Our ACHA bloggers cover many topics relevant to the CHD community. 

Remembering Dr. Francis Fontan

by Emily Moore on Tuesday, Jan 23, 2018

When you lose someone you didn’t know personally but who has made such an impact in your life, it can be an odd mix of emotions. There is sadness, of course, but maybe even a sense of loneliness. Simply said—they will be missed, and you miss them deeply—even if you’d never spoken to the person.

When someone like Dr. Francis Fontan dies, the world is silent for a moment. For me, I felt this sense of sorrow. I thought “Wow, this man is pretty much the reason I am alive today, and I never got to say thank you.” There is this sense of gratefulness mixed with grief.

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My Story of an Unintentional Mistake

by Becca Atherton on Wednesday, Jan 17, 2018

About three months ago I messed up big time when it came to my health and medication. While it was all an accident, I didn't want to update and tell everyone what had happened because it was all my fault and I really didn't want to feel like I had to defend myself or reassure people that I didn't do it on purpose.

I forgot to take two weeks’ worth of one of my pulmonary hypertension medications.

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My Regional Conference Experience

by Jennifer Rogers on Friday, Jan 12, 2018

I recently discovered the Adult Congenital Heart Association, and I am so thankful that I did. As a young adult and college student living with CHD, sometimes there is a great amount of uncertainty that can come with it. I happened to be learn about ACHA’s Memphis Regional Conference this past October, and it struck my interest.

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Always a Heart Warrior

by Kelly DiMaggio on Thursday, Jan 04, 2018

Almost six years ago I had my last cardiac catheterization—a procedure that lasted nine hours (yes, you read that right!) and almost resulted in my cardiology team at the University of Maryland having to flip the catheterization lab into a full blown OR for what would have been my fourth open heart surgery. Luckily, they were able to avoid that.

At the time, I had been dating my boyfriend (now husband) for just over two years. I was still so young and our relationship was long distance, as I was a few hours away at college. Like most young lovers, our relationship was tumultuous at times.

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Travel Must-Knows of a Heart Warrior

by Jara Weinkauf on Friday, Dec 15, 2017

Travelling is one of my favourite things to do in my free time. But as life has it, exploring the world with a congenital heart disease can be slightly different than usual.

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Whatever it is that brings you joy, do that.

by Kathleen Hutchinson on Wednesday, Dec 06, 2017

Wow, where does the time go? This past year has flown by. It seems not much has happened but when I look back, a lot has happened. I continue to feel great and believe I am healthier than I’ve ever been.

At the beginning of the year, instead of New Year’s resolutions, I made a “to-do” list for the year. I can say I accomplished at least half, if not more, on my “to-do” list.

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Defining True Support

by Kim Edgren on Tuesday, Nov 21, 2017

It is that time of year that we reflect on what we are thankful for. This year, as I enjoy the calm of heart stability, it is easy to take that for granted. It is during this calm, however, that I should be the most thankful for that stability.

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Treating Adult Congenital Heart Patients at a Children’s Hospital

by Wilson Lam, MD on Wednesday, Nov 01, 2017

While it may sound unconventional, it is not uncommon for an adult patient to be treated at a children’s hospital. In the congenital heart disease community, this tends to be the case for a variety of reasons.

Below, Dr. Wilson Lam, a pediatric and adult cardiologist at Texas Children’s Hospital, discusses his patient, Jason, and his role in treating the tallest and oldest patient at Texas Children’s Hospital.

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Disclaimer

The opinions expressed by ACHA bloggers and those providing comments on the ACHA Blog are theirs alone, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied by the ACHA bloggers.

The contents of this blog are presented for informational purposes only, and should not be substituted for professional advice. Always consult your physicians with your questions and concerns.

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