relevant to the CHD community. 

Defining True Support

by Kim Edgren on Tuesday, Nov 21, 2017

It is that time of year that we reflect on what we are thankful for. This year, as I enjoy the calm of heart stability, it is easy to take that for granted. It is during this calm, however, that I should be the most thankful for that stability.

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Treating Adult Congenital Heart Patients at a Children’s Hospital

by Wilson Lam, MD on Wednesday, Nov 01, 2017

While it may sound unconventional, it is not uncommon for an adult patient to be treated at a children’s hospital. In the congenital heart disease community, this tends to be the case for a variety of reasons.

Below, Dr. Wilson Lam, a pediatric and adult cardiologist at Texas Children’s Hospital, discusses his patient, Jason, and his role in treating the tallest and oldest patient at Texas Children’s Hospital.

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ACHA ACHD Program Accreditation is NOT a Competition

by Christy Sillman on Monday, Oct 23, 2017

Historically, when searching for appropriate cardiology care, either as a child or an adult, we’ve had to rely on national “rankings” through lists like U.S. News Reports & World Report rankings, or through our own analysis of the transparent information presented in the ACHA program directory. It’s no wonder then, that when the first wave of ACHA ACHD Accredited Programs were announced, many patient’s first reaction was to view these accredited programs as a sort of ranking comparatively to other programs. I saw many comments on social media that included sentiments such as “I can’t believe ____ program wasn’t included!” or “where is _____ program, this doesn’t seem fair!”

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Scars of Strength & Pride

by Ken Woodhouse on Thursday, Oct 05, 2017

Earlier this year, I posted a tweet that seemed to resonate with some of my followers:

As a child, I was very self-conscious about my scar. Today, it serves as a reminder of my inherent strength and resilience. #CHDlife

Whether or not a person has a congenital heart defect and its related scars, I think that many of us struggle with body image issues. We’re too fat, too skinny, too tall, too short, too hairy, or too smooth; we must fix these faults—at least that’s what popular culture wants us to believe.

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Can We Just State the Obvious? CHD Stinks.

by Clare Almand on Wednesday, Sep 27, 2017

It’s funny that four years ago, I stopped writing posts for the ACHA Blog because I’d run out of topics. My health was stable and I had no new angle or insight on my CHD experiences that I hadn’t covered or had been covered by someone else. And there were no new problems to report. It’s funny because, guys, that is sooooo over! My heart is back to being a huge jerk.

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Pacemaker Check, Reality Check: Implanted Cardiac Rhythm Devices and Hacking

by James C. Perry, MD on Friday, Sep 22, 2017

There has been a small amount of coverage in the news cycles lately about the potential for pacemakers and defibrillators to be subject to hacking. Notably, in a 2012 episode of the Showtime series, “Homeland,” a Vice President character’s pacemaker was hacked and reprogrammed, causing his demise. This certainly resulted in some increased patient phone call volume in physician’s offices at the time, with people asking, “Can my pacemaker be hacked?”

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The Beauty of My Oxygen

by Becca Atherton on Friday, Sep 15, 2017

I was a counselor this year once more at a camp for kids with CHD. The camp is Nick and Kelly Children’s Heart Camp in Prescott, AZ. My cabin was wonderful. I had three campers that I had last year, so it was great getting to see them again this year.

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Navigating the Detours

by Misty Sharpe on Wednesday, Aug 30, 2017

As children, we all have dreams of what we want to do or be when we grow up. At one point, I was convinced I was going to be an actress or comedian. If you could sit down with my mom and listen to the stories—or worse yet, watch some of the embarrassing videos of me as a child—that very well could have come true.

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Disclaimer

The opinions expressed by ACHA bloggers and those providing comments on the ACHA Blog are theirs alone, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied by the ACHA bloggers.

The contents of this blog are presented for informational purposes only, and should not be substituted for professional advice. Always consult your physicians with your questions and concerns.

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